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Filter view for IRS Form 990 organizations: name, EIN, NTEE, revenue, expenses, program share, and fiscal year.

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Organization Location Revenue Expenses Assets Program Fundr. cost Employees Type Follow
National Organization for Rare Disorders INC Nord strives to improve the health and well-being of people with RARE diseases by driving advances in care… 13-3223946 · FY2024 Norwell, MA $50.7M $43.0M $66.9M 83% 7% 116 501(c)(3)
Everylife Foundation for Rare Diseases The EVERYLIFE FOUNDATION for RARE DISEASES is dedicated to advancing the development of treatment and… 26-4614274 · FY2024 Washington, DC $7.0M $6.8M $6.2M 70% 8% 18 501(c)(3)
The Brett Boyer Foundation INC Our mission is to raise awareness for congenital heart disease (chd) and fund research to advance treatment… 82-3179454 · FY2024 Nashville, TN $4.8M $2.0M $13.3M 81% 15% 3 501(c)(3)
Special Friends Foundation INC The organization's mission is to assist SPECIAL needs individuals and their families who are suffering from… 11-3374927 · FY2024 Drexel Hill, PA $3.8M $3.4M $4.9M 73% 1% 32 501(c)(3)
Rare Village Foundation To fight for cures for RARE diseases and empower individuals with RARE diseases to live their best lives… 83-4699994 · FY2024 McKinney, TX $3.5M $3.1M $3.3M 97% 1% 1 501(c)(3)
Creutzfeldt-Jakob Disease Foundation INC To support families affected by prion DISEASE, raise awareness, and support medical education and research. 65-0404623 · FY2024 Fairlawn, OH $2.9M $1.9M $9.2M 86% 5% 5 501(c)(3)
Myelodysplastic Syndromes Foundation Established by an international group of physicians and researchers to provide an ongoing exchange of… 22-3283911 · FY2024 New York, NY $2.0M $3.0M $3.8M 65% 20% 8 501(c)(3)
Myhre Syndrome Foundation Myhre Syndrome Foundation is a Funding research and patient advocacy organization dedicated providing hope… 83-4086943 · FY2024 Keller, TX $1.7M $567.2K $2.0M 100% 0% 3 501(c)(3)
Siegel Rare Neuroimmune Association To support and advocate for individuals and their families diagnosed with RARE NEUROIMMUNE disorders of the… 91-1780467 · FY2024 Powell, OH $1.5M $1.6M $1.6M 86% 8% 7 501(c)(3)
Phelan McDermid Syndrome Foundation The mission of the Phelan-McDermid Syndrome Foundation is to improve the quality of life of people affected… 04-3673104 · FY2025 Osprey, FL $1.2M $1.1M $2.2M 66% 18% 11 501(c)(3)
Fore Batten Foundation This organization is organized exclusively for educational and charitable purposes, including to educate the… 82-2661656 · FY2024 Scottsdale, AZ $1.1M $2.7M $383.1K 98% 1% 1 501(c)(3)
Monoamine Oxidase Deficiency Foundation The primary charitable mission of the MONOAMINE OXIDASE DEFICIENCY FOUNDATION (the "corporation") is to… 88-0987512 · FY2024 Galveston, TX $920.7K $740.7K $209.6K 100% 0% — 501(c)(3)
Asxl Rare Research Endowment Foundation A family-led organization that supports research to increase the understanding of the ASXL gene family and… 82-3890665 · FY2024 Gorham, ME $887.6K $474.9K $1.1M 80% 5% 1 501(c)(3)
Parkinson Foundation of Western Pennsylvania To provide support and services for those with parkinson's disease and their families, and support medical… 25-1803585 · FY2024 Cranberry Township, PA $831.0K $769.8K $149.6K 55% 30% 4 501(c)(3)
H L Snyder Medical Foundation Support cancer and other MEDICAL research, contributing to local MEDICAL charitable efforts and providing… 48-0622380 · FY2024 Winfield, KS $826.2K $504.8K $14.5M 79% 1% 1 501(c)(3)
Foundation of the Consortium of Multiple Sclerosis Centers The Organization was established for the promotion of educational and research scholarships for the… 31-1698640 · FY2024 Hackensack, NJ $735.7K $312.6K $561.1K 78% 0% — 501(c)(3)
The Amyloidosis Foundation The organizations mission is to increase education and awareness of AMYLOIDOSIS, to assist patients in… 20-0291856 · FY2024 Clarkston, MI $688.5K $602.5K $1.1M 80% 10% 3 501(c)(3)
James D Snyder Charitable Tr Mission is to promote CHARITABLE funding to non-profit brain injury agencies that qualify for exemption under… 83-6644603 · FY2024 S Yarmouth, MA $627.4K $112.4K $1.3M 93% 0% — 501(c)(3)
Children's Sickle Cell Foundation INC To provide quality programs for children with SICKLE CELL disease (scd) and their families in the areas of… 02-0649650 · FY2024 Pittsburgh, PA $604.3K $807.9K $222.3K 82% 0% 10 501(c)(3)
Batten Disease Support and Research Association Our long-term vision is a world without BATTEN DISEASE. Our mission is to SUPPORT BATTEN families, fund and… 91-1397792 · FY2024 Gahanna, OH $602.0K $967.3K $965.9K 71% 8% 6 501(c)(3)
Jtd Hospital Foundation The primary exempt purpose of the JTD HOSPITAL FOUNDATION is to raise funds for joint township district… 34-1623769 · FY2024 St Marys, OH $563.6K $465.0K $1.4M 96% 0% — 501(c)(3)
Mts Sickle Cell Foundation the mission of MTS Sickle Cell Foundation is to increase the publics awareness of sickle cell disease by… 47-4594496 · FY2025 Hampton, GA $524.2K $246.3K $409.4K 84% 0% — 501(c)(3)
National Organization of Disorders of the Corpus Callosum Our mission is to enhance the quality of life and promote opportunities for individuals with DISORDERS of the… 33-1029337 · FY2024 Yorba Linda, CA $433.8K $437.2K $511.6K 90% 1% — 501(c)(3)
Wards Foundation Working to advance rare disease support in order to improve the lives of people affected by rare diseases. 86-1600365 · FY2024 Charlotte, NC $420.1K $121.1K $1.4M 421% 20% — 501(c)(3)
West Penn Hospital Medical Staff Foundation The purpose of the organization is to provide education and scholarships to employees and the dependents… 61-1654902 · FY2024 Pittsburgh, PA $345.2K $247.9K $663.7K 7% 0% — 501(c)(3)
Hope for Pdcd Foundation Support and fund the development of life-saving treatment for patients with pyruvate dehydrogenase complex… 92-0361943 · FY2024 Folsom, CA $330.4K $178.4K $640.3K 99% 0% — 501(c)(3)
The Jed Ian Taxel Foundation for Rare Cancer Research INC To inspire and empower scientific breakthroughs, clinical trials and improved treatments which change lives… 86-2610819 · FY2024 Park City, UT $309.1K $393.9K $295.3K 69% 14% — 501(c)(3)
Rare Sisters Batten Foundation INC The RARE SISTERS BATTEN FOUNDATION aims to help further the development of medical research for treatments… 84-4406415 · FY2024 Arvada, CO $297.8K $242.7K $197.4K 67% 31% — 501(c)(3)
Will Hardy Foundation This charitable corporation is organized and shall be operated exclusively for charitable, scientific and… 93-3881844 · FY2024 Henrico, VA $290.0K $2.1K $287.8K 100% 0% — 501(c)(3)
Mycare Foundation Leverage proven advocacy strategies to educate and support patients and those who care for them in disease… 99-0942343 · FY2025 Colorado Springs, CO $283.8K $250.4K $40.9K 100% 0% — 501(c)(3)
The Brain Foundation INC The mission of the organization is to provide affordable housing for those suffering from serious BRAIN… 35-2206645 · FY2023 Springfield, VA $273.3K $278.1K $2.9M 97% 0% — 501(c)(3)
Southwestern Ohio Hemophilia Foundation The organization helps improve the quality of life for those affected by HEMOPHILIA, von willebrand disease… 31-1527065 · FY2025 Dayton, OH $176.1K $174.0K $342.8K 70% 9% 2 501(c)(3)
Dhps Foundation C/O Sterling Foundation Management LLC The mission is to help identify and assist individuals with rare genetic disorders, and to work with… 82-4444634 · FY2024 Reston, VA $160.0K $126.0K $17.3K 96% 0% — 501(c)(3)
United Hemophilia Foundation To provide education awareness and advocacy to people with hemophilia and other rare bleeding disorders in… 81-3826935 · FY2024 Mitchellville, MD $133.9K $139.8K $22.7K 90% 0% 1 501(c)(3)
Childrens Rare Disorders Fund 88-3452294 · FY2023 East Hampton, NY $126.2K — $0 — — — 501(c)(3)
Connell Family Foundation INC Receive, administer & expend funds for charitable & educational purposes & activities designed to support… 92-1029074 · FY2024 Kansas City, MO $102.7K $65.0K $92.1K 100% 0% — 501(c)(3)
Jordan Hays Foundation The foundation's mission is to organize fund raising activites to provide funds for research to find a cure… 27-2874778 · FY2024 Wentzville, MO $82.3K — $13.1K — — — 501(c)(3)
Champ Foundation The Champ Foundation supports research toward better treatments and a cure for diseases casued by… 47-5555752 · FY2024 Durham, NC $73.8K $130.3K $244.7K 98% 0% — 501(c)(3)
The Pap Foundation INC Co Cincinnati Childrens Hospital The PAP Foundation is a non-profit patient advocacy organization dedicated to finding a cure and to improving… 27-0094262 · FY2024 Cincinnati, OH $40.0K $37.4K $558.6K 76% 0% — 501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org