Project Alive
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Funds research and raises awareness to treat and cure Hunter Syndrome. For fiscal year 2025 it reported $468K in revenue, $849K in expenses, and $1.7M in net assets.Pt I
Summary of the Filing
Where the work happens
"n Person
The yearly family fair brings MPS ii families, the medicalcommunity, educators, and industry together to attend sessions onsubjects important to the community. Families have the opportunity to talk with industry partners, other support organizations, and meet other families who are affected by MPS ii.
Family Case Management
Receives community enrollment forms from families, makes contact with the enrolled family to discuss programs offered by project alive and assists in finding needed resources, I.E.-CLINICAL trial information, local support services, physician information, etc. This includes hunter health program.
Research Grants
Provides funding to support research in the hunter syndrome space that fills critical gaps in current knowledge across basic science, critical care and translational therapeutics to improve the lives of those affected with hunter syndrome and their families.
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Identity & Classification
Governance & Policies
Officers, Directors & Key Employees
Kristin McKay’s $86K as President is at the 78th percentile of top reported officer pay among 1263 $100K–1M philanthropy & grantmaking nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|---|
| Kristin McKay | $86,240 | $82,870 | $74,750 | — | — |
| Kim Stephens DBA | — | — | — | $49,967 | $76,611 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Statement of Revenue
Statement of Functional Expenses
Balance Sheet
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 77% | — | — |
| Overhead ratio | 12% | — | — |
| Fundraising cost ratio | 22% | — | — |
| Revenue growth | 15% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Grants
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Filings & Schedule Manifest
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Sources
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