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Usher 1f Collaborative INC EIN 46-4309387

Usher 1f Collaborative INC

EIN  46-4309387 Public charity (501(c)(3)) Newtonville, MA
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Size
$100K–1M
What they do
Funds research to find treatments for Usher Syndrome Type 1F vision loss.
Leadership
Melissa Chaikof · Chair and Trustee
Money in and out
$744K revenue, $885K expenses
Bottom line
81% program efficiency

Funds research to find treatments for Usher Syndrome Type 1F vision loss. For fiscal year 2025 it reported $744K in revenue, $885K in expenses, and $636K in net assets.Pt I

Where the money goes · FY2025
Total revenue
$744K
Pt VIII · Ln 12
Total expenses
$885K
Pt IX · Ln 25
Net assets
$636K
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): −$142K
Where spending went · Part IX cols B–D
Program services $0.81 Management & general $0.04 Fundraising $0.15
Program efficiency
81%
of spending reaches programs▲ +3% vs prior filing year
Operating runway
8.8mo
months of highly liquid reserves at operating expense rate▼ -5% vs prior filing year
Surplus margin
-19%
revenue over expenses, this year▼ -536% vs prior filing year

Summary of the Filing

Part I · fiscal year 2025 · Form 990
Revenue
$744K
FY2025▼ -12%
Expenses
$885K
FY2025▲ +2%
Total assets
$691K
FY2025▼ -12%
Total liabilities
$55K
FY2025▲ ×15
Total revenue
$744K
Pt VIII · Ln 12
Total expenses
$885K
Pt IX · Ln 25
Net assets
$636K
Pt X · Ln 32
Revenue less expensesPt I · Ln 19−$142K
Total assetsPt X · Ln 16$691K
Program-expense ratioPt IX · col B81%
Voting members of governing bodyPt I · Ln 312
Independent voting membersPt I · Ln 412
Mission & Programs · Part III

Where the work happens

1 program service account for $713K of program spending, described in the organization's own filed words · FY2025.
01

2025 Grants to Research Labs: Harvard Medical School, David Corey Lab: $320,000 Development of gene therapies for Usher 1F University of Oregon Institute of Neuroscience, Monte Westerfield Lab: $80,000 Testing existing drugs for repurposing for Usher 1F 2025 Grant for year 4 of RUSH1F, 4-year natural history study in partnership with…

$713Kprogram expense

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Identity & Classification

Form 990 Header · IRS Business Master File
Legal nameHdr · item CUsher 1f Collaborative INC
EINHdr · item D46-4309387
Principal addressHdr · item CNewtonville, MA
WebsiteHdr · item Jwww.usher1f.org
Year of formationHdr · item Lpending
State of legal domicileHdr · item MMA
Exempt statusHdr · item I501(c)(3) · active
NTEE classificationIRS BMFMedical Research (H40)
Ruling yearIRS BMFAug 2014

Governance & Policies

Part VI
Voting members of the governing bodyPt VI · Ln 1a12
Independent voting membersPt VI · Ln 1b12
Conflict-of-interest policyPt VI · Ln 12aYes
Whistleblower policyPt VI · Ln 13No
Document retention policyPt VI · Ln 14No
CEO/top-official compensation independently reviewedPt VI · Ln 15aNo
Family or business relationships among officers/directorsPt VI · Ln 2Yes

Officers, Directors & Key Employees

Part VII, Section A · reportable compensation
Melissa Chaikof
Chair and Trustee
$0Pt VII · Sec A
Elliot Chaikof
Vice Chair and Trustee
$0Pt VII · Sec A
Frank Gentile
Treasurer and Trustee
$0Pt VII · Sec A
Jared Root
Secretary and Trustee
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
See Usher 1f Collaborative INC executive salaries →

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Statement of Revenue

Part VIII
Contributions & grants$463K · 62%
Other revenue$264K · 36%
Investment income$16K · 2%
Contributions & grants62%$463K
Other revenue36%$264K
Investment income2%$16K
Total revenueLn 12$744K

Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Program services $0.81 Management & general $0.04 Fundraising $0.15
Program services81%$713K
Management & general4%$37K
Fundraising15%$136K
Total functional expensesLn 25$885K

Balance Sheet

Part X · end of year
CashLn 1$652K
Total assetsLn 16$691K
Total liabilitiesLn 26$55K
Total net assetsLn 32$636K
Months of cash on handcomputed8.8

Financial Metrics

Form 990 · FY2025 · each ratio shown with the dollars behind it
Liquidity & Payout
Operating runway
Highly liquid reserves $652K · Operating expenses/yr $885K
8.8 months
Where the money goes
Program services
Program services $713K · Total expenses $885K
81%
Management & General
Management & general $37K · Total expenses $885K
4%
Fundraising
Fundraising $136K · Total expenses $885K
15%
Cost to raise $1
Fundraising expense (3-yr avg) $157K · Solicited contributions (3-yr avg) $506K
$0.31 to raise $1 (3-yr avg)
Where the money comes from
Contribution dependence
Contributions & grants $463K · Total revenue $744K
62%
Government reliance
Government grants — · Total revenue $744K
—
Earned-income share
Program service revenue $0 · Total revenue $744K
0%
Investment reliance
Investment income $16K · Total revenue $744K
+2%
Program self-sufficiency
Program service revenue $0 · Total expenses $885K
0%
Growth & trend
Revenue growth (YoY)
This year $744K · Prior year $846K
-12%
Revenue CAGR
FY2020 $1.2M · FY2025 $744K
-10%
Net-asset trend (YoY)
End of year $636K · Beginning of year —
Beginning net assets not meaningfully positive — showing dollar change
Balance sheet
Surplus Margin
Revenue $744K · Expenses $885K
-19%
Liabilities-to-Assets
Total liabilities — · Total assets $691K
—
Net-asset ratio
Net assets $636K · Total assets $691K
92%
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) — · Other securities (Pt X, ln 12) — · Total assets (Pt X, ln 16) $691K
Excludes program-related investments (Pt X, ln 13)
People & payroll
Highest Reported Total Compensation
Individual Melissa Chaikof · Reported title Chair and Trustee · Highest reported compensation $0 · Total expenses $885K
0%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $89K · Total expenses $885K
10%
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Program ratio 81%——
Overhead ratio 4%——
Fundraising cost ratio 29%——
Revenue growth -12%——
Legal fee ratio 0%——
Accounting fee ratio 1%——

Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Grants

Schedule I · received and paid
Grants received · FY2024
Okane Family FoundationFY2024$50K
Sarah K Decoizart Perpetual Charitable Tr Art 10FY2024$50K
Jewish Communal FundFY2024$32K
William S and Ina Levine FoundationFY2024$25K
Fidelity Investments Charitable Gift FundFY2024$17K
American Online Giving Foundation INCFY2024$17K
David and Barbara B Hirschhorn Foundation INCFY2024$8K
Paypal Charitable Giving FundFY2024$6K
Total grants receivedfrom 12 funders$212K
See all 12 funders →
Grants paid · 26 grants · $3.3M · 2020–2025
President and Fellows of Harvard CollegeMA · FY2025$320,000
The Foundation Fighting Blindness INCMD · FY2025$200,000
Unravel BiosciencesFY2025$86,640
University of Oregon FoundationOR · FY2025$80,000
L S U FoundationLA · FY2025$5,350
President and Fellows of Harvard CollegeMA · FY2024$291,155
The Foundation Fighting Blindness INCMD · FY2024$200,000
The Salk InstituteMD · FY2024$150,000
University of Oregon FoundationOR · FY2024$30,000
The Foundation Fighting Blindness INCMD · FY2023$200,000
President and Fellows of Harvard CollegeMA · FY2023$170,000
University of Oregon FoundationOR · FY2023$32,500
University of Maryland Baltimore Foundation INCMD · FY2023$25,000
The Foundation Fighting Blindness INCMD · FY2022$300,000
President and Fellows of Harvard CollegeMA · FY2022$163,000
University of Oregon FoundationOR · FY2022$120,000
The Salk Institute for Biological StudiesCA · FY2022$95,100
University of Maryland Baltimore Foundation INCMD · FY2022$40,000
See all 26 grants →

Similar Organizations

Closest in mission — by what they do
Usher 2020 Foundation INCGA
Usher III Initiative INCIL
Coalition for Usher Syndrome ResearchMA
Hear See HopeWA
Discovery Eye FoundationCA
Retinal Science FoundationCA
See all organizations like Usher 1f Collaborative INC →

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Filings & Schedule Manifest

Part IV
III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
FY2025 (Latest)$744K revenue · viewing · ⤓ 990 PDF
FY2024$846K revenue · ⤓ 990 PDF
FY2023$447K revenue · ⤓ 990 PDF
FY2022$1.1M revenue · ⤓ 990 PDF
FY2021$598K revenue · ⤓ 990 PDF
FY2020$1.2M revenue · ⤓ 990 PDF

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Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2025IRS
Classification, formation year, addressIRS Business Master File
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