Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Sep 2014.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
82 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
9 people listed on the 990.
Darrel Drobnich’s $58K as CEO is at the 50th percentile of top reported officer pay among 1613 $100K–1M education nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 5 named individuals · Part VII
| Name | FY2022 | FY2021 |
|---|---|---|
| Darrel Drobnich | $57,842 | — |
| Stephanie Wells Walper | — | $42,144 |
| Claire C Crisp | $34,095 | — |
| Lindsay Jesteadt | $32,202 | — |
| Amy Desmarais | $27,900 | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
See Hypersomnia Foundation INC executive salaries →Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Promotes awareness, education, and research for hypersomnia.
Questions for Hypersomnia Foundation INC
Your first name shows with your question. Hypersomnia Foundation INC answers here, for everyone.
The hypersomnia foundation strives to improve the lives of people with hypersomnia by advocating on their behalf, providing reliable resources, educating the public and healthcare professionals, and encouraging more research.
Form 990 Part III, line 4, FY2020. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 46-4162735) · Dispute this lineMaterials (including a website and a monthly e-newsletter (somnusnooze)) that (1) promote awareness of hypersomnia and (2) provide reliable information about hypersomnia, ongoing clinical trials, the latest research and medical professionals worldwide who treat hypersomnia
Form 990 Part III, line 4, FY2020. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 46-4162735) · Dispute this lineScholarships & research grants
Form 990 Part III, line 4, FY2020. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 46-4162735) · Dispute this lineFunders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
| Line | Start FY20 | End FY20 |
|---|---|---|
| Cash and savingsLn 1–2 | $411K | $495K |
| Total assetsLn 16 | $411K | $495K |
| LiabilitiesLn 26 | $1K | $1K |
| Net assetsLn 32 | $410K | $494K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $8K | $8K | ||
| Other salaries and wagesLn 7 | $42K | $35K | $2K | $5K |
| Payroll taxesLn 10 | $4K | $3K | $176 | $456 |
| Accounting feesLn 11c | $7K | $0 | $7K | $0 |
| Office expensesLn 13 | $1K | $0 | $1K | $0 |
| Conferences, conventions and meetingsLn 19 | $7K | $7K | $0 | $0 |
| InsuranceLn 23 | $1K | $0 | $1K | $0 |
| Other expenses (24a–d)Ln 24 | $9K | $8K | $416 | $0 |
| All other expensesLn 24e | $30K | $29K | $313 | $0 |
| Total functional expensesLn 25 | $109K | $89K | $13K | $6K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 LatestFiled with the IRS Sep 18, 2025 | $879K | $871K | $8K | $1.1M | 990 PDF |
| FY2023Filed with the IRS Jun 28, 2024 | $917K | $734K | $183K | $1.1M | 990 PDF |
| FY2022Filed with the IRS Jul 19, 2023 | $582K | $485K | $97K | $948K | 990 PDF |
| FY2021Filed with the IRS May 10, 2022 | $472K | $131K | $341K | $884K | 990 PDF |
| FY2020 ViewingFiled with the IRS May 14, 2021 | $193K | $109K | $84K | $494K | 990 PDF |
Schedules filed Part IV
See the full FY2020 990
Part I · Summary $192,937 revenue, 12 lines filed
Part VI · Governance 8 of 8 board members independent, 3 to look at
Part VIII · Statement of revenue $192,937 across 5 lines filed
Part IX · Statement of functional expenses $108,580 across 9 lines filed
Part X · Balance sheet $495,463 assets, 8 lines filed
Part XI · Reconciliation of net assets $494,379 net assets at year end
Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File
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