Educates and empowers people about sleep health and disorders through events and campaigns.
For fiscal year 2020 it reported $377K in revenue, $244K in expenses, and $235K in net assets.Pt I
Where the money goes · FY2020
Total revenue
$377K
Pt VIII · Ln 12
Total expenses
$244K
Pt IX · Ln 25
Net assets
$235K
Pt X · Ln 32
Revenue less expenses (Pt I · Ln 19): $133K
Where spending went · Part IX cols B–D
91%
Program services $0.91 Management & general $0.09 Fundraising $0.00
Program efficiency
91%
of spending reaches programs
Operating runway
11.6mo
months of highly liquid reserves at operating expense rate
Surplus margin
+35%
revenue over expenses, this year
Summary of the Filing
Part I · fiscal year 2020 · Form 990
Revenue
$377K
FY2020
$1.1M$559K$0
FY2020FY2024
Expenses
$244K
FY2020
$871K$436K$0
FY2020FY2024
Total assets
$235K
FY2020
$715K$358K$0
FY2020FY2024
Total liabilities
$0
FY2020
$1$0$0
FY2020FY2024
Total revenue
$377K
Pt VIII · Ln 12
Total expenses
$244K
Pt IX · Ln 25
Net assets
$235K
Pt X · Ln 32
Revenue less expensesPt I · Ln 19$133K
Total assetsPt X · Ln 16$235K
Program-expense ratioPt IX · col B91%
Voting members of governing bodyPt I · Ln 37
Independent voting membersPt I · Ln 47
Mission & Programs · Part III
Where the work happens
3 program services account for $192K of program spending, described in the organization's own filed words · FY2020.
01
Sleep Advocacy Program
A year-round national and grass-roots advocacy program dedicated to educating patient advocates, medical professionals, researchers and policy-makers about critical sleep related policy issues.
$120Kprogram expense
02
Narcolepsy Awareness Program (nap)
The narcolepsy awareness program aims to increase awareness to key audiences who are currently lacking knowledge and understanding of narcolepsy. At the same time, we will reduce both self-stigma and societal stigma by providing people with narcolepsy with the leadership, role modeling, and vital opportunities and resources to feel hope…
$37Kprogram expense
03
Rising Voices of Narcolepsy, a leadership training program to help people with narcolepsy effectively share their stories through public speaking and writing with local communities, healthcare providers, news outlets, blogs and beyond.Narcolepsy is a chronic neurological disorder of the sleep-wake cycle that affects about three million…
Julie Louise Flygare’s $105K as President & CEO
is at the 27th percentile of top reported officer pay among 731 $1–10M diseases & disorders nonprofits.
Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
Individual Julie Louise Flygare · Reported title President & CEO · Highest reported compensation $82K · Total expenses $244K
34%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $118K · Total expenses $244K
48%
Peer comparison
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
Metric
This org
Peer median
Percentile
Program ratio
91%
—
—
Overhead ratio
9%
—
—
Fundraising cost ratio
0%
—
—
Investment management fee ratio
0%
—
—
Legal fee ratio
0%
—
—
Accounting fee ratio
1%
—
—
Fundraising fee ratio
0%
—
—
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Want to add your own materials alongside these filings? Claim this org
Sources
Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2020IRS
Classification, formation year, addressIRS Business Master File
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