Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Aug 2014.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
80 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
4 people listed on the 990.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Supports families facing DIPG with essential funds and resources.
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Make charitable donations to organizations in order to continue their efforts in research for diffuse intrinsic pontine gliuoma (dipg)
Provide financial assistance to families dealing with dipg
Scholarships awarded to civically active students
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $366K | $313K |
| InvestmentsLn 11–13 | $292K | $419K |
| Land, buildings, equipmentLn 10c | $0 | |
| Total assetsLn 16 | $660K | $735K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $660K | $735K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $290K | $290K | ||
| Grants to domestic individualsLn 2 | $4K | $4K | ||
| Grants and assistance to foreign recipientsLn 3 | $0 | |||
| Benefits paid to or for membersLn 4 | $0 | |||
| Pay of current officers, directors and key staffLn 5 | $0 | |||
| Pay of disqualified personsLn 6 | $0 | |||
| Other salaries and wagesLn 7 | $0 | |||
| Pension plan contributionsLn 8 | $0 | |||
| Other employee benefitsLn 9 | $0 | |||
| Payroll taxesLn 10 | $0 | |||
| Management feesLn 11a | $0 | |||
| Legal feesLn 11b | $0 | |||
| Accounting feesLn 11c | $0 | |||
| Lobbying feesLn 11d | $0 | |||
| Professional fundraising feesLn 11e | $0 | |||
| Investment management feesLn 11f | $6K | $6K | ||
| Other fees for servicesLn 11g | $0 | |||
| Advertising and promotionLn 12 | $57K | $57K | ||
| Office expensesLn 13 | $14K | $14K | ||
| Information technologyLn 14 | $0 | |||
| RoyaltiesLn 15 | $0 | |||
| OccupancyLn 16 | $0 | |||
| TravelLn 17 | $7K | $7K | ||
| Travel and entertainment for public officialsLn 18 | $0 | |||
| Conferences, conventions and meetingsLn 19 | $0 | |||
| InterestLn 20 | $0 | |||
| Payments to affiliatesLn 21 | $0 | |||
| Depreciation, depletion and amortizationLn 22 | $0 | |||
| InsuranceLn 23 | $2K | $2K | ||
| Other expenses (24a–d)Ln 24 | $100K | $92K | $8K | |
| All other expensesLn 24e | $442 | $442 | ||
| Total functional expensesLn 25 | $479K | $385K | $94K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 LatestFiled with the IRS Nov 24, 2025 | $536K | $503K | $33K | $758K | 990 PDF |
| FY2023 ViewingFiled with the IRS Aug 21, 2025 | $501K | $479K | $22K | $735K | 990 PDF |
| FY2022Filed with the IRS Nov 15, 2023 | $563K | $319K | $244K | $660K | 990 PDF |
| FY2021Filed with the IRS Sep 1, 2023 | $211K | $161K | $50K | $415K | 990 PDF |
| FY2020Filed with the IRS Feb 20, 2023 | $309K | $249K | $61K | $365K | 990 PDF |
| FY2019Filed with the IRS May 12, 2022 | $258K | $134K | $124K | $305K | 990 PDF |
| FY2018Filed with the IRS May 16, 2021 | $135K | $176K | −$41K | $180K | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (6 parts)
Part I · Summary $500,829 revenue, 12 lines filed
Part VI · Governance 5 of 5 board members independent, 4 to look at
Part VIII · Statement of revenue $500,829 across 9 lines filed
Part IX · Statement of functional expenses $478,953 across 31 lines filed
Part X · Balance sheet $734,675 assets, 17 lines filed
Part XI · Reconciliation of net assets $734,675 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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