Wylder Nation Foundation is determined to improve the lives of children diagnosed with lysosomal storage disorders and provide hope by accelerating the discovery and development of treatment options.

501(c)(3) charity; gifts are tax-deductible.
81¢ of each $1 spent went to programs.
Run by 3 volunteers and 1 employee.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
4 of 5
filings with a surplus
Average surplus $117K a year · 36% of revenue · last 5 filings
Fine: a surplus in 4 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
81%
of spending
Looks good: 81% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$79K
to officers and key staff · 34% of spending
Concern: pay to officers and key staff is 34% of spending; over 30%.
Pt VII · Sec A
34 mo
of spending, in cash
Looks good: 33.7 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
3
named funders · $28K
Looks good: 3 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$10K
0.8% of total assets
Looks good: liabilities are 1% of assets; 50% or less.
Pt X · Ln 26
Independent board members
2
of 3 voting members
Looks good: 2 of 3 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$237K
-15% vs prior year
Spent
$232K
To programs
81%
Net assets
$1.2M
By yearFY2020–FY2024
Revenue
$237K
FY2024▼ -15%
Tap a bar for its year
Revenue by fiscal year
FY2020$31K
FY2021$547K
FY2022$551K
FY2023$278K
FY2024$237K
Expenses
$232K
FY2024▲ +3%
Tap a bar for its year
Expenses by fiscal year
FY2020$205K
FY2021$214K
FY2022$179K
FY2023$226K
FY2024$232K
Net assets
$1.2M
FY2024▲ +5%
Tap a bar for its year
Net assets by fiscal year
FY2020$368K
FY2021$701K
FY2022$1.1M
FY2023$1.2M
FY2024$1.2M

From the FY2024 Form 990 · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Sep 2013.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

81 cents of each dollar spent went to programs.

Program services 81% · $189K Management & general 14% · $31K Fundraising 5% · $12K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

3 people listed on the 990; $79K paid to officers and key staff.

Part VII, Section A · reportable compensation
President/Treasurer
$78,515Pt VII · Sec A
Secretary
$0Pt VII · Sec A
Director
$0Pt VII · Sec A

Steven Laffoon’s $79K as President/Treasurer is at the 62nd percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 1 named individual · Part VII

NameFY2024FY2023FY2022FY2021FY2020
Steven Laffoon$78,515$79,600$62,200$62,200$59,700

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Wylder Nation Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Accelerates treatments and provides hope for children with lysosomal storage disorders.

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Provided by the organization

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1 program · $189K · in their own filed words · FY2024
01

Funded additional post-doc fellow focused on asmd research projects. Continued supporting multiple single patient INVESTIGATOR-INITIATED/EXPANDED access experimental treatments for asmd. Funded CNS specific biomarker study to identify the structure of a potential novel biomarker for asmd.

$189Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
Total grants receivedfrom 3 funders$28K
See all 3 funders →
Grants paid · 1 grant · $10K · 2020–2020
Montefiore Medical CenterNY · FY2020$9,772

By the numbers

The FY2024 990, line by line.

1The main four
Money inPt VIII
$237K
Ln 12
Gifts and grantsLn 1h$154K
Investment incomeLn 3$83K
Other incomeLn 4–11$26
Money outPt IX
$232K
Ln 25
Programscol B$189K
Managementcol C$31K
Fundraisingcol D$12K
Owns and owesPt X
$1.2M
net assets · Ln 32
Cash and savingsLn 1–2$652K
Total assetsLn 16$1.3M
LiabilitiesLn 26$10K
PeoplePt VI, VII
3
listed · VII A
PaidVII A1
Voting boardVI 1a3
IndependentVI 1b2
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$154K
Investment incomeLn 3$83K
Other incomeLn 4–11$26
Gains on assetsLn 7$48K
Total revenueLn 12$237K
Assets in detailPt X, end of year
CashLn 1$102K
SavingsLn 2$550K
Cash and savings togetherLn 1–2$652K
InvestmentsLn 11–13$560K
Other assetsLn 15$34K
Total assetsLn 16$1.3M
LiabilitiesLn 26$10K
Net assetsLn 32$1.2M
OperationsPt I, VI
EmployeesI 51
VolunteersI 63
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$728K$652K
InvestmentsLn 11–13$464K$560K
Total assetsLn 16$1.2M$1.3M
LiabilitiesLn 26$34K$10K
Net assetsLn 32$1.2M$1.2M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$0
Grants to domestic individualsLn 2$0
Grants and assistance to foreign recipientsLn 3$70K$70K
Benefits paid to or for membersLn 4$0
Pay of current officers, directors and key staffLn 5$84K$65K$12K$8K
Pay of disqualified personsLn 6$0
Other salaries and wagesLn 7$0
Pension plan contributionsLn 8$0
Other employee benefitsLn 9$0
Payroll taxesLn 10$6K$5K$901$600
Management feesLn 11a$0
Legal feesLn 11b$5K$5K
Accounting feesLn 11c$2K$2K
Lobbying feesLn 11d$0
Investment management feesLn 11f$5K$5K
Other fees for servicesLn 11g$1K$1K
Advertising and promotionLn 12$178$178
Office expensesLn 13$5K$275$4K$415
Information technologyLn 14$10K$1K$6K$3K
RoyaltiesLn 15$0
OccupancyLn 16$0
TravelLn 17$1K$1K$103
Travel and entertainment for public officialsLn 18$0
Conferences, conventions and meetingsLn 19$4K$4K
InterestLn 20$0
Payments to affiliatesLn 21$0
Depreciation, depletion and amortizationLn 22$213$213
InsuranceLn 23$0
Other expenses (24a–d)Ln 24$37K$37K$74
All other expensesLn 24e$0
Total functional expensesLn 25$232K$189K$31K$12K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest Viewing $237K$232K$5K$1.2M 990 PDF
FY2023 $278K$226K$52K$1.2M 990 PDF
FY2022 $551K$179K$372K$1.1M 990 PDF
FY2021 $547K$214K$333K$701K 990 PDF
FY2020 $31K$205K−$174K$368K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support F · Foreign O · Explanations
See the full FY2024 990 (6 parts)
Part I · Summary $236,521 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $292,143$153,641
I-9 Program service revenue$0
I-10 Investment incomePrior year $31,242$82,854
I-11 Other revenuePrior year −$45,724$26
I-12 Total revenuePrior year $277,661$236,521
I-13 Grants and similar amounts paidPrior year $66,409$70,337
I-14 Benefits paid to members$0
I-15 Salaries and benefitsPrior year $85,690$90,419
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $73,747$71,244
I-18 Total expensesPrior year $225,846$232,000
I-19 Revenue less expensesPrior year $51,815$4,521
Part VI · Governance 2 of 3 board members independent, no flags
VI-1a Voting members of the governing body3
VI-1b Independent voting members2
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $236,521 across 5 lines filed
Lines not itemized here account for $26 of total revenue; see the IRS return.
VIII-1f All other contributions, gifts and grants$153,641
VIII-1h Total contributions, gifts and grants$153,641
VIII-3 Investment incomeExcluded from tax $34,369$34,369
VIII-7 Net gain or loss on sales of assetsExcluded from tax $48,485$48,485
VIII-12 Total revenueRelated to mission $26 · Excluded from tax $82,854$236,521
Part IX · Statement of functional expenses $232,000 across 30 lines filed
IX-1 Grants to domestic organizations$0
IX-2 Grants to domestic individuals$0
IX-3 Grants and assistance to foreign recipientsPrograms $70,337$70,337
IX-4 Benefits paid to or for members$0
IX-5 Pay of current officers, directors and key staffPrograms $64,784 · Management $11,777 · Fundraising $7,852$84,413
IX-6 Pay of disqualified persons$0
IX-7 Other salaries and wages$0
IX-8 Pension plan contributions$0
IX-9 Other employee benefits$0
IX-10 Payroll taxesPrograms $4,505 · Management $901 · Fundraising $600$6,006
IX-11a Management fees$0
IX-11b Legal feesPrograms $4,616$4,616
IX-11c Accounting feesManagement $2,250$2,250
IX-11d Lobbying fees$0
IX-11f Investment management feesManagement $5,358$5,358
IX-11g Other fees for servicesManagement $1,085$1,085
IX-12 Advertising and promotionPrograms $178$178
IX-13 Office expensesPrograms $275 · Management $4,119 · Fundraising $415$4,809
IX-14 Information technologyPrograms $1,070 · Management $5,828 · Fundraising $2,700$9,598
IX-15 Royalties$0
IX-16 Occupancy$0
IX-17 TravelPrograms $1,275 · Fundraising $103$1,378
IX-18 Travel and entertainment for public officials$0
IX-19 Conferences, conventions and meetingsPrograms $4,349$4,349
IX-20 Interest$0
IX-21 Payments to affiliates$0
IX-22 Depreciation, depletion and amortizationPrograms $213$213
IX-23 Insurance$0
IX-24 Other expenses (24a–d)Programs $37,336 · Management $74$37,410
IX-24e All other expenses$0
IX-25 Total functional expensesPrograms $188,938 · Management $31,392 · Fundraising $11,670$232,000
Part X · Balance sheet $1,252,482 assets, 11 lines filed
X-1 Cash, non-interest-bearingStart of year $251,727$101,834
X-2 Savings and temporary cash investmentsStart of year $476,224$550,154
X-11 Publicly traded securitiesStart of year $464,042$560,377
X-14 Intangible assets$6,186
X-15 Other assetsStart of year $21,243$33,931
X-16 Total assetsStart of year $1,213,236$1,252,482
X-25 Other liabilitiesStart of year $34,042$10,248
X-26 Total liabilitiesStart of year $34,042$10,248
X-27 Net assets without donor restrictionsStart of year $1,179,194$1,242,234
X-32 Total net assets or fund balancesStart of year $1,179,194$1,242,234
X-33 Total liabilities and net assetsStart of year $1,213,236$1,252,482
Part XI · Reconciliation of net assets $1,242,234 net assets at year end
XI-1 Total revenue$236,521
XI-2 Total expenses$232,000
XI-3 Revenue less expenses$4,521
XI-4 Net assets at start of year$1,179,194
XI-5 Net unrealized gains (losses) on investments$58,519
XI-10 Net assets at end of year$1,242,234

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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