Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Mar 2013.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
40 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
11 people listed on the 990; $80K paid to officers and key staff.
Margaret Poe’s $93K as Executive Director is at the 74th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Margaret Poe | $93,255 | $86,796 | $79,130 | — | — | — |
| Caterri Woodrum | — | — | — | $13,531 | $68,535 | $80,096 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
See Autoimmune Encephalitis Alliance INC executive salaries →Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Helps everyone affected by AE find support and community.
Questions for Autoimmune Encephalitis Alliance INC
Your first name shows with your question. Autoimmune Encephalitis Alliance INC answers here, for everyone.
Patient Support
Ae alliance was one of five non-profit organizations co-hosting the inaugural world encephalitis day alliance held february 20-23, 2020 in dallas, texas. The conference was held for encephalitis survivors and caretakers of whom 65 were in attendance (excluding speakers and sponsors).
Ae Disease Awareness and Advocacy
We issued our first semi-annual newsletter in december of 2019 and followed it with a two additional newsletters in 2020. Our newsletters were distributed to 2,261 patients, caregivers, and physicians and are available on-line through our website.
Research, Clinical Care and Physician Education
The autoimmune encephalitis alliance (ae alliance) clinicians network continues to be a premier source worldwide for patients and caregivers seeking physicians who have experience treating ae.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
| Line | Start FY20 | End FY20 |
|---|---|---|
| Cash and savingsLn 1–2 | $155K | $110K |
| InvestmentsLn 11–13 | $8K | $13K |
| Land, buildings, equipmentLn 10c | $0 | $705 |
| Total assetsLn 16 | $172K | $189K |
| LiabilitiesLn 26 | $5K | $18K |
| Net assetsLn 32 | $167K | $171K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $92K | $24K | $41K | $27K |
| Other salaries and wagesLn 7 | $46K | $35K | $7K | $5K |
| Other employee benefitsLn 9 | $2K | $2K | ||
| Payroll taxesLn 10 | $10K | $4K | $3K | $2K |
| Accounting feesLn 11c | $5K | $5K | ||
| Advertising and promotionLn 12 | $3K | $612 | $3K | $21 |
| Office expensesLn 13 | $4K | $803 | $3K | $127 |
| Information technologyLn 14 | $8K | $8K | ||
| OccupancyLn 16 | $359 | $63 | $296 | |
| TravelLn 17 | $2K | $1K | $398 | |
| Conferences, conventions and meetingsLn 19 | $9K | $9K | $380 | |
| Depreciation, depletion and amortizationLn 22 | $8K | $8K | ||
| InsuranceLn 23 | $708 | $708 | ||
| Other expenses (24a–d)Ln 24 | $11K | $5K | $5K | $195 |
| Total functional expensesLn 25 | $202K | $81K | $86K | $34K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 LatestFiled with the IRS May 1, 2026 | $151K | $186K | −$35K | $71K | 990 PDF |
| FY2024Filed with the IRS May 15, 2025 | $145K | $106K | 990 PDF | ||
| FY2023Filed with the IRS May 13, 2024 | $144K | $191K | −$47K | $147K | 990 PDF |
| FY2022Filed with the IRS Nov 7, 2023 | $218K | $184K | $33K | $194K | 990 PDF |
| FY2021Filed with the IRS Nov 14, 2022 | $236K | $241K | −$6K | $160K | 990 PDF |
| FY2020 ViewingFiled with the IRS Oct 4, 2021 | $205K | $202K | $4K | $171K | 990 PDF |
Schedules filed Part IV
See the full FY2020 990 (6 parts)
Part I · Summary $205,263 revenue, 12 lines filed
Part VI · Governance 8 of 8 board members independent, 1 to look at
Part VIII · Statement of revenue $205,263 across 7 lines filed
Part IX · Statement of functional expenses $201,754 across 14 lines filed
Part X · Balance sheet $189,018 assets, 15 lines filed
Part XI · Reconciliation of net assets $171,214 net assets at year end
Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File
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