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Usher 2020 Foundation INC

Tax-deductible

Atlanta, GA501(c)(3)Diseases & DisordersEIN 46-1440524Revenue $88K in FY2024

On file with the IRSusher2020.com209 Peachtree Cir Ne, 30309-3206 · Atlanta, GATax-exempt since Dec 2013Publicly supported charity — 170(b)(1)(A)(vi)

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To support research to find therapies to prevent blindness in those with Usher syndrome.

501(c)(3) charity; gifts are tax-deductible.
97¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 5
filings with a surplus
Average deficit $25K a year · 10% of revenue · last 5 filings
Concern: a surplus in 2 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
97%
of spending
Looks good: 97% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
3 mo
of spending, in cash
Fine: 2.8 months of spending in cash; 1 to 3.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
5
named funders · $116K
Looks good: 5 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
3
of 3 voting members
Looks good: 3 of 3 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$88K
-10% vs prior year
Spent
$244K
To programs
97%
Net assets
$82K
By yearFY2020–FY2024
Revenue
$88K
FY2024▼ -10%
Tap a bar for its year
Revenue by fiscal year
FY2020$351K
FY2021$558K
FY2022$165K
FY2023$98K
FY2024$88K
Expenses
$244K
FY2024▼ -22%
Tap a bar for its year
Expenses by fiscal year
FY2020$243K
FY2021$318K
FY2022$268K
FY2023$314K
FY2024$244K
Net assets
$82K
FY2024▼ -61%
Tap a bar for its year
Net assets by fiscal year
FY2020$316K
FY2021$551K
FY2022$424K
FY2023$213K
FY2024$82K

From the FY2024 Form 990 · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Dec 2013.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

97 cents of each dollar spent went to programs.

Program services 97% · $238K Management & general 3% · $6K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

3 people listed on the 990.

Part VII, Section A · reportable compensation
Susan Trotochaud
President & Exec Director
$0Pt VII · Sec A
Scott Dorfman
Chair of Board & Treasurer
$0Pt VII · Sec A
Larry Dorfman
Chair of Development
$0Pt VII · Sec A
See Usher 2020 Foundation INC executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Funds research for therapies to prevent blindness in Usher syndrome.

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Provided by the organization

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1 program · $238K · in their own filed words · FY2024
01

Provide funding in support to find therapies to prevent blindness in those with usher syndrome.

$238Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
National Philanthropic TrustFY2024$50K
Gs Donor Advised Philanthropy Fund for Wealth Management INCFY2024$25K
The Dorfman Foundation INCFY2024$20K
Thalia & Michael C Carlos Foundation INCFY2024$15K
Jewish Federation of Greater Atlanta INCFY2024$6K
Total grants receivedfrom 5 funders$116K
See all 5 funders →
Grants paid · 14 grants · $1.2M · 2020–2024
Odylia Therapeutics INCGA · FY2024$212,502
LSU Health Foundation New OrleansLA · FY2024$14,541
Odylia Therapeutics INCGA · FY2023$193,089
Harp 360MD · FY2023$74,449
Odylia Therapeutics INCGA · FY2022$133,283
LSU Health Foundation New OrleansLA · FY2022$25,000
Odylia Therapeutics INCGA · FY2021$184,312
Foundation for the National Institute of Health INCMD · FY2021$55,008
Johns Hopkins UniversityMD · FY2021$50,000
The Foundation Fighting Blindness INCMD · FY2021$10,000
Johns Hopkins UniversityMD · FY2020$100,653
Odylia Therapeutics INCGA · FY2020$63,069
State University of Iowa FoundationIA · FY2020$50,000
The Foundation Fighting Blindness INCMD · FY2020$10,000

By the numbers

The FY2024 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$88K
Ln 12
Gifts and grantsLn 1h$104K
Investment incomeLn 3$7K
Money outPt IX
$244K
Ln 25
Programscol B$238K
Managementcol C$6K
Owns and owesPt X
$82K
net assets · Ln 32
Cash and savingsLn 1–2$57K
Total assetsLn 16$82K
LiabilitiesLn 26$0
PeoplePt VI, VII
3
listed · VII A
PaidVII A0
Voting boardVI 1a3
IndependentVI 1b3
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$104K
Investment incomeLn 3$7K
Gains on assetsLn 7−$23K
Total revenueLn 12$88K
Assets in detailPt X, end of year
CashLn 1$57K
SavingsLn 2$255
Cash and savings togetherLn 1–2$57K
InvestmentsLn 11–13$25K
Total assetsLn 16$82K
LiabilitiesLn 26$0
Net assetsLn 32$82K
OperationsPt I, VI
EmployeesI 50
VolunteersI 60
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aNo
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$19K$57K
InvestmentsLn 11–13$194K$25K
Total assetsLn 16$213K$82K
LiabilitiesLn 26$0$0
Net assetsLn 32$213K$82K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$229K$229K
Accounting feesLn 11c$3K$3K
Advertising and promotionLn 12$556$556
Information technologyLn 14$1K$1K
TravelLn 17$9K$9K
Other expenses (24a–d)Ln 24$2K$2K
Total functional expensesLn 25$244K$238K$6K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest Viewing $88K$244K−$156K$82K 990 PDF
FY2023 $98K$314K−$216K$213K 990 PDF
FY2022 $165K$268K−$103K$424K 990 PDF
FY2021 $558K$318K$240K$551K 990 PDF
FY2020 $351K$243K$108K$316K 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
See the full FY2024 990 (6 parts)
Part I · Summary $88,139 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $88,578$104,220
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $8,743−$16,080
I-11 Other revenuePrior year $773−$1
I-12 Total revenuePrior year $98,094$88,139
I-13 Grants and similar amounts paidPrior year $301,357$229,242
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$0
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $12,639$14,636
I-18 Total expensesPrior year $313,996$243,878
I-19 Revenue less expensesPrior year −$215,902−$155,739
Part VI · Governance 3 of 3 board members independent, 5 to look at
VI-1a Voting members of the governing body3
VI-1b Independent voting members3
VI-2 Family or business relationship among officers or directorsYes
VI-12a Written conflict of interest policyNo
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
Part VIII · Statement of revenue $88,139 across 6 lines filed
VIII-1f All other contributions, gifts and grants$104,220
VIII-1h Total contributions, gifts and grants$104,220
VIII-3 Investment incomeExcluded from tax $6,860$6,860
VIII-7 Net gain or loss on sales of assetsRelated to mission −$22,940−$22,940
VIII-11a-d Other revenue, itemized rows (sum of 11a–11d as filed)Excluded from tax −$1−$1
VIII-12 Total revenueRelated to mission −$22,940 · Unrelated business $0 · Excluded from tax $6,859$88,139
Part IX · Statement of functional expenses $243,878 across 6 lines filed
IX-1 Grants to domestic organizationsPrograms $229,242$229,242
IX-11c Accounting feesManagement $2,945$2,945
IX-12 Advertising and promotionManagement $556$556
IX-14 Information technologyManagement $1,070$1,070
IX-17 TravelPrograms $8,506$8,506
IX-24 Other expenses (24a–d)Management $1,559$1,559
IX-25 Total functional expensesPrograms $237,748 · Management $6,130 · Fundraising $0$243,878
Part X · Balance sheet $82,220 assets, 7 lines filed
X-1 Cash, non-interest-bearingStart of year $19,175$57,216
X-2 Savings and temporary cash investmentsStart of year $131$255
X-12 Other securitiesStart of year $193,867$24,749
X-16 Total assetsStart of year $213,173$82,220
X-26 Total liabilitiesStart of year $0$0
X-32 Total net assets or fund balancesStart of year $213,173$82,220
X-33 Total liabilities and net assetsStart of year $213,173$82,220
Part XI · Reconciliation of net assets $82,220 net assets at year end
XI-1 Total revenue$88,139
XI-2 Total expenses$243,878
XI-3 Revenue less expenses−$155,739
XI-4 Net assets at start of year$213,173
XI-5 Net unrealized gains (losses) on investments$25,486
XI-9 Other changes in net assets−$700
XI-10 Net assets at end of year$82,220

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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