Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Mar 2012.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
76 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
34 people listed on the 990; $424K paid to officers and key staff.
David Darragh’s $150K as Managing Director is at the 73rd percentile of top reported officer pay among 3869 $1–10M human services nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 5 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| David Darragh | $150,440 | $127,343 | $121,458 | — | — |
| Blair Casey | $147,545 | $117,735 | $119,746 | $107,738 | — |
| William K Gay | — | — | $108,755 | $109,008 | — |
| Paul Varisco SR | — | — | $50,000 | $50,000 | $50,000 |
| Clare Durrett | — | — | $24,000 | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Provides advanced technology and documents life adventures for those with neuromuscular conditions.
Questions for Team Gleason Foundation
Your first name shows with your question. Team Gleason Foundation answers here, for everyone.
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Helping deliver leading edge equipment, services and technology, the Team Gleason Foundation provides ALS patients with the tools to allow people living with ALS to communicate, interact, and live with purpose. Technology and equipment have advanced over the past decade but these services can be taken even further.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2022 990, line by line.
Download 990
| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $2.3M | $2.0M |
| InvestmentsLn 11–13 | $7.5M | $6.0M |
| Land, buildings, equipmentLn 10c | $64K | $104K |
| Total assetsLn 16 | $9.8M | $8.3M |
| LiabilitiesLn 26 | $794K | $741K |
| Net assetsLn 32 | $9.0M | $7.5M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $17K | $17K | ||
| Grants to domestic individualsLn 2 | $2.2M | $2.2M | ||
| Grants and assistance to foreign recipientsLn 3 | $0 | |||
| Benefits paid to or for membersLn 4 | $0 | |||
| Pay of current officers, directors and key staffLn 5 | $403K | $114K | $74K | $214K |
| Pay of disqualified personsLn 6 | $0 | |||
| Other salaries and wagesLn 7 | $736K | $548K | $77K | $110K |
| Pension plan contributionsLn 8 | $0 | |||
| Other employee benefitsLn 9 | $137K | $87K | $16K | $34K |
| Payroll taxesLn 10 | $88K | $49K | $13K | $26K |
| Management feesLn 11a | $164K | $43K | $39K | $82K |
| Legal feesLn 11b | $1K | $1K | ||
| Accounting feesLn 11c | $24K | $24K | ||
| Lobbying feesLn 11d | $0 | |||
| Professional fundraising feesLn 11e | $114K | $114K | ||
| Investment management feesLn 11f | $53K | $53K | ||
| Other fees for servicesLn 11g | $0 | |||
| Advertising and promotionLn 12 | $23K | $2K | $1K | $20K |
| Office expensesLn 13 | $70K | $22K | $34K | $13K |
| Information technologyLn 14 | $170 | $11 | $159 | |
| RoyaltiesLn 15 | $0 | |||
| OccupancyLn 16 | $92K | $54K | $23K | $15K |
| TravelLn 17 | $17K | $10K | $4K | $2K |
| Travel and entertainment for public officialsLn 18 | $0 | |||
| Conferences, conventions and meetingsLn 19 | $3K | $3K | ||
| InterestLn 20 | $0 | |||
| Payments to affiliatesLn 21 | $0 | |||
| Depreciation, depletion and amortizationLn 22 | $23K | $23K | ||
| InsuranceLn 23 | $26K | $17K | $3K | $6K |
| Other expenses (24a–d)Ln 24 | $9K | $392 | $7K | $2K |
| All other expensesLn 24e | $0 | |||
| Total functional expensesLn 25 | $4.2M | $3.2M | $393K | $639K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $8.5M | $7.5M | $956K | $9.1M | 990 PDF |
| FY2023 | $5.6M | $5.6M | $17K | $8.1M | 990 PDF |
| FY2022 Viewing | $4.3M | $4.2M | $48K | $7.5M | 990 PDF |
| FY2021 | $3.5M | $3.4M | $127K | $9.0M | 990 PDF |
| FY2020 | $3.0M | $2.8M | $252K | $8.7M | 990 PDF |
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Schedules filed Part IV
See the full FY2022 990 (6 parts)
Part I · Summary $4,285,841 revenue, 12 lines filed
Part VI · Governance 29 of 35 board members independent, 3 to look at
Part VIII · Statement of revenue $4,285,841 across 8 lines filed
Part IX · Statement of functional expenses $4,238,018 across 31 lines filed
Part X · Balance sheet $8,266,292 assets, 21 lines filed
Part XI · Reconciliation of net assets $7,525,105 net assets at year end
Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File
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