Jerome Lejeune Foundation USA

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The organization's mission is to raise and to disburse funds in order to provide research, care and advocacy to benefit those with genetic intellectual disabilities in accordance with the medical and ethical standards of dr. Jerome Lejeune, the father of modern genetics. This is carried out by conducting, promoting and funding of therapeutically oriented research in the united states for these individuals, by assisting in the development of healthcare services for these individuals and by serving as their advocate in a spirit of research for the dignity of all human persons.

501(c)(3) charity; gifts are tax-deductible.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78

Before you give

FY2023 · Form 990-EZIndependent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2023
latest Form 990-EZ
Fine: the latest return is for FY2023, 3 tax years back; within 3 tax years.
IRS e-file · Filing history
Named funders
1
named funder · $20K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$148K
-39% vs prior year
Net assets
$117K
By yearFY2022–FY2023
Revenue
$148K
FY2023▼ -39%
Tap a bar for its year
Revenue by fiscal year
FY2022$243K
FY2023$148K
Net assets
$117K
FY2023▲ +191%
Tap a bar for its year
Net assets by fiscal year
FY2022$40K
FY2023$117K

From the FY2023 Form 990 (year ending June 2023) · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2023. IRS ruling in Nov 2011.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Who runs it and what they're paid

4 people listed on the 990-EZ.

Part VII, Section A · reportable compensation · most recent filed roster (FY2022); the FY2023 filing did not itemize Part VII
$0Pt VII · Sec A
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
$0Pt VII · Sec A
See Jerome Lejeune Foundation USA executive salaries →

Programs and updates

Funds research, care, and advocacy for individuals with genetic intellectual disabilities.

Questions for Jerome Lejeune Foundation USA

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3 programs · in their own filed words · FY2021
01

Providing weekly information on resources and activities to support the life of people with down syndrome and their families.

Pt IX · col B
02

Research, planning and launch of phase I of the first down syndrome medical center in the united states.

Pt IX · col B
03

Providing reports on scientific research and legacy of DR. Jerome lejeune.

Pt IX · col B

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · funders on record
Grants received · FY2024
Total grants receivedfrom 1 funder$20K

By the numbers

The FY2023 990-EZ, line by line.

1The main four
Money in
$148K
Other income$148K
Owns and owes
$117K
net assets
People
4
listed
Paid0
2In more detail
Revenue in detail
Other income$148K
Total revenue$148K
Assets in detailEnd of year
Net assets$117K
Operations
Employees0
Volunteers0
Fiscal year endsJune

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2023 Latest ViewingFiled with the IRS Apr 3, 2025 $148K$117K 990 PDF
FY2022Filed with the IRS Jan 24, 2023 $243K$205K$38K$40K 990 PDF

Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons A · Public support

Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File

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