Fabry Support & Information Group FY2022 filing
Supports individuals with Fabry disease through information, advocacy, education, and compassionate care. For fiscal year 2022 it reported $680K in revenue, $505K in expenses, and $793K in net assets.Pt I
- Type
- Public charity (501(c)(3)) · Diseases & Disorders
- Location
- Concordia, MO
- Website
- www.fabry.org
- Filings
- 5 on file (2020–2022)
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Summary of the Filing
Identity & Classification
Governance & Policies
Officers, Directors & Key Employees
Jack Johnson’s $83K as Chief Executive Officer is at the 67th percentile of top reported officer pay among 900 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|
| Jack Johnson | $83,200 | $80,600 | $72,400 | $60,970 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Where the work happens
Fefc Registration Fee
Registration fee charged to attend 2022 fsig expert fabry conference. Appx. 67 attendees in live venue and 25 over virtual conference.
Patient meetings-since fabry patients have a hard time with travel, fsig takes our meetings to them in cities near them. We provide them with up to date information from medical and industry professionals. This also gives patients an opportunity to talk to other fabry patients who are facing the same day-to-day challenges as they are.
Website Development
Provide a forum for fabry patients to make contact and help support one another.
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Statement of Revenue
Statement of Functional Expenses
Balance Sheet
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 71% | — | — |
| Overhead ratio | 23% | — | — |
| Fundraising cost ratio | 6% | — | — |
| Revenue growth | 54% | — | — |
| Investment management fee ratio | 0% | — | — |
| Legal fee ratio | 0% | — | — |
| Accounting fee ratio | 0.7% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Grants
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Filings & Schedule Manifest
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Sources
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