Upper Midwest Bleeding Disorders Al Liance: FY2020 Nonprofit Profile & Form 990 (EIN 41-6032276)

Vicki Kopplin’s $115K as Executive Director is at the 87th percentile of top reported officer pay among 1979 $100K–1M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 2 named individuals · Part VII

Name	FY2025	FY2024	FY2023	FY2022	FY2021	FY2020
Vicki Kopplin	$115,000	$18,592	—	—	—	—
James Paist	—	—	$91,532	$88,787	$89,000	$87,526

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

Family or business ties among officersPt VI · Ln 2No
Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Improves life quality for individuals and families with hemophilia and bleeding disorders through services and programs.

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Provided by the organization

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3 programs · $142K · in their own filed words · FY2020

01

Emergency Financial Assistance Program

This program provides assistance for families in need due to hemophilia conditions. To qualify individuals must be in the care of a physician and be treated in a healthcare treatment center (HTC).

$60Kprogram expense

02

Family Education Events

HFMD hosts medical education workshops for members, which combine information presentations along with fun activities for people of all ages. Held annual family education day in sioux falls, SD, in july.

$43Kprogram expense

03

Blood Brotherhood

Our blood brotherhood program is a collaboration with the hemophilia federation of the americas to provide men in our community that have a bleeding disorder with opportunities to get to know each other and share their experiences.

$39Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid

Grants received · FY2024

Mayo ClinicFY2024$75K

Children's Health CareFY2024$12K

The Hemophilia Alliance FoundationFY2024$8K

Total grants receivedfrom 3 funders$95K

See all 3 funders →

Grants paid · 5 grants · $90K · 2020–2025

Unitemized GrantFY2025$42,397

Unitemized GrantFY2025$7,816

Unitemized GrantFY2025$5,000

Unitemized GrantFY2020$30,462

Unitemized GrantFY2020$4,500

By the numbers

The FY2020 990, line by line.

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1The main four

Money inPt VIII

$276K

Ln 12

Gifts and grantsLn 1h$246K

Fees for servicesLn 2g$40K

Investment incomeLn 3$158

Money outPt IX

$264K

Ln 25

Programscol B$190K

Managementcol C$57K

Fundraisingcol D$17K

Owns and owesPt X

$606K

net assets · Ln 32

Cash and savingsLn 1–2$651K

Total assetsLn 16$653K

LiabilitiesLn 26$47K

PeoplePt VI, VII

10

listed · VII A

PaidVII A1

Voting boardVI 1a8

IndependentVI 1b8

2In more detail

Revenue in detailPt VIII

Gifts and grantsLn 1h$246K

Fundraising eventsLn 1c$102K

Fees for servicesLn 2g$40K

Investment incomeLn 3$158

Total revenueLn 12$276K

Assets in detailPt X, end of year

CashLn 1$13K

SavingsLn 2$639K

Cash and savings togetherLn 1–2$651K

Land, buildings, equipmentLn 10c$0

Total assetsLn 16$653K

LiabilitiesLn 26$47K

Net assetsLn 32$606K

OperationsPt I, VI

EmployeesI 52

VolunteersI 630

Fiscal year endsHeaderDecember

Conflict-of-interest policyVI 12aYes

Whistleblower policyVI 13Yes

Records policyVI 14Yes

3Year over year

Balance sheet, start vs end of yearPt X · col A, B

Line	Start FY20	End FY20
Cash and savingsLn 1–2	$584K	$651K
Land, buildings, equipmentLn 10c	$0	$0
Total assetsLn 16	$601K	$653K
LiabilitiesLn 26	$21K	$47K
Net assetsLn 32	$580K	$606K

4Every line

Statement of functional expensesPt IX · every line

Line	Total	Programs	Management	Fundraising
Grants to domestic individualsLn 2	$35K	$35K
Pay of current officers, directors and key staffLn 5	$101K	$82K	$10K	$10K
Other salaries and wagesLn 7	$41K	$33K	$4K	$4K
Pension plan contributionsLn 8	$1K	$960	$114	$114
Other employee benefitsLn 9	$1K	$993	$118	$118
Payroll taxesLn 10	$10K	$8K	$934	$934
Accounting feesLn 11c	$2K		$2K
Lobbying feesLn 11d	$25		$25
Other fees for servicesLn 11g	$2K		$2K
Office expensesLn 13	$22K	$6K	$16K	$706
Information technologyLn 14	$4K	$3K	$352	$352
OccupancyLn 16	$16K	$13K	$2K	$2K
TravelLn 17	$2K	$1K	$473
InsuranceLn 23	$5K		$5K
Other expenses (24a–d)Ln 24	$22K	$8K	$14K
Total functional expensesLn 25	$264K	$190K	$57K	$17K

Filing history

Year	Money in	Money out	In minus out	Net assets	Download
FY2025 Latest	$584K	$557K	$27K	$505K	990 PDF
FY2024	$484K	$529K	−$46K	$482K	990 PDF
FY2023	$401K	$475K	−$74K	$529K	990 PDF
FY2022	$213K	$304K	−$91K	$652K	990 PDF
FY2021	$439K	$298K	$141K	$748K	990 PDF
FY2020 Viewing	$276K	$264K	$12K	$606K	990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations

See the full FY2020 990 (6 parts)

Part I · Summary $276,473 revenue, 12 lines filed

I-8 Contributions and grantsPrior year $314,615$246,347

I-9 Program service revenuePrior year $48,085$39,808

I-10 Investment incomePrior year $448$158

I-11 Other revenuePrior year −$11,103−$9,840

I-12 Total revenuePrior year $352,045$276,473

I-13 Grants and similar amounts paidPrior year $10,000$34,962

I-14 Benefits paid to membersPrior year $0$0

I-15 Salaries and benefitsPrior year $160,637$154,313

I-16a Professional fundraising feesPrior year $0$0

I-17 Other expensesPrior year $203,109$75,159

I-18 Total expensesPrior year $373,746$264,434

I-19 Revenue less expensesPrior year −$21,701$12,039

Part VI · Governance 8 of 8 board members independent, no flags

VI-1a Voting members of the governing body8

VI-1b Independent voting members8

VI-2 Family or business relationship among officers or directorsNo

VI-12a Written conflict of interest policyYes

VI-13 Written whistleblower policyYes

VI-14 Document retention and destruction policyYes

VI-15a Process for setting top official's payYes

Part VIII · Statement of revenue $276,473 across 9 lines filed

Lines not itemized here account for $1,630 of total revenue; see the IRS return.

VIII-1b Membership dues$1,475

VIII-1c Fundraising events$102,293

VIII-1f All other contributions, gifts and grants$142,579

VIII-1h Total contributions, gifts and grants$246,347

VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $18,000 · Unrelated business $21,808$39,808

VIII-3 Investment incomeExcluded from tax $158$158

VIII-8 Net income from fundraising eventsExcluded from tax −$11,745−$11,745

VIII-11a-d Other revenue, itemized rows (sum of 11a–11d as filed)Related to mission $275$275

VIII-12 Total revenueRelated to mission $18,275 · Unrelated business $21,808 · Excluded from tax −$9,957$276,473

Part IX · Statement of functional expenses $264,434 across 15 lines filed

IX-2 Grants to domestic individualsPrograms $34,962$34,962

IX-5 Pay of current officers, directors and key staffPrograms $81,732 · Management $9,710 · Fundraising $9,710$101,152

IX-7 Other salaries and wagesPrograms $33,143 · Management $3,938 · Fundraising $3,938$41,019

IX-8 Pension plan contributionsPrograms $960 · Management $114 · Fundraising $114$1,188

IX-9 Other employee benefitsPrograms $993 · Management $118 · Fundraising $118$1,229

IX-10 Payroll taxesPrograms $7,857 · Management $934 · Fundraising $934$9,725

IX-11c Accounting feesManagement $2,400$2,400

IX-11d Lobbying feesManagement $25$25

IX-11g Other fees for servicesManagement $2,490$2,490

IX-13 Office expensesPrograms $6,036 · Management $15,618 · Fundraising $706$22,360

IX-14 Information technologyPrograms $2,964 · Management $352 · Fundraising $352$3,668

IX-16 OccupancyPrograms $12,813 · Management $1,523 · Fundraising $1,523$15,859

IX-17 TravelPrograms $1,140 · Management $473$1,613

IX-23 InsuranceManagement $5,023$5,023

IX-24 Other expenses (24a–d)Programs $7,886 · Management $13,835$21,721

IX-25 Total functional expensesPrograms $190,486 · Management $56,553 · Fundraising $17,395$264,434

Part X · Balance sheet $652,907 assets, 12 lines filed

X-1 Cash, non-interest-bearingStart of year $10,955$12,708

X-2 Savings and temporary cash investmentsStart of year $573,310$638,671

X-9 Prepaid expenses and deferred chargesStart of year $16,992$1,528

X-10c Land, buildings and equipment, netStart of year $0$0

X-16 Total assetsStart of year $601,257$652,907

X-17 Accounts payable and accrued expensesStart of year $7,256$11,738

X-19 Deferred revenueStart of year $14,200$5,000

X-24 Unsecured notes and loans payable$30,277

X-26 Total liabilitiesStart of year $21,456$47,015

X-27 Net assets without donor restrictionsStart of year $579,801$605,892

X-32 Total net assets or fund balancesStart of year $579,801$605,892

X-33 Total liabilities and net assetsStart of year $601,257$652,907

Part XI · Reconciliation of net assets $605,892 net assets at year end

XI-1 Total revenue$276,473

XI-2 Total expenses$264,434

XI-3 Revenue less expenses$12,039

XI-4 Net assets at start of year$579,801

XI-5 Net unrealized gains (losses) on investments$14,052

XI-9 Other changes in net assets$0

XI-10 Net assets at end of year$605,892

Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File

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Upper Midwest Bleeding Disorders Al Liance FY2020 filing

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