Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in May 2009.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Who runs it and what they're paid
11 people listed on the 990; $52K paid to officers and key staff.
Emily McGehee’s $33K as Program and Events Manager is at the 71st percentile of top reported officer pay among 153 <$100K diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2025 | FY2024 |
|---|---|---|
| Emily McGehee | $33,317 | $28,009 |
| Alison Thornton | $18,625 | $24,711 |
| Noel Raybon | — | $1,369 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Programs and updates
A disease and medical nonprofit based in Saint Louis, MO.
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Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $84K | $90K | −$6K | $63K | 990 PDF |
| FY2024 | $113K | $69K | 990 PDF | ||
| FY2023 | $70K | $45K | 990 PDF | ||
| FY2022 | $62K | $49K | 990 PDF | ||
| FY2021 | $45K | $47K | 990 PDF |
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Schedules filed Part IV
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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