philanthropy.org | 990 Resource | FAQ Verify yourself
Sign in

Ssadh Association INC FY2021 filing

Tax-deductible

Delafield, WI501(c)(3)Diseases & DisordersEIN 37-1695651Revenue $162K in FY2021

On file with the IRSssadh.net498 Lillian CT, 53018-2500 · Delafield, WITax-exempt since Apr 2013Publicly supported charity — 170(b)(1)(A)(vi)

Tell your story. Claim this org

Ssadh is an organization representing children and families affected by a disease of gaba related neurotransmitter metabolism. Our mission is to further an understanding and fund scientific research regarding succinic semialdehyde dehydrogenase deficiency ("Ssadh") with the ultimate goal of developing treatments and a cure for Ssadh, and to assist those we represent though education, advocacy and research.

501(c)(3) charity; gifts are tax-deductible.
86¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2021 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
3 of 5
filings with a surplus
Average surplus $43K a year · 25% of revenue · last 5 filings
Worth a look: a surplus in 3 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
86%
of spending
Looks good: 86% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
2 mo
of spending, in cash
Fine: 1.6 months of spending in cash; 1 to 3.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
2
named funders · $10K
Fine: 2 funders name it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$14K
3% of total assets
Looks good: liabilities are 3% of assets; 50% or less.
Pt X · Ln 26
Independent board members
5
of 5 voting members
Looks good: 5 of 5 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$162K
Spent
$185K
To programs
86%
Net assets
$476K
By yearFY2021–FY2025
Revenue
$162K
FY2021
Tap a bar for its year
Revenue by fiscal year
FY2021$162K
FY2022$163K
FY2023$153K
FY2024$164K
FY2025$212K
Expenses
$185K
FY2021
Tap a bar for its year
Expenses by fiscal year
FY2021$185K
FY2022$94K
FY2023$174K
FY2024$109K
FY2025$78K
Net assets
$476K
FY2021
Tap a bar for its year
Net assets by fiscal year
FY2021$476K
FY2022$460K
FY2023$452K
FY2024$527K
FY2025$588K

From the FY2021 Form 990 (year ending June 2021) · see the original

Give Claim
You’re viewing the FY2021 filing — not the latest on file. See the latest (FY2025) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Apr 2013.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

86 cents of each dollar spent went to programs.

Program services 86% · $160K Management & general 14% · $26K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

Something off? Claim to fix it

Who runs it and what they're paid

5 people listed on the 990.

Part VII, Section A · reportable compensation · most recent filed roster (FY2020); the FY2021 filing did not itemize Part VII
Bradley J Hoffman
President and Director
$0Pt VII · Sec A
Carolyn a Hoffman
VP, Secretary & Director
$0Pt VII · Sec A
James N Keck JR
Treasurer and Director
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
See Ssadh Association INC executive salaries →

On this list? Claim this org

Something off? Claim to fix it

Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Funds research and provides support for families affected by a rare neurotransmitter disorder.

Questions for Ssadh Association INC

Tap to ask. Ssadh Association INC sees how many people are interested.

Your first name shows with your question. Ssadh Association INC answers here, for everyone.

Provided by the organization

Know this org? Add your story

3 programs · $160K · in their own filed words · FY2020
01

Development of an ssadh biorepository creating a biobank where bio specimens and matching clinical data are collected longitudinally from all interested parties - patients, siblings and family members.

$91Kprogram expense
02

Ssadh enzyme replacement mouse model. Boston children's hospital.

$57Kprogram expense
03

Ssadh mouse model backup plan

$12Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
Greater Milwaukee Foundation INCFY2024$10K
Schoenhut Family Foundation INCFY2024$250
Total grants receivedfrom 2 funders$10K
Grants paid · 10 grants · $439K · 2020–2024
Children's Hospital CorporationMA · FY2024$29,500
Children's Hospital CorporationMA · FY2023$73,959
Washington State UniversityWA · FY2023$9,160
Children's Hospital CorporationMA · FY2022$90,132
Washington State UniversityWA · FY2022$57,834
Jackson LaboratoryME · FY2021$10,967
Children's Hospital CorporationMA · FY2021$7,901
Washington State UniversityWA · FY2020$91,145
Children's Hospital CorporationMA · FY2020$56,552
Jackson LaboratoryME · FY2020$11,974

By the numbers

The FY2021 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$162K
Ln 12
Gifts and grantsLn 1h$111K
Other incomeLn 4–11$42K
Investment incomeLn 3$9K
Money outPt IX
$185K
Ln 25
Programscol B$160K
Managementcol C$26K
Owns and owesPt X
$476K
net assets · Ln 32
Cash and savingsLn 1–2$24K
Total assetsLn 16$490K
LiabilitiesLn 26$14K
PeoplePt VI, VII
5
listed · VII A
PaidVII A0
Voting boardVI 1a5
IndependentVI 1b5
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$111K
Fundraising eventsLn 1c$87K
Investment incomeLn 3$9K
Other incomeLn 4–11$42K
Total revenueLn 12$162K
Assets in detailPt X, end of year
SavingsLn 2$24K
Cash and savings togetherLn 1–2$24K
InvestmentsLn 11–13$465K
Total assetsLn 16$490K
LiabilitiesLn 26$14K
Net assetsLn 32$476K
OperationsPt I, VI
EmployeesI 50
VolunteersI 65
Fiscal year endsHeaderJune
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY21End FY21
Cash and savingsLn 1–2$57K$24K
InvestmentsLn 11–13$374K$465K
Total assetsLn 16$430K$490K
LiabilitiesLn 26$13K$14K
Net assetsLn 32$417K$476K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$160K$160K
Accounting feesLn 11c$5K$5K
Office expensesLn 13$3K$3K
Information technologyLn 14$8K$8K
TravelLn 17$3K$3K
InsuranceLn 23$652$652
Other expenses (24a–d)Ln 24$7K$7K
Total functional expensesLn 25$185K$160K$26K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest $212K$78K$134K$588K 990 PDF
FY2024 $164K$109K$55K$527K 990 PDF
FY2023 $153K$174K−$20K$452K 990 PDF
FY2022 $163K$94K$69K$460K 990 PDF
FY2021 Viewing $162K$185K−$24K$476K 990 PDF

More to add? Claim this org

Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
See the full FY2021 990 (6 parts)
Part I · Summary $161,653 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $102,307$110,754
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $9,825$8,933
I-11 Other revenuePrior year $38,112$41,966
I-12 Total revenuePrior year $150,244$161,653
I-13 Grants and similar amounts paidPrior year $172,594$159,671
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$0
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $23,155$25,577
I-18 Total expensesPrior year $195,749$185,248
I-19 Revenue less expensesPrior year −$45,505−$23,595
Part VI · Governance 5 of 5 board members independent, 4 to look at
VI-1a Voting members of the governing body5
VI-1b Independent voting members5
VI-2 Family or business relationship among officers or directorsYes
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-12a Written conflict of interest policyYes
Part VIII · Statement of revenue $161,653 across 6 lines filed
VIII-1c Fundraising events$86,594
VIII-1f All other contributions, gifts and grants$24,160
VIII-1h Total contributions, gifts and grants$110,754
VIII-3 Investment incomeExcluded from tax $8,933$8,933
VIII-8 Net income from fundraising eventsExcluded from tax $41,966$41,966
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $50,899$161,653
Part IX · Statement of functional expenses $185,248 across 7 lines filed
IX-1 Grants to domestic organizationsPrograms $159,671$159,671
IX-11c Accounting feesManagement $5,380$5,380
IX-13 Office expensesManagement $2,604$2,604
IX-14 Information technologyManagement $7,790$7,790
IX-17 TravelManagement $2,608$2,608
IX-23 InsuranceManagement $652$652
IX-24 Other expenses (24a–d)Management $6,543$6,543
IX-25 Total functional expensesPrograms $159,671 · Management $25,577 · Fundraising $0$185,248
Part X · Balance sheet $489,858 assets, 8 lines filed
X-2 Savings and temporary cash investmentsStart of year $56,517$24,450
X-11 Publicly traded securitiesStart of year $373,911$465,408
X-16 Total assetsStart of year $430,428$489,858
X-17 Accounts payable and accrued expensesStart of year $13,268$13,710
X-26 Total liabilitiesStart of year $13,268$13,710
X-27 Net assets without donor restrictionsStart of year $417,160$476,148
X-32 Total net assets or fund balancesStart of year $417,160$476,148
X-33 Total liabilities and net assetsStart of year $430,428$489,858
Part XI · Reconciliation of net assets $476,148 net assets at year end
XI-1 Total revenue$161,653
XI-2 Total expenses$185,248
XI-3 Revenue less expenses−$23,595
XI-4 Net assets at start of year$417,160
XI-5 Net unrealized gains (losses) on investments$82,583
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$476,148

Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File

Similar organizations you could support · Compare with another nonprofit

Names, privacy, and removal requests More

The names, titles, and compensation shown on this page are reproduced from IRS Form 990 filings, which are public records.

Philanthropy.org does not alter the content of those filings. All information appears exactly as reported by the filing organization for the tax year shown.

We publish only information contained in the public IRS filing — and less than the filing contains. Our profile pages do not display street addresses, telephone numbers, personal email addresses, or other personal contact information, even where the filing includes them.

Many people share the same name. A name shown on this page reflects only what one organization reported in one IRS filing for one tax year. It should not be interpreted as identifying any other individual with the same or a similar name.

If you are no longer affiliated with the organization, your name will generally stop appearing in future IRS filings once the organization no longer reports you. Pages for tax years in which you were reported remain published because those filings remain part of the public record.

Philanthropy.org does not alter or remove IRS filing records. Removing a page from this website would not remove the underlying IRS filing, which remains publicly available from the IRS and other publishers of the same information.

If you believe the IRS filing itself is inaccurate, corrections must be made by the filing organization or the IRS directly.

Your org? Add context

Made it to the end? Claim this org

All figures are derived from public IRS Form 990 filings and are presented without evaluation of any organization. philanthropy.org does not rate, score, or rank organizations, including the pay comparisons above.