Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Oct 1997.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
73 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
11 people listed on the 990; $104K paid to officers and key staff.
Liz Burgess’s $29K as Executive Director is at the 18th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 4 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Robert P Robinson | — | — | $99,540 | $103,990 | $102,333 |
| Kent Sheldon | $28,251 | $75,493 | — | — | — |
| Liz Burgess | $29,167 | — | — | — | — |
| Robert Robinson | — | $26,848 | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
See Bleeding Disorders Alliance Illinois executive salaries →Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Helps hemophiliacs and families with treatment, care, and support.
Questions for Bleeding Disorders Alliance Illinois
Your first name shows with your question. Bleeding Disorders Alliance Illinois answers here, for everyone.
Education
the organization provides several education programs throughout the year which support comprehensive and medical care. The organization publishes a newsletter three times a year that reinforces the issues presented in specific educational presentations which includes potential resources for hemophiliacs to utilize.
Advocacy and General Programs
the organization's programs include on-going training for the bleeding disorder community on self-advocacy and awareness on critical issues; meeting with state legislators and administrators to develop partnerships that support bleeding disorders; and participation on healthcare consortiums that share common interest with the…
Summer Camp
the organization conducts an annual summer camp for youths with hemophilia and related diseases.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2021 990, line by line.
Download 990
| Line | Start FY21 | End FY21 |
|---|---|---|
| Cash and savingsLn 1–2 | $319K | $689K |
| Land, buildings, equipmentLn 10c | $572K | $553K |
| Total assetsLn 16 | $901K | $1.2M |
| LiabilitiesLn 26 | $578K | $855K |
| Net assetsLn 32 | $323K | $391K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $104K | $84K | $4K | $16K |
| Other salaries and wagesLn 7 | $150K | $89K | $18K | $43K |
| Other employee benefitsLn 9 | $37K | $26K | $3K | $9K |
| Payroll taxesLn 10 | $20K | $13K | $2K | $5K |
| Accounting feesLn 11c | $6K | $5K | $742 | $1K |
| Office expensesLn 13 | $17K | $12K | $2K | $3K |
| OccupancyLn 16 | $8K | $6K | $965 | $1K |
| InterestLn 20 | $30K | $21K | $3K | $5K |
| Depreciation, depletion and amortizationLn 22 | $19K | $14K | $2K | $3K |
| Other expenses (24a–d)Ln 24 | $57K | $57K | $0 | $0 |
| All other expensesLn 24e | $18K | $12K | $2K | $4K |
| Total functional expensesLn 25 | $467K | $339K | $39K | $89K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 LatestFiled with the IRS Jul 28, 2025 | $252K | $386K | −$134K | $92K | 990 PDF |
| FY2023Filed with the IRS Jul 1, 2024 | $451K | $522K | −$71K | $226K | 990 PDF |
| FY2022Filed with the IRS Jun 28, 2023 | $449K | $543K | −$94K | $297K | 990 PDF |
| FY2021 ViewingFiled with the IRS Aug 9, 2022 | $535K | $467K | $68K | $391K | 990 PDF |
| FY2020Filed with the IRS Aug 16, 2021 | $525K | $475K | $50K | $323K | 990 PDF |
Schedules filed Part IV
See the full FY2021 990 (6 parts)
Part I · Summary $534,647 revenue, 12 lines filed
Part VI · Governance 10 of 11 board members independent, no flags
Part VIII · Statement of revenue $534,647 across 9 lines filed
Part IX · Statement of functional expenses $466,588 across 11 lines filed
Part X · Balance sheet $1,246,881 assets, 14 lines filed
Part XI · Reconciliation of net assets $391,476 net assets at year end
Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File
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