Is it real?
Yes. Never revoked by the IRS. Files the 990-N e-Postcard (latest 2023). Last full Form 990: 2021. IRS ruling in Jul 1990.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
87 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
12 people listed on the 990; $92K paid to officers and key staff (Part VII, Section A).
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2022 | FY2021 |
|---|---|---|
| Tina Kaetzel | $92,100 | $94,088 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
See Amyotrophic Lateral Sclerosis executive salaries →Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Supports patients with ALS and their families.
Questions for Amyotrophic Lateral Sclerosis
Your first name shows with your question. Amyotrophic Lateral Sclerosis answers here, for everyone.
Education & Support Programs
Strategically based in and near patient's home communities, care service coordinators work directly with people with als and their families to help them navigate management of als as well as access community resources.
Form 990 Part III, line 4, FY2021. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 35-2029321) · Dispute this lineAls Clinics and Certified Center Support
To support the highest quality healthcare for people with als, the organization partners with and financially supports community healthcare providers in offering als multidisciplinary clinics. These clinics are evidence-based models that promote coordinated care for people with als.
Form 990 Part III, line 4, FY2021. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 35-2029321) · Dispute this lineAwareness Events
Events sponsored by the chapter include the walk to defeat als, bob kravitz golf outing, cruisin' for a cure car show, als research update, may als awareness month, and mission connected social media. November national caregivers' month activities served as opportunities to bring hope and community to people with als and their families.
Form 990 Part III, line 4, FY2021. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 35-2029321) · Dispute this lineFunders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2022 990, line by line.
Download 990
| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $839K | $340K |
| InvestmentsLn 11–13 | $658K | $1.2M |
| Land, buildings, equipmentLn 10c | $23K | $0 |
| Total assetsLn 16 | $1.5M | $1.6M |
| LiabilitiesLn 26 | $194K | $37K |
| Net assetsLn 32 | $1.3M | $1.5M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $35K | $35K | ||
| Grants to domestic individualsLn 2 | $39K | $39K | ||
| Pay of officers and key staff (Part IX, line 5)Ln 5 | $91K | $77K | $8K | $7K |
| Other salaries and wagesLn 7 | $197K | $167K | $15K | $15K |
| Other employee benefitsLn 9 | $4K | $3K | $295 | $293 |
| Payroll taxesLn 10 | $23K | $20K | $2K | $2K |
| Accounting feesLn 11c | $9K | $6K | $1K | $3K |
| Investment management feesLn 11f | $2K | $2K | ||
| Other fees for servicesLn 11g | $9K | $6K | $1K | $3K |
| Advertising and promotionLn 12 | $558 | $558 | ||
| Office expensesLn 13 | $37K | $28K | $5K | $4K |
| Information technologyLn 14 | $21K | $13K | $2K | $5K |
| OccupancyLn 16 | $37K | $32K | $2K | $4K |
| TravelLn 17 | $5K | $4K | $552 | $236 |
| Payments to affiliatesLn 21 | $111K | $111K | ||
| Depreciation, depletion and amortizationLn 22 | $22K | $21K | $1K | |
| InsuranceLn 23 | $2K | $1K | $109 | $105 |
| Other expenses (24a–d)Ln 24 | $2K | $2K | $80 | |
| Total functional expensesLn 25 | $647K | $564K | $41K | $43K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2022 Latest ViewingFiled with the IRS Mar 21, 2023 | $820K | $647K | $172K | $1.5M | 990 PDF |
| FY2021Filed with the IRS Jul 15, 2021 | $749K | $610K | $139K | $1.3M | 990 PDF |
Files the 990-N e-Postcard (latest 2023). Last full Form 990: 2021. The 990-N has no money details, and postcard years before 2023 are not published by the IRS.
Schedules filed Part IV
See the full FY2022 990
Part I · Summary $819,713 revenue, 12 lines filed
Part VI · Governance 11 of 11 board members independent, no flags
Part VIII · Statement of revenue $819,713 across 10 lines filed
Part IX · Statement of functional expenses $647,442 across 18 lines filed
Part X · Balance sheet $1,575,757 assets, 17 lines filed
Part XI · Reconciliation of net assets $1,538,273 net assets at year end
Form 990 e-file FY2022 from the IRS (about our sources) · Classification, formation year and address from the IRS Business Master File
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