The LAM Foundation urgently seeks safe and effective treatments and ultimately a cure for LAM.

501(c)(3) charity; gifts are tax-deductible.
79¢ of each $1 spent went to programs.
$203K paid to officers and key staff.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · Pay: Part VII

Before you give

FY2022 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
3 of 5
filings with a surplus
Average surplus $149K a year · 8% of revenue · last 5 filings
Worth a look: a surplus in 3 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
79%
of spending
Looks good: 79% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$203K
to officers and key staff · 11% of spending
Looks good: pay to officers and key staff is 11% of spending; 15% or less.
Pt VII · Sec A
18 mo
of spending, in cash
Looks good: 18.2 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
6
named funders · $348K
Looks good: 6 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$306K
11% of total assets
Looks good: liabilities are 11% of assets; 50% or less.
Pt X · Ln 26
Independent board members
13
of 13 voting members
Looks good: 13 of 13 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$1.6M
-29% vs prior year
Spent
$1.9M
To programs
79%
Net assets
$2.6M
By yearFY2020–FY2024
Revenue
$1.6M
FY2022▼ -29%
Tap a bar for its year
Revenue by fiscal year
FY2020$1.8M
FY2021$2.2M
FY2022$1.6M
FY2023$1.5M
FY2024$1.9M
Expenses
$1.9M
FY2022▲ +39%
Tap a bar for its year
Expenses by fiscal year
FY2020$1.6M
FY2021$1.3M
FY2022$1.9M
FY2023$1.8M
FY2024$1.6M
Net assets
$2.6M
FY2022▼ -10%
Tap a bar for its year
Net assets by fiscal year
FY2020$2.0M
FY2021$2.9M
FY2022$2.6M
FY2023$2.2M
FY2024$2.6M

From the FY2022 Form 990 · figures checked against the IRS filing · see the original

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You’re viewing the FY2022 filing — not the latest on file. See the latest (FY2024) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Aug 1995.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

79 cents of each dollar spent went to programs.

Program services 79% · $1.5M Management & general 8% · $159K Fundraising 13% · $236K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

15 people listed on the 990; $203K paid to officers and key staff.

Part VII, Section A · reportable compensation
$202,970Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Scientific Dir
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A

Susan Sherman’s $222K as CEO is at the 86th percentile of top reported officer pay among 1691 $1–10M philanthropy & grantmaking nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 1 named individual · Part VII

NameFY2023FY2022FY2021FY2020
Susan Sherman$221,520$202,970$180,879$161,207

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See The Lam Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Funds research to find treatments and a cure for LAM.

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Provided by the organization

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3 programs · $1.5M · in their own filed words · FY2022
01

Research CostsThe LAM Foundation awarded $410,000 to fund five new research projects in 2022. The International LAM Research Conference presented the latest innovations in LAM science, with 102 leading-edge scientists, early career researchers, and clinicians. A research poster reception at the Conference exhibited 39 posters.

$891Kprogram expense
02

Patient ServicesIn collaboration with our LAM clinic directors, liaisons and scientists we offered 25 virtual events, including LAMposium in Your Living Room webinars, education meetings, and social gatherings.

$482Kprogram expense
03

ClinicalThe LAM Clinic & Research Network continues to expand and provide locally based, expert care for women with LAM around the world. We added 4 clinics in 2022: University of North Carolina; Yale University; Aahus University, Denmark; Rigshospitalet, Denmark.

$105Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
See all 6 funders →
Grants paid · 27 grants · $1.7M · 2020–2024
Cincinnati Childrens Med CenOH · FY2024$92,962
University of WashingtonFY2024$90,000
University of CincinnatiFY2024$75,000
Northwestern UniversityIL · FY2024$35,000
Cincinnati Childrens Med CenOH · FY2023$163,000
Northwestern UniversityIL · FY2023$50,000
University of WashingtonFY2023$25,000
New York Medical CollegeNY · FY2023$10,000
Cincinnati Childrens Med CenOH · FY2022$139,933
Northwestern UniversityIL · FY2022$50,000
University of IowaFY2022$10,000
See all 27 grants →

By the numbers

The FY2022 990, line by line.

1The main four
Money inPt VIII
$1.6M
Ln 12
Gifts and grantsLn 1h$871K
Other incomeLn 4–11$538K
Fees for servicesLn 2g$157K
Money outPt IX
$1.9M
Ln 25
Programscol B$1.5M
Managementcol C$159K
Fundraisingcol D$236K
Owns and owesPt X
$2.6M
net assets · Ln 32
Cash and savingsLn 1–2$2.8M
Total assetsLn 16$2.9M
LiabilitiesLn 26$306K
PeoplePt VI, VII
15
listed · VII A
PaidVII A1
Voting boardVI 1a13
IndependentVI 1b13
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$871K
Fees for servicesLn 2g$157K
Investment incomeLn 3$6K
Other incomeLn 4–11$538K
Gains on assetsLn 7$0
Total revenueLn 12$1.6M
Assets in detailPt X, end of year
CashLn 1$277K
SavingsLn 2$2.6M
Cash and savings togetherLn 1–2$2.8M
InvestmentsLn 11–13$0
Land, buildings, equipmentLn 10c$0
Other assetsLn 15$0
Total assetsLn 16$2.9M
LiabilitiesLn 26$306K
Net assetsLn 32$2.6M
OperationsPt I, VI
EmployeesI 59
VolunteersI 6100
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY22End FY22
Cash and savingsLn 1–2$3.2M$2.8M
InvestmentsLn 11–13$0
Land, buildings, equipmentLn 10c$214$0
Total assetsLn 16$3.2M$2.9M
LiabilitiesLn 26$321K$306K
Net assetsLn 32$2.9M$2.6M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$432K$432K
Grants to domestic individualsLn 2$0
Grants and assistance to foreign recipientsLn 3$0
Benefits paid to or for membersLn 4$0
Pay of current officers, directors and key staffLn 5$209K$136K$52K$21K
Pay of disqualified personsLn 6$0
Other salaries and wagesLn 7$394K$260K$28K$106K
Pension plan contributionsLn 8$0
Other employee benefitsLn 9$0
Payroll taxesLn 10$0
Management feesLn 11a$0
Legal feesLn 11b$0
Accounting feesLn 11c$0
Lobbying feesLn 11d$0
Professional fundraising feesLn 11e$0
Investment management feesLn 11f$0
Other fees for servicesLn 11g$268K$142K$58K$68K
Advertising and promotionLn 12$0
Office expensesLn 13$6K$5K$761$536
Information technologyLn 14$0
RoyaltiesLn 15$0
OccupancyLn 16$35K$20K$6K$9K
TravelLn 17$13K$6K$5K$2K
Travel and entertainment for public officialsLn 18$0
Conferences, conventions and meetingsLn 19$379K$369K$212$10K
InterestLn 20$0
Payments to affiliatesLn 21$0
Depreciation, depletion and amortizationLn 22$485$485
InsuranceLn 23$0
Other expenses (24a–d)Ln 24$117K$97K$4K$16K
All other expensesLn 24e$20K$12K$4K$4K
Total functional expensesLn 25$1.9M$1.5M$159K$236K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest $1.9M$1.6M$330K$2.6M 990 PDF
FY2023 $1.5M$1.8M−$347K$2.2M 990 PDF
FY2022 Viewing $1.6M$1.9M−$302K$2.6M 990 PDF
FY2021 $2.2M$1.3M$863K$2.9M 990 PDF
FY2020 $1.8M$1.6M$204K$2.0M 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support J · Pay O · Explanations
See the full FY2022 990 (6 parts)
Part I · Summary $1,571,673 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $1,693,658$871,488
I-9 Program service revenue$156,627
I-10 Investment income$5,832
I-11 Other revenuePrior year $515,927$537,726
I-12 Total revenuePrior year $2,209,585$1,571,673
I-13 Grants and similar amounts paidPrior year $457,700$431,511
I-14 Benefits paid to members$0
I-15 Salaries and benefitsPrior year $541,028$603,077
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $347,787$838,820
I-18 Total expensesPrior year $1,346,515$1,873,408
I-19 Revenue less expensesPrior year $863,070−$301,735
Part VI · Governance 13 of 13 board members independent, no flags
VI-1a Voting members of the governing body13
VI-1b Independent voting members13
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $1,571,673 across 10 lines filed
VIII-1f All other contributions, gifts and grants$871,488
VIII-1h Total contributions, gifts and grants$871,488
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $156,627$156,627
VIII-3 Investment incomeExcluded from tax $5,832$5,832
VIII-5 Royalties$0
VIII-6 Net rental income or loss$0
VIII-7 Net gain or loss on sales of assets$0
VIII-8 Net income from fundraising eventsExcluded from tax $535,860$535,860
VIII-11a-d Other revenue, itemized rows (sum of 11a–11d as filed)Excluded from tax $1,866$1,866
VIII-12 Total revenueRelated to mission $156,627 · Excluded from tax $543,558$1,571,673
Part IX · Statement of functional expenses $1,873,408 across 31 lines filed
IX-1 Grants to domestic organizationsPrograms $431,511$431,511
IX-2 Grants to domestic individuals$0
IX-3 Grants and assistance to foreign recipients$0
IX-4 Benefits paid to or for members$0
IX-5 Pay of current officers, directors and key staffPrograms $135,823 · Management $52,239 · Fundraising $20,896$208,958
IX-6 Pay of disqualified persons$0
IX-7 Other salaries and wagesPrograms $259,746 · Management $28,146 · Fundraising $106,227$394,119
IX-8 Pension plan contributions$0
IX-9 Other employee benefits$0
IX-10 Payroll taxes$0
IX-11a Management fees$0
IX-11b Legal fees$0
IX-11c Accounting fees$0
IX-11d Lobbying fees$0
IX-11f Investment management fees$0
IX-11g Other fees for servicesPrograms $142,387 · Management $58,009 · Fundraising $67,632$268,028
IX-12 Advertising and promotion$0
IX-13 Office expensesPrograms $5,057 · Management $761 · Fundraising $536$6,354
IX-14 Information technology$0
IX-15 Royalties$0
IX-16 OccupancyPrograms $20,421 · Management $5,697 · Fundraising $9,041$35,159
IX-17 TravelPrograms $6,471 · Management $5,011 · Fundraising $1,725$13,207
IX-18 Travel and entertainment for public officials$0
IX-19 Conferences, conventions and meetingsPrograms $369,214 · Management $212 · Fundraising $9,502$378,928
IX-20 Interest$0
IX-21 Payments to affiliates$0
IX-22 Depreciation, depletion and amortizationManagement $485$485
IX-23 Insurance$0
IX-24 Other expenses (24a–d)Programs $96,720 · Management $4,000 · Fundraising $15,954$116,674
IX-24e All other expensesPrograms $11,575 · Management $4,079 · Fundraising $4,331$19,985
IX-25 Total functional expensesPrograms $1,478,925 · Management $158,639 · Fundraising $235,844$1,873,408
Part X · Balance sheet $2,903,030 assets, 21 lines filed
X-1 Cash, non-interest-bearingStart of year $347,065$277,275
X-2 Savings and temporary cash investmentsStart of year $2,828,280$2,558,985
X-3 Pledges and grants receivableStart of year $5,500$1,500
X-4 Accounts receivableStart of year $5,615$34,736
X-8 Inventories for sale or use$0
X-9 Prepaid expenses and deferred chargesStart of year $31,864$30,334
X-10c Land, buildings and equipment, netStart of year $214$0
X-11 Publicly traded securities$0
X-12 Other securities$0
X-13 Program-related investments$0
X-14 Intangible assetsStart of year $470$200
X-15 Other assets$0
X-16 Total assetsStart of year $3,219,008$2,903,030
X-17 Accounts payable and accrued expensesStart of year $36,788$73,011
X-18 Grants payableStart of year $255,000$210,000
X-25 Other liabilitiesStart of year $28,787$23,323
X-26 Total liabilitiesStart of year $320,575$306,334
X-27 Net assets without donor restrictionsStart of year $2,562,840$2,401,680
X-28 Net assets with donor restrictionsStart of year $335,593$195,016
X-32 Total net assets or fund balancesStart of year $2,898,433$2,596,696
X-33 Total liabilities and net assetsStart of year $3,219,008$2,903,030
Part XI · Reconciliation of net assets $2,596,696 net assets at year end
XI-1 Total revenue$1,571,673
XI-2 Total expenses$1,873,408
XI-3 Revenue less expenses−$301,735
XI-4 Net assets at start of year$2,898,433
XI-9 Other changes in net assets−$2
XI-10 Net assets at end of year$2,596,696

Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File

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