Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Dec 2011.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
66 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
4 people listed on the 990.
Dennis a Brady JR’s $30K as President is at the 27th percentile of top reported officer pay among 1264 $100K–1M philanthropy & grantmaking nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
See Gene Spotlight INC executive salaries →Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Funds and supports research and awareness for rare genetic diseases.
Questions for Gene Spotlight INC
Your first name shows with your question. Gene Spotlight INC answers here, for everyone.
Provide monetary grants for reaserch, treatment, and cure of rare genetic diseases and conducted awareness campains informing the general public on issues related to the treatment and cure of such rare diseases.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2021 990, line by line.
Download 990
| Line | Start FY21 | End FY21 |
|---|---|---|
| Cash and savingsLn 1–2 | $1.6M | $590K |
| InvestmentsLn 11–13 | $590K | $1.7M |
| Land, buildings, equipmentLn 10c | $66 | $0 |
| Total assetsLn 16 | $2.1M | $2.3M |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $2.1M | $2.3M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $5K | $5K | ||
| Other salaries and wagesLn 7 | $20K | $20K | ||
| Payroll taxesLn 10 | $2K | $2K | ||
| Legal feesLn 11b | $1K | $1K | ||
| Accounting feesLn 11c | $24K | $24K | ||
| Other fees for servicesLn 11g | $17K | $17K | ||
| Advertising and promotionLn 12 | $3K | $3K | ||
| Office expensesLn 13 | $96 | $96 | ||
| Depreciation, depletion and amortizationLn 22 | $66 | $66 | ||
| Other expenses (24a–d)Ln 24 | $66K | $66K | $403 | |
| Total functional expensesLn 25 | $139K | $93K | $25K | $22K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 LatestFiled with the IRS Jul 14, 2025 | $123K | $197K | −$74K | $15.0M | 990 PDF |
| FY2023Filed with the IRS May 10, 2024 | $442K | $309K | $133K | $2.6M | 990 PDF |
| FY2022Filed with the IRS Jul 28, 2023 | $475K | $134K | $342K | $2.5M | 990 PDF |
| FY2021 ViewingFiled with the IRS Aug 16, 2022 | $308K | $139K | $168K | $2.3M | 990 PDF |
| FY2020Filed with the IRS Aug 26, 2021 | $337K | $174K | $163K | $2.1M | 990 PDF |
Schedules filed Part IV
See the full FY2021 990 (6 parts)
Part I · Summary $307,543 revenue, 12 lines filed
Part VI · Governance 4 of 4 board members independent, 3 to look at
Part VIII · Statement of revenue $307,543 across 5 lines filed
Part IX · Statement of functional expenses $139,197 across 10 lines filed
Part X · Balance sheet $2,315,134 assets, 11 lines filed
Part XI · Reconciliation of net assets $2,315,134 net assets at year end
Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File
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