Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2023. IRS ruling in May 2009.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
75 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
4 people listed on the 990; $146K paid to officers and key staff.
Barbara L Byer’s $73K as Co-Executive Director/Secretary is at the 95th percentile of top reported officer pay among 154 <$100K diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
- Loans to or from officersSch L · Pt II1 listed
Programs and updates
Supports ALS patients and families through research interpretation, advocacy, and community awareness.
Questions for Als Worldwide
Your first name shows with your question. Als Worldwide answers here, for everyone.
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Als worldwide, inc. Advances the most promising research and brings guidance, compassion and hope to thousands of ALS/MND patients and their loved ones in more than 150 countries. Als worldwide fills a unique niche for thousands of desperate people who have been told nothing can be done to help them.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2020 990, line by line.
Download 990
| Line | Start FY20 | End FY20 |
|---|---|---|
| Cash and savingsLn 1–2 | $23K | $64K |
| InvestmentsLn 11–13 | $163K | $0 |
| Land, buildings, equipmentLn 10c | $14K | $9K |
| Total assetsLn 16 | $229K | $76K |
| LiabilitiesLn 26 | $35K | $66K |
| Net assetsLn 32 | $195K | $10K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $146K | $111K | $20K | $15K |
| Other salaries and wagesLn 7 | $14K | $14K | ||
| Payroll taxesLn 10 | $13K | $10K | $2K | $1K |
| Accounting feesLn 11c | $2K | $240 | $2K | |
| Other fees for servicesLn 11g | $1K | $1K | $113 | |
| Advertising and promotionLn 12 | $224 | $202 | $22 | |
| Office expensesLn 13 | $4K | $4K | $624 | |
| OccupancyLn 16 | $48K | $38K | $10K | |
| TravelLn 17 | $13K | $809 | $12K | $91 |
| Depreciation, depletion and amortizationLn 22 | $4K | $3K | $446 | $332 |
| Other expenses (24a–d)Ln 24 | $4K | $4K | ||
| All other expensesLn 24e | $3K | $2K | $471 | |
| Total functional expensesLn 25 | $253K | $189K | $47K | $16K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2023 Latest | $0 | $22K | 990 PDF | ||
| FY2022 | $66K | $22K | 990 PDF | ||
| FY2021 | $118K | $83K | $35K | $46K | 990 PDF |
| FY2020 Viewing | $69K | $253K | −$184K | $10K | 990 PDF |
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Schedules filed Part IV
See the full FY2020 990 (6 parts)
Part I · Summary $68,989 revenue, 12 lines filed
Part VI · Governance 2 of 4 board members independent, 1 to look at
Part VIII · Statement of revenue $68,989 across 5 lines filed
Part IX · Statement of functional expenses $252,681 across 12 lines filed
Part X · Balance sheet $75,998 assets, 12 lines filed
Part XI · Reconciliation of net assets $10,417 net assets at year end
Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File
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