Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Nov 1970.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
78 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
17 people listed on the 990; $351K paid to officers and key staff.
Tracy Smith Hart’s $215K as Chief Executive Officer is at the 63rd percentile of top reported officer pay among 360 $1–10M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Tracy Smith Hart | $215,284 | $200,484 | $194,513 | $205,452 | $190,324 | $184,852 |
| Katherine E Carter | $135,886 | $129,557 | $123,543 | $117,319 | — | — |
| Erika Carter | — | — | — | — | $105,886 | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Improves lives for people with brittle bone disorder through research, education, and support.
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Education and Support
Adult health initiatives - the oif continues to prioritize our work to better understand the impact of oi as people age, and ways we can best serve our adult community. In addition to producing resources like the oi adult health toolkit to help our adult community manage their care, the oif partners with clinicians, researchers, and…
Research and Professional Education
Oif scientific meeting - the 24TH annual oi foundation scientific meeting was held in chicago, illinois on april 9-11, 2025. The meeting was co-chaired by DR. Ronit marom (baylor college of medicine) and DR. Roy morello (university of arkansas), both of whom are past oif michael geisman recipients.
National and Regional Conferences
National conference - the next oif national conference will be held on july 23-26, 2026, at the rosen center in orlando, florida. The rosen center has an astounding 69 ada roll-in shower sleeping rooms. Planning for the conference has begun with listening sessions for young adults to learn how the oif can best serve their unique needs.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $275K | $280K |
| InvestmentsLn 11–13 | $1.6M | $1.2M |
| Land, buildings, equipmentLn 10c | $9K | $7K |
| Total assetsLn 16 | $2.1M | $1.7M |
| LiabilitiesLn 26 | $547K | $293K |
| Net assetsLn 32 | $1.6M | $1.4M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $176K | $176K | ||
| Grants to domestic individualsLn 2 | $213K | $213K | ||
| Pay of current officers, directors and key staffLn 5 | $261K | $180K | $49K | $33K |
| Other salaries and wagesLn 7 | $893K | $607K | $170K | $116K |
| Pension plan contributionsLn 8 | $12K | $10K | $2K | $710 |
| Other employee benefitsLn 9 | $103K | $70K | $20K | $13K |
| Payroll taxesLn 10 | $73K | $52K | $11K | $11K |
| Accounting feesLn 11c | $20K | $20K | ||
| Investment management feesLn 11f | $12K | $12K | ||
| Other fees for servicesLn 11g | $75K | $72K | $2K | $1K |
| Office expensesLn 13 | $19K | $13K | $4K | $3K |
| Information technologyLn 14 | $35K | $8K | $26K | $1K |
| OccupancyLn 16 | $62K | $42K | $12K | $8K |
| TravelLn 17 | $36K | $25K | $7K | $5K |
| Conferences, conventions and meetingsLn 19 | $492K | $490K | $2K | |
| InterestLn 20 | $3K | $3K | ||
| Depreciation, depletion and amortizationLn 22 | $8K | $6K | $2K | $1K |
| InsuranceLn 23 | $9K | $5K | $801 | $3K |
| Other expenses (24a–d)Ln 24 | $86K | $43K | $35K | $8K |
| All other expensesLn 24e | $39K | $28K | $8K | $4K |
| Total functional expensesLn 25 | $2.6M | $2.0M | $384K | $206K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $2.6M | $2.6M | −$19K | $1.4M | 990 PDF |
| FY2024 | $2.3M | $2.5M | −$179K | $1.6M | 990 PDF |
| FY2023 | $2.2M | $2.1M | $129K | $1.7M | 990 PDF |
| FY2022 | $2.1M | $2.3M | −$176K | $1.5M | 990 PDF |
| FY2021 | $1.9M | $1.6M | $273K | $2.0M | 990 PDF |
| FY2020 | $1.5M | $1.6M | −$100K | $1.4M | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $2,607,851 revenue, 12 lines filed
Part VI · Governance 15 of 15 board members independent, no flags
Part VIII · Statement of revenue $2,607,851 across 13 lines filed
Part IX · Statement of functional expenses $2,627,305 across 20 lines filed
Part X · Balance sheet $1,660,457 assets, 21 lines filed
Part XI · Reconciliation of net assets $1,367,833 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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