Osteogenesis Imperfecta Foundation INC
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Improves lives for people with brittle bone disorder through research, education, and support. For fiscal year 2025 it reported $2.6M in revenue, $2.6M in expenses, and $1.4M in net assets.Pt I
Summary of the Filing
Where the work happens
Education and Support
Adult health initiatives - the oif continues to prioritize our work to better understand the impact of oi as people age, and ways we can best serve our adult community. In addition to producing resources like the oi adult health toolkit to help our adult community manage their care, the oif partners with clinicians, researchers, and…
Research and Professional Education
Oif scientific meeting - the 24TH annual oi foundation scientific meeting was held in chicago, illinois on april 9-11, 2025. The meeting was co-chaired by DR. Ronit marom (baylor college of medicine) and DR. Roy morello (university of arkansas), both of whom are past oif michael geisman recipients.
National and Regional Conferences
National conference - the next oif national conference will be held on july 23-26, 2026, at the rosen center in orlando, florida. The rosen center has an astounding 69 ada roll-in shower sleeping rooms. Planning for the conference has begun with listening sessions for young adults to learn how the oif can best serve their unique needs.
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Identity & Classification
Governance & Policies
Officers, Directors & Key Employees
Tracy Smith Hart’s $215K as Chief Executive Officer is at the 63rd percentile of top reported officer pay among 360 $1–10M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 3 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Tracy Smith Hart | $215,284 | $200,484 | $194,513 | $205,452 | $190,324 | $184,852 |
| Katherine E Carter | $135,886 | $129,557 | $123,543 | $117,319 | — | — |
| Erika Carter | — | — | — | — | $105,886 | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Statement of Revenue
Statement of Functional Expenses
Balance Sheet
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 78% | — | — |
| Overhead ratio | 15% | — | — |
| Fundraising cost ratio | 10% | — | — |
| Revenue growth | 15% | — | — |
| Investment management fee ratio | 1% | — | — |
| Accounting fee ratio | 1% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
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Filings & Schedule Manifest
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