Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Jun 1986.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
91 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
21 people listed on the 990; $688K paid to officers and key staff.
Suzanne Bruhn’s $300K as Chief Executive Officer is at the 92nd percentile of top reported officer pay among 733 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 6 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Suzanne Bruhn | $300,000 | $300,000 | $47,307 | — | — | — |
| Amy Gray | — | — | $149,038 | $269,038 | $263,267 | $259,200 |
| Jeana Sweeney | $144,515 | $140,000 | $212,500 | $125,538 | $111,681 | $105,000 |
| Katherine Forsey | $135,441 | $125,404 | $113,555 | — | — | — |
| Laurel Richardson | $108,061 | $101,520 | $102,375 | — | — | — |
| Kimberly Magee | — | $98,400 | $99,375 | $94,769 | $86,272 | $90,000 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Funding research and raising awareness to end Charcot-Marie-Tooth disease.
Questions for Charcot-Marie-Tooth Association
Your first name shows with your question. Charcot-Marie-Tooth Association answers here, for everyone.
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Cmta awards research fellowships and grants for research on charcot-marie-tooth disease. It also hosts bi-annual meetings of all researchers receiving its funding to promote knowledge exchange and synergy.
Cmta organizes and conducts support groups, conferences, a camp for children ages 10-18 with CMT at 2 U.S. Locations, and educational webinars for patients, their families and medical practitioners to share knowledge and promote awareness of charcot-marie-tooth DISEASE.CMTA also publishes a bi-monthly newsletter and other educational…
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $1.2M | $638K |
| InvestmentsLn 11–13 | $8.4M | $7.3M |
| Total assetsLn 16 | $9.5M | $8.1M |
| LiabilitiesLn 26 | $0 | $2.1M |
| Net assetsLn 32 | $9.5M | $6.1M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $2.9M | $2.9M | ||
| Grants to domestic individualsLn 2 | $29K | $29K | ||
| Grants and assistance to foreign recipientsLn 3 | $380K | $380K | ||
| Pay of current officers, directors and key staffLn 5 | $715K | $560K | $67K | $88K |
| Other salaries and wagesLn 7 | $669K | $524K | $62K | $82K |
| Pension plan contributionsLn 8 | $32K | $25K | $3K | $4K |
| Other employee benefitsLn 9 | $31K | $24K | $3K | $4K |
| Payroll taxesLn 10 | $120K | $94K | $11K | $15K |
| Legal feesLn 11b | $37K | $29K | $5K | $3K |
| Accounting feesLn 11c | $126K | $98K | $19K | $9K |
| Other fees for servicesLn 11g | $534K | $431K | $80K | $23K |
| Advertising and promotionLn 12 | $62K | $52K | $5K | $5K |
| Office expensesLn 13 | $315K | $287K | $10K | $18K |
| Information technologyLn 14 | $336K | $263K | $31K | $41K |
| Conferences, conventions and meetingsLn 19 | $159K | $111K | $43K | $5K |
| Other expenses (24a–d)Ln 24 | $878K | $833K | $167 | $45K |
| Total functional expensesLn 25 | $7.4M | $6.7M | $340K | $342K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $6.9M | $7.4M | −$492K | $6.1M | 990 PDF |
| FY2024 | $5.8M | $5.8M | −$13K | $9.5M | 990 PDF |
| FY2023 | $5.8M | $6.3M | −$530K | $9.6M | 990 PDF |
| FY2022 | $10.4M | $6.5M | $3.9M | $9.9M | 990 PDF |
| FY2021 | $5.2M | $4.8M | $330K | $6.0M | 990 PDF |
| FY2020 | $5.2M | $3.9M | $1.3M | $5.7M | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $6,864,031 revenue, 12 lines filed
Part VI · Governance 17 of 17 board members independent, no flags
Part VIII · Statement of revenue $6,864,031 across 9 lines filed
Part IX · Statement of functional expenses $7,355,825 across 16 lines filed
Part X · Balance sheet $8,112,362 assets, 13 lines filed
Part XI · Reconciliation of net assets $6,057,990 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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