Chordoma Foundation: FY2020 Nonprofit Profile & Form 990 (EIN 20-8423943)

Kenny Brighton’s $216K as Head of Phil is at the 64th percentile of top reported officer pay among 360 $1–10M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 8 named individuals · Part VII

Name	FY2024	FY2023	FY2022	FY2021	FY2020
Kenny Brighton	$216,428	$164,800	$153,136	$141,554	$130,054
Daniel Freed	$204,345	$183,188	$153,838	$138,896	—
Josh Sommer	$174,183	$148,892	$132,248	$117,540	$123,809
Joan Levy	—	—	—	—	$155,812
Sara Nick	$142,821	$123,299	$100,500	—	—
Shannon Lozinsky	$121,708	$102,804	$100,250	—	—
Lee Dolat	$112,452	—	—	—	—
Tammy Silverthorne	—	$106,717	$100,001	—	—

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

Family or business ties among officersPt VI · Ln 2No
Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Accelerates research and support for chordoma patients, aiming for a cure.

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2 programs · $1.9M · in their own filed words · FY2020

01

(research) to accelerate the development of better treatments for chordoma, the chordoma foundation initiated and funded a portfolio of research projects spanning basic, translational and clinical science, and provided a variety of vital services to the chordoma research community, including banking chordoma tumor tissue, developing and…

$1.6Mprogram expense

02

(patient services) to improve the lives of individuals affected by chordoma, the chordoma foundation helped patients and their families find accurate information about chordoma and treatment options, overcome barriers to care, and get emotional support from peers.

$325Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid

Grants received · FY2025

B&m Impact Foundation INCFY2025$50K

Total grants receivedfrom 1 funder$50K

Grants paid · 47 grants · $6.7M · 2020–2024

Greek Childrens Fund of Memorial Sloan - Kettering Cancer Center INCNY · FY2024$407,935

University of Texas MD Anderson CanFY2024$400,000

NYU Grossman School of MedicineFY2024$325,000

The Broad Institute INCMA · FY2024$299,789

StartFY2024$275,562

Cancer Research Institute INCNY · FY2024$250,000

American Association for Cancer Research FoundationPA · FY2024$138,060

The Children's Hospital of PhiladelphiaPA · FY2024$84,723

Unitemized GrantFY2024$75,568

Massachusetts Gen HospitalMA · FY2024$56,500

The Medical College of Wisconsin INCWI · FY2024$50,000

Cedars-Sinai Medical CenterCA · FY2024$50,000

Upmc Department of NeurosurgeryPA · FY2024$50,000

Redesign Science INCFY2024$15,000

Saint John's Cancer InstituteWA · FY2023$591,809

University of Texas MD Anderson CanFY2023$365,847

StartFY2023$264,276

Cancer Research Institute INCNY · FY2023$100,000

See all 47 grants →

By the numbers

The FY2020 990, line by line.

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from philanthropy.org

1The main four

Money inPt VIII

$2.5M

Ln 12

Gifts and grantsLn 1h$2.5M

Investment incomeLn 3$6K

Fees for servicesLn 2g$2K

Money outPt IX

$2.5M

Ln 25

Programscol B$1.9M

Managementcol C$216K

Fundraisingcol D$413K

Owns and owesPt X

$4.7M

net assets · Ln 32

Cash and savingsLn 1–2$5.0M

Total assetsLn 16$6.3M

LiabilitiesLn 26$1.6M

PeoplePt VI, VII

16

listed · VII A

PaidVII A3

Voting boardVI 1a14

IndependentVI 1b13

2In more detail

Revenue in detailPt VIII

Gifts and grantsLn 1h$2.5M

Government grantsLn 1e$120K

Noncash giftsLn 1g$43K

Fees for servicesLn 2g$2K

Investment incomeLn 3$6K

Total revenueLn 12$2.5M

Assets in detailPt X, end of year

CashLn 1$3.6M

SavingsLn 2$1.4M

Cash and savings togetherLn 1–2$5.0M

Land, buildings, equipmentLn 10c$25K

Other assetsLn 15$202K

Total assetsLn 16$6.3M

LiabilitiesLn 26$1.6M

Net assetsLn 32$4.7M

OperationsPt I, VI

EmployeesI 516

VolunteersI 645

Fiscal year endsHeaderDecember

Conflict-of-interest policyVI 12aYes

Whistleblower policyVI 13Yes

Records policyVI 14Yes

3Year over year

Balance sheet, start vs end of yearPt X · col A, B

Line	Start FY20	End FY20
Cash and savingsLn 1–2	$3.8M	$5.0M
Land, buildings, equipmentLn 10c	$17K	$25K
Total assetsLn 16	$7.2M	$6.3M
LiabilitiesLn 26	$2.5M	$1.6M
Net assetsLn 32	$4.7M	$4.7M

4Every line

Statement of functional expensesPt IX · every line

Line	Total	Programs	Management	Fundraising
Grants to domestic organizationsLn 1	$747K	$747K
Grants and assistance to foreign recipientsLn 3	$389K	$389K
Pay of current officers, directors and key staffLn 5	$296K	$245K	$18K	$33K
Other salaries and wagesLn 7	$508K	$230K	$63K	$215K
Pension plan contributionsLn 8	$21K	$13K	$1K	$7K
Other employee benefitsLn 9	$77K	$45K	$15K	$17K
Payroll taxesLn 10	$58K	$34K	$5K	$19K
Accounting feesLn 11c	$12K		$12K
Professional fundraising feesLn 11e	$225			$225
Other fees for servicesLn 11g	$101K	$69K	$15K	$17K
Advertising and promotionLn 12	$15K	$4K	$5K	$6K
Office expensesLn 13	$51K	$13K	$4K	$34K
Information technologyLn 14	$164K	$62K	$58K	$44K
OccupancyLn 16	$33K	$19K	$4K	$10K
TravelLn 17	$18K	$6K	$1K	$11K
Depreciation, depletion and amortizationLn 22	$8K		$8K
InsuranceLn 23	$21K	$14K	$6K	$1K
Other expenses (24a–d)Ln 24	$2K	$2K
Total functional expensesLn 25	$2.5M	$1.9M	$216K	$413K

Filing history

Year	Money in	Money out	In minus out	Net assets	Download
FY2024 Latest	$5.4M	$6.8M	−$1.5M	$7.7M	990 PDF
FY2023	$7.4M	$4.6M	$2.8M	$9.2M	990 PDF
FY2022	$4.9M	$3.1M	$1.8M	$6.2M	990 PDF
FY2021	$3.1M	$3.4M	−$286K	$4.4M	990 PDF
FY2020 Viewing	$2.5M	$2.5M	−$25K	$4.7M	990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support F · Foreign M · Noncash J · Pay O · Explanations

See the full FY2020 990 (6 parts)

Part I · Summary $2,495,845 revenue, 12 lines filed

I-8 Contributions and grantsPrior year $5,151,081$2,488,341

I-9 Program service revenuePrior year $2,512$1,775

I-10 Investment incomePrior year −$19,166$5,729

I-11 Other revenuePrior year $21,231$0

I-12 Total revenuePrior year $5,155,658$2,495,845

I-13 Grants and similar amounts paidPrior year $2,298,076$1,135,565

I-14 Benefits paid to members$0

I-15 Salaries and benefitsPrior year $873,401$959,325

I-16a Professional fundraising feesPrior year $36,000$225

I-17 Other expensesPrior year $729,744$425,570

I-18 Total expensesPrior year $3,937,221$2,520,685

I-19 Revenue less expensesPrior year $1,218,437−$24,840

Part VI · Governance 13 of 14 board members independent, no flags

VI-1a Voting members of the governing body14

VI-1b Independent voting members13

VI-2 Family or business relationship among officers or directorsNo

VI-12a Written conflict of interest policyYes

VI-13 Written whistleblower policyYes

VI-14 Document retention and destruction policyYes

VI-15a Process for setting top official's payYes

Part VIII · Statement of revenue $2,495,845 across 7 lines filed

VIII-1e Government grants$120,400

VIII-1f All other contributions, gifts and grants$2,367,941

VIII-1g Noncash contributions (included above)$42,744

VIII-1h Total contributions, gifts and grants$2,488,341

VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Excluded from tax $1,775$1,775

VIII-3 Investment incomeExcluded from tax $5,729$5,729

VIII-12 Total revenueExcluded from tax $7,504$2,495,845

Part IX · Statement of functional expenses $2,520,685 across 18 lines filed

IX-1 Grants to domestic organizationsPrograms $746,756$746,756

IX-3 Grants and assistance to foreign recipientsPrograms $388,809$388,809

IX-5 Pay of current officers, directors and key staffPrograms $245,052 · Management $18,086 · Fundraising $32,615$295,753

IX-7 Other salaries and wagesPrograms $230,175 · Management $62,575 · Fundraising $214,938$507,688

IX-8 Pension plan contributionsPrograms $13,457 · Management $1,014 · Fundraising $6,772$21,243

IX-9 Other employee benefitsPrograms $44,672 · Management $15,399 · Fundraising $16,557$76,628

IX-10 Payroll taxesPrograms $34,259 · Management $5,176 · Fundraising $18,578$58,013

IX-11c Accounting feesManagement $11,889$11,889

IX-11e Professional fundraising feesFundraising $225$225

IX-11g Other fees for servicesPrograms $69,066 · Management $14,559 · Fundraising $17,223$100,848

IX-12 Advertising and promotionPrograms $4,001 · Management $5,271 · Fundraising $6,056$15,328

IX-13 Office expensesPrograms $12,571 · Management $4,450 · Fundraising $34,202$51,223

IX-14 Information technologyPrograms $61,896 · Management $58,103 · Fundraising $43,868$163,867

IX-16 OccupancyPrograms $19,312 · Management $4,104 · Fundraising $9,794$33,210

IX-17 TravelPrograms $6,238 · Management $1,201 · Fundraising $10,804$18,243

IX-22 Depreciation, depletion and amortizationManagement $8,119$8,119

IX-23 InsurancePrograms $13,693 · Management $6,015 · Fundraising $1,061$20,769

IX-24 Other expenses (24a–d)Programs $2,074$2,074

IX-25 Total functional expensesPrograms $1,892,031 · Management $215,961 · Fundraising $412,693$2,520,685

Part X · Balance sheet $6,345,825 assets, 16 lines filed

X-1 Cash, non-interest-bearingStart of year $3,531,358$3,630,931

X-2 Savings and temporary cash investmentsStart of year $261,026$1,394,808

X-3 Pledges and grants receivableStart of year $2,701,029$1,074,179

X-4 Accounts receivableStart of year $11,782$5,384

X-9 Prepaid expenses and deferred chargesStart of year $20,989$13,820

X-10c Land, buildings and equipment, netStart of year $16,616$24,749

X-15 Other assetsStart of year $633,427$201,954

X-16 Total assetsStart of year $7,176,227$6,345,825

X-17 Accounts payable and accrued expensesStart of year $135,144$152,372

X-18 Grants payableStart of year $2,335,214$1,480,313

X-19 Deferred revenueStart of year $2,290$15,379

X-26 Total liabilitiesStart of year $2,472,648$1,648,064

X-27 Net assets without donor restrictionsStart of year $2,034,561$2,720,084

X-28 Net assets with donor restrictionsStart of year $2,669,018$1,977,677

X-32 Total net assets or fund balancesStart of year $4,703,579$4,697,761

X-33 Total liabilities and net assetsStart of year $7,176,227$6,345,825

Part XI · Reconciliation of net assets $4,697,761 net assets at year end

XI-1 Total revenue$2,495,845

XI-2 Total expenses$2,520,685

XI-3 Revenue less expenses−$24,840

XI-4 Net assets at start of year$4,703,579

XI-9 Other changes in net assets$19,022

XI-10 Net assets at end of year$4,697,761

Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File

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Chordoma Foundation FY2020 filing

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