Arthrogryposis Multiplex Congenitasupport FY2020 filing

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Provide educational resource information to amc families and the medical field to over 1000 people

Form 990 Part I, line 1, FY2020. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 20-8287870) · Dispute this line
501(c)(3) charity; gifts are tax-deductible.
39¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2020 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
The IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
The latest return is for FY2024, 2 tax years back.
IRS e-file · Filing history
Surplus or deficit
2 of 5
filings with a surplus
Average deficit $29K a year · 15% of revenue · last 5 filings
A surplus in 2 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
39%
of spending
39% of spending went to programs.
Pt IX · Ln 25 · col B
88.6 mo
of spending, in cash
88.6 months of spending in cash.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $11K
1 funder names it on their filings.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Liabilities are 0% of assets.
Pt X · Ln 26
Independent board members
10
of 10 voting members
10 of 10 voting members are independent.
Pt VI · Ln 1a–1b
Revenue
$191K
Spent
$86K
To programs
39%
Net assets
$646K
By yearFY2020–FY2024
Revenue
$191K
FY2020
Tap a bar for its year
Revenue by fiscal year
FY2020$191K
FY2021$135K
FY2022$210K
FY2023$204K
FY2024$253K
Expenses
$86K
FY2020
Tap a bar for its year
Expenses by fiscal year
FY2020$86K
FY2021$109K
FY2022$265K
FY2023$380K
FY2024$298K
Net assets
$646K
FY2020
Tap a bar for its year
Net assets by fiscal year
FY2020$646K
FY2021$673K
FY2022$617K
FY2023$441K
FY2024$396K

From the FY2020 Form 990 · see the original

You’re viewing the FY2020 filing — not the latest on file. See the latest (FY2024) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Aug 2007.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

39 cents of each dollar spent went to programs.

Program services 39% · $33K Management & general 61% · $53K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

1 person listed on the 990.

Part VII, Section A · reportable compensation
$0Pt VII · Sec A

Maria Cherjovsky’s $130K as Executive Di is at the 91st percentile of top reported officer pay among 1980 $100K–1M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 2 named individuals · Part VII

NameFY2023FY2022
Maria Cherjovsky$130,000—
Ani Samargian Mahan—$38,500

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Arthrogryposis Multiplex Congenitasupport executive salaries →

Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Offers educational resources about AMC to families and medical professionals.

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1 program · $33K · in their own filed words · FY2020
01

Provide additional resources and information to families and the medical field - annual amcsi conference in va

Form 990 Part III, line 4, FY2020. The organization’s own words, as filed with the IRS. Find it at the IRS (EIN 20-8287870) · Dispute this line
$33Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
Total grants receivedfrom 1 funder$11K
Grants paid · 13 grants · $50K · 2023–2024
Unitemized GrantFY2024$15,577
Unitemized GrantFY2024$6,500
Unitemized GrantFY2024$3,132
Unitemized GrantFY2024$2,500
Unitemized GrantFY2024$2,343
Unitemized GrantFY2024$1,100
Unitemized GrantFY2024$500
Unitemized GrantFY2023$6,631
Unitemized GrantFY2023$3,500
Unitemized GrantFY2023$2,550
Unitemized GrantFY2023$2,000
Unitemized GrantFY2023$1,781
Unitemized GrantFY2023$1,500

By the numbers

The FY2020 990, line by line.

1The main four
Money inPt VIII
$191K
Ln 12
Gifts and grantsLn 1h$191K
Investment incomeLn 3$132
Money outPt IX
$86K
Ln 25
Programscol B$33K
Managementcol C$53K
Owns and owesPt X
$646K
net assets · Ln 32
Cash and savingsLn 1–2$635K
Total assetsLn 16$646K
LiabilitiesLn 26$0
PeoplePt VI, VII
1
listed · VII A
PaidVII A0
Voting boardVI 1a10
IndependentVI 1b10
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$191K
Fundraising eventsLn 1c$26K
Investment incomeLn 3$132
Total revenueLn 12$191K
Assets in detailPt X, end of year
CashLn 1$635K
Cash and savings togetherLn 1–2$635K
Prepaid expenses and deferred chargesLn 9$11K
Total assetsLn 16$646K
LiabilitiesLn 26$0
Net assetsLn 32$646K
OperationsPt I, VI
EmployeesI 50
VolunteersI 625
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY20End FY20
Cash and savingsLn 1–2$635K
Total assetsLn 16$538K$646K
LiabilitiesLn 26$0$0
Net assetsLn 32$538K$646K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$11K$11K
Legal feesLn 11b$1K$1K
Accounting feesLn 11c$4K$4K
Advertising and promotionLn 12$270$270
Office expensesLn 13$26K$26K
Information technologyLn 14$4K$4K
TravelLn 17$107$107
Conferences, conventions and meetingsLn 19$22K$22K
InsuranceLn 23$1K$1K
Other expenses (24a–d)Ln 24$15K$15K
All other expensesLn 24e$601$601
Total functional expensesLn 25$86K$33K$53K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 LatestFiled with the IRS Dec 15, 2025 $253K$298K−$45K$396K 990 PDF
FY2023Filed with the IRS Aug 21, 2025 $204K$380K−$176K$441K 990 PDF
FY2022Filed with the IRS Feb 2, 2023 $210K$265K−$55K$617K 990 PDF
FY2021Filed with the IRS Mar 7, 2022 $135K$109K$26K$673K 990 PDF
FY2020 ViewingFiled with the IRS Feb 19, 2021 $191K$86K$105K$646K 990 PDF

Schedules filed Part IV

A · Public support I · Grants O · Explanations
See the full FY2020 990
Part I · Summary $191,448 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $223,477$191,316
I-9 Program service revenue$0
I-10 Investment income$132
I-11 Other revenuePrior year $363$0
I-12 Total revenuePrior year $223,840$191,448
I-13 Grants and similar amounts paidPrior year $11,600$10,768
I-14 Benefits paid to members$0
I-15 Salaries and benefits$0
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $88,961$75,230
I-18 Total expensesPrior year $100,561$85,998
I-19 Revenue less expensesPrior year $123,279$105,450
Part VI · Governance 10 of 10 board members independent, no flags
VI-1a Voting members of the governing body10
VI-1b Independent voting members10
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $191,448 across 6 lines filed
VIII-1a Federated campaigns$146,465
VIII-1b Membership dues$19,134
VIII-1c Fundraising events$25,717
VIII-1h Total contributions, gifts and grants$191,316
VIII-3 Investment incomeUnrelated business $132$132
VIII-12 Total revenueRelated to mission $0 · Unrelated business $132 · Excluded from tax $0$191,448
Part IX · Statement of functional expenses $85,998 across 11 lines filed
IX-1 Grants to domestic organizationsPrograms $10,768$10,768
IX-11b Legal feesManagement $1,050$1,050
IX-11c Accounting feesManagement $4,475$4,475
IX-12 Advertising and promotionManagement $270$270
IX-13 Office expensesManagement $26,137$26,137
IX-14 Information technologyManagement $3,525$3,525
IX-17 TravelManagement $107$107
IX-19 Conferences, conventions and meetingsPrograms $22,451$22,451
IX-23 InsuranceManagement $1,425$1,425
IX-24 Other expenses (24a–d)Management $15,189$15,189
IX-24e All other expensesManagement $601$601
IX-25 Total functional expensesPrograms $33,219 · Management $52,779 · Fundraising $0$85,998
Part X · Balance sheet $645,726 assets, 8 lines filed
X-1 Cash, non-interest-bearing$634,726
X-9 Prepaid expenses and deferred chargesStart of year $6,000$11,000
X-16 Total assetsStart of year $538,276$645,726
X-26 Total liabilitiesStart of year $0$0
X-27 Net assets without donor restrictionsStart of year $538,276$643,726
X-28 Net assets with donor restrictions$2,000
X-32 Total net assets or fund balancesStart of year $538,276$645,726
X-33 Total liabilities and net assetsStart of year $538,276$645,726
Part XI · Reconciliation of net assets $645,726 net assets at year end
XI-1 Total revenue$191,448
XI-2 Total expenses$85,998
XI-3 Revenue less expenses$105,450
XI-4 Net assets at start of year$538,276
XI-9 Other changes in net assets$2,000
XI-10 Net assets at end of year$645,726

Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File

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