To create and advance innovative and evidence-based programs, policies and research that prevent sudden cardiac arrest and death in children, teens and young adults.

501(c)(3) charity; gifts are tax-deductible.
88¢ of each $1 spent went to programs.
Run by 400 volunteers and 3 employees.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2025 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
3 of 6
filings with a surplus
Average surplus $4K a year · under 1% of revenue · last 6 filings
Worth a look: a surplus in 3 of the last 6 filings.
Pt I · Ln 19 · 6 filings
Spent on programs
88%
of spending
Looks good: 88% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$123K
to officers and key staff · 18% of spending
Fine: pay to officers and key staff is 18% of spending; 15% to 20%.
Pt VII · Sec A
7 mo
of spending, in cash
Looks good: 7.4 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
6
named funders · $66K
Looks good: 6 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$52K
11% of total assets
Looks good: liabilities are 11% of assets; 50% or less.
Pt X · Ln 26
Independent board members
14
of 14 voting members
Looks good: 14 of 14 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$664K
+8% vs prior year
Spent
$695K
To programs
88%
Net assets
$428K
By yearFY2020–FY2025
Revenue
$664K
FY2025▲ +8%
Tap a bar for its year
Revenue by fiscal year
FY2020$393K
FY2021$317K
FY2022$552K
FY2023$792K
FY2024$615K
FY2025$664K
Expenses
$695K
FY2025▼ -0.9%
Tap a bar for its year
Expenses by fiscal year
FY2020$373K
FY2021$333K
FY2022$482K
FY2023$725K
FY2024$701K
FY2025$695K
Net assets
$428K
FY2025▼ -7%
Tap a bar for its year
Net assets by fiscal year
FY2020$361K
FY2021$408K
FY2022$478K
FY2023$545K
FY2024$459K
FY2025$428K

From the FY2025 Form 990 (year ending June 2025) · figures checked against the IRS filing · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Sep 2005.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

88 cents of each dollar spent went to programs.

Program services 88% · $612K Management & general 9% · $59K Fundraising 3% · $24K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

15 people listed on the 990; $123K paid to officers and key staff.

Part VII, Section A · reportable compensation · most recent filed roster (FY2024); the FY2025 filing did not itemize Part VII
Imm. Past Ex
$123,459Pt VII · Sec A
$0Pt VII · Sec A
Secretary
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
Director
$0Pt VII · Sec A
Director
$0Pt VII · Sec A

Jennifer Parrado’s $123K as Imm. Past Ex is at the 81st percentile of top reported officer pay among 328 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 2 named individuals · Part VII

NameFY2025FY2024FY2023FY2022FY2021FY2020
Jennifer Parrado$123,459$121,908$121,389$110,142$82,091—
Darren Sudman————$32,098$82,712

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Prevents sudden cardiac arrest and death in young people through programs, policies, and research.

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Provided by the organization

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1 program · $612K · in their own filed words · FY2024
01

To prevent sudden cardiac arrest and death in children, teens and young adults

$612Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
See all 6 funders →
Grants paid · 1 grant · $100K · 2022–2022
Thomas Jefferson UniversityPA · FY2022$100,000

By the numbers

The FY2025 990, line by line.

1The main four
Money inPt VIII
$664K
Ln 12
Gifts and grantsLn 1h$888K
Investment incomeLn 3$14K
Money outPt IX
$695K
Ln 25
Programscol B$612K
Managementcol C$59K
Fundraisingcol D$24K
Owns and owesPt X
$428K
net assets · Ln 32
Cash and savingsLn 1–2$430K
Total assetsLn 16$480K
LiabilitiesLn 26$52K
PeoplePt VI, VII
15
listed · VII A
PaidVII A1
Voting boardVI 1a14
IndependentVI 1b14
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$888K
Noncash giftsLn 1g$270K
Fundraising eventsLn 1c$516K
Investment incomeLn 3$14K
Total revenueLn 12$664K
Assets in detailPt X, end of year
CashLn 1$104K
SavingsLn 2$326K
Cash and savings togetherLn 1–2$430K
Total assetsLn 16$480K
LiabilitiesLn 26$52K
Net assetsLn 32$428K
OperationsPt I, VI
EmployeesI 53
VolunteersI 6400
Fiscal year endsHeaderJune
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY25End FY25
Cash and savingsLn 1–2$492K$430K
Total assetsLn 16$525K$480K
LiabilitiesLn 26$66K$52K
Net assetsLn 32$459K$428K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Pay of disqualified personsLn 6$80K$64K$8K$8K
Other salaries and wagesLn 7$121K$121K
Other employee benefitsLn 9$3K$3K
Payroll taxesLn 10$18K$14K$2K$2K
Accounting feesLn 11c$43K$43K
Other fees for servicesLn 11g$2K$1K$252
Advertising and promotionLn 12$17K$14K$32$4K
Office expensesLn 13$4K$3K$702
Information technologyLn 14$33K$31K$601$1K
OccupancyLn 16$12K$10K$2K
TravelLn 17$140$66$74
Conferences, conventions and meetingsLn 19$4K$3K$512
InsuranceLn 23$8K$7K$1K
Other expenses (24a–d)Ln 24$341K$333K$450$7K
All other expensesLn 24e$8K$6K$645$1K
Total functional expensesLn 25$695K$612K$59K$24K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest Viewing $664K$695K−$31K$428K 990 PDF
FY2024 $615K$701K−$87K$459K 990 PDF
FY2023 $792K$725K$67K$545K 990 PDF
FY2022 $552K$482K$70K$478K 990 PDF
FY2021 $317K$333K−$16K$408K 990 PDF
FY2020 $393K$373K$20K$361K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support M · Noncash O · Explanations
See the full FY2025 990 (6 parts)
Part I · Summary $664,249 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $361,288$888,270
I-9 Program service revenue$0
I-10 Investment incomePrior year $21,004$13,686
I-11 Other revenuePrior year $232,517−$237,707
I-12 Total revenuePrior year $614,809$664,249
I-13 Grants and similar amounts paid$0
I-14 Benefits paid to members$0
I-15 Salaries and benefitsPrior year $262,802$222,113
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $438,536$472,919
I-18 Total expensesPrior year $701,338$695,032
I-19 Revenue less expensesPrior year −$86,529−$30,783
Part VI · Governance 14 of 14 board members independent, 1 to look at
VI-1a Voting members of the governing body14
VI-1b Independent voting members14
VI-2 Family or business relationship among officers or directorsYes
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $664,249 across 7 lines filed
VIII-1c Fundraising events$515,744
VIII-1f All other contributions, gifts and grants$372,526
VIII-1g Noncash contributions (included above)$269,508
VIII-1h Total contributions, gifts and grants$888,270
VIII-3 Investment incomeExcluded from tax $13,686$13,686
VIII-8 Net income from fundraising events−$237,707
VIII-12 Total revenueExcluded from tax $13,686$664,249
Part IX · Statement of functional expenses $695,032 across 15 lines filed
IX-6 Pay of disqualified personsPrograms $64,283 · Management $8,035 · Fundraising $8,035$80,353
IX-7 Other salaries and wagesPrograms $120,938$120,938
IX-9 Other employee benefitsPrograms $3,132$3,132
IX-10 Payroll taxesPrograms $14,044 · Management $1,823 · Fundraising $1,823$17,690
IX-11c Accounting feesManagement $43,299$43,299
IX-11g Other fees for servicesPrograms $1,427 · Management $252$1,679
IX-12 Advertising and promotionPrograms $13,595 · Management $32 · Fundraising $3,800$17,427
IX-13 Office expensesPrograms $3,164 · Management $702$3,866
IX-14 Information technologyPrograms $31,298 · Management $601 · Fundraising $1,248$33,147
IX-16 OccupancyPrograms $10,031 · Management $1,770$11,801
IX-17 TravelPrograms $66 · Management $74$140
IX-19 Conferences, conventions and meetingsPrograms $3,187 · Management $512$3,699
IX-23 InsurancePrograms $7,187 · Management $1,285$8,472
IX-24 Other expenses (24a–d)Programs $333,324 · Management $450 · Fundraising $7,329$341,103
IX-24e All other expensesPrograms $6,233 · Management $645 · Fundraising $1,408$8,286
IX-25 Total functional expensesPrograms $611,909 · Management $59,480 · Fundraising $23,643$695,032
Part X · Balance sheet $480,160 assets, 14 lines filed
X-1 Cash, non-interest-bearingStart of year $123,343$104,338
X-2 Savings and temporary cash investmentsStart of year $368,650$325,882
X-3 Pledges and grants receivable$15,000
X-4 Accounts receivable$2,500
X-9 Prepaid expenses and deferred chargesStart of year $7,575$7,440
X-14 Intangible assetsStart of year $25,000$25,000
X-16 Total assetsStart of year $524,568$480,160
X-17 Accounts payable and accrued expensesStart of year $22,122$16,884
X-19 Deferred revenueStart of year $43,735$35,348
X-26 Total liabilitiesStart of year $65,857$52,232
X-27 Net assets without donor restrictionsStart of year $401,502$375,719
X-28 Net assets with donor restrictionsStart of year $57,209$52,209
X-32 Total net assets or fund balancesStart of year $458,711$427,928
X-33 Total liabilities and net assetsStart of year $524,568$480,160
Part XI · Reconciliation of net assets $427,928 net assets at year end
XI-1 Total revenue$664,249
XI-2 Total expenses$695,032
XI-3 Revenue less expenses−$30,783
XI-4 Net assets at start of year$458,711
XI-10 Net assets at end of year$427,928

Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File

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