Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Sep 2005.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
79 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
4 people listed on the 990.
Tracy Kramer Seckler’s $13K as Director is at the 9th percentile of top reported officer pay among 329 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2022 | FY2021 | FY2020 |
|---|---|---|---|
| Laura Dalle Pazze | — | $241,853 | $231,767 |
| Tracy Kramer Seckler | $13,146 | $62,769 | $29,835 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Accelerates development of life-saving treatments for Duchenne muscular dystrophy.
Questions for Charleys Fund INC
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See schedule o
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $667K | $722K |
| InvestmentsLn 11–13 | $3.1M | $125K |
| Land, buildings, equipmentLn 10c | $601 | $282 |
| Total assetsLn 16 | $4.1M | $1.0M |
| LiabilitiesLn 26 | $179K | $106K |
| Net assetsLn 32 | $3.9M | $922K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $550K | $550K | ||
| Accounting feesLn 11c | $19K | $19K | ||
| Investment management feesLn 11f | $219 | $219 | ||
| Other fees for servicesLn 11g | $28K | $14K | $7K | $7K |
| Office expensesLn 13 | $2K | $259 | $330 | $2K |
| OccupancyLn 16 | $1K | $400 | $400 | $400 |
| TravelLn 17 | $2K | $2K | ||
| Depreciation, depletion and amortizationLn 22 | $319 | $319 | ||
| InsuranceLn 23 | $2K | $656 | $776 | $776 |
| Other expenses (24a–d)Ln 24 | $119K | $4K | $111K | $4K |
| Total functional expensesLn 25 | $724K | $571K | $139K | $14K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $628K | $492K | $137K | $1.1M | 990 PDF |
| FY2023 Viewing | $684K | $724K | −$40K | $922K | 990 PDF |
| FY2022 | $653K | $1.4M | −$794K | $3.9M | 990 PDF |
| FY2021 | $1.8M | $1.8M | −$30K | $4.7M | 990 PDF |
| FY2020 | $1.2M | $1.9M | −$720K | $4.8M | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (6 parts)
Part I · Summary $684,167 revenue, 12 lines filed
Part VI · Governance 1 of 4 board members independent, 1 to look at
Part VIII · Statement of revenue $684,167 across 6 lines filed
Part IX · Statement of functional expenses $724,013 across 10 lines filed
Part X · Balance sheet $1,028,035 assets, 15 lines filed
Part XI · Reconciliation of net assets $922,382 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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