Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Mar 2004.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
75 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Who runs it and what they're paid
18 people listed on the 990; $1.2M paid to officers and key staff.
Laura Hameed’s $243K as Executive Director is at the 74th percentile of top reported officer pay among 360 $1–10M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|
| Laura Hameed | $243,077 | — | — | — | — |
| Michael Kelly | $235,000 | $225,000 | $175,000 | — | — |
| Lianna Orlando | $213,873 | $225,000 | $196,917 | $180,875 | $174,867 |
| Heather Medlin | $198,846 | $220,141 | $156,821 | — | — |
| Kent Mora | — | $151,051 | $211,308 | — | — |
| Kathlene Balisy | $190,000 | $175,000 | $170,833 | $153,958 | — |
| Ryan Meardon | — | $183,333 | — | — | — |
| Joann Kemp | — | — | — | $175,875 | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Funds research and improves care for Duchenne muscular dystrophy patients.
This section is blank until Cure Duchenne claims this page.
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Cure duchenne was organized in 2003 with the mission to fund research necessary to find a cure for duchenne muscular dystrophy patients, and improving the care and health of duchenne muscular dystrophy patients.
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Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2022 990, line by line.
Download 990
| Line | Start FY22 | End FY22 |
|---|---|---|
| Cash and savingsLn 1–2 | $13.4M | $8.4M |
| InvestmentsLn 11–13 | $19.6M | $19.5M |
| Land, buildings, equipmentLn 10c | $0 | $16K |
| Total assetsLn 16 | $33.2M | $28.4M |
| LiabilitiesLn 26 | $310K | $311K |
| Net assetsLn 32 | $32.8M | $28.1M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $330K | $330K | ||
| Pay of current officers, directors and key staffLn 5 | $1.2M | $1.1M | $15K | $68K |
| Other salaries and wagesLn 7 | $2.2M | $1.4M | $326K | $474K |
| Other employee benefitsLn 9 | $203K | $163K | $20 | $40K |
| Payroll taxesLn 10 | $258K | $190K | $20K | $48K |
| Legal feesLn 11b | $20K | $5K | $12K | $3K |
| Accounting feesLn 11c | $46K | $13K | $29K | $3K |
| Other fees for servicesLn 11g | $243K | $160K | $17K | $65K |
| Office expensesLn 13 | $181K | $14K | $165K | $2K |
| Information technologyLn 14 | $230K | $89K | $118K | $22K |
| OccupancyLn 16 | $385K | $309K | $15K | $61K |
| TravelLn 17 | $409K | $250K | $110K | $50K |
| Depreciation, depletion and amortizationLn 22 | $4K | $4K | ||
| InsuranceLn 23 | $60K | $33K | $13K | $14K |
| Other expenses (24a–d)Ln 24 | $3.0M | $2.6M | $252K | $165K |
| All other expensesLn 24e | $264K | $109K | $105K | $50K |
| Total functional expensesLn 25 | $9.0M | $6.7M | $1.2M | $1.1M |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $3.9M | $9.2M | −$5.2M | $30.7M | 990 PDF |
| FY2023 | $7.4M | $10.2M | −$2.9M | $26.8M | 990 PDF |
| FY2022 Viewing | $5.8M | $9.0M | −$3.3M | $28.1M | 990 PDF |
| FY2021 | $5.4M | $7.6M | −$2.2M | $32.8M | 990 PDF |
| FY2020 | $5.3M | $6.0M | −$628K | $40.5M | 990 PDF |
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Schedules filed Part IV
See the full FY2022 990 (4 parts)
Part VIII · Statement of revenue $5,751,368 across 8 lines filed
Part IX · Statement of functional expenses $9,005,616 across 16 lines filed
Part X · Balance sheet $28,410,543 assets, 13 lines filed
Part XI · Reconciliation of net assets $28,099,885 net assets at year end
Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File
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