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Organization
Location
Revenue
Expenses
Assets
Program
Fundr. cost
Employees
Type
Follow
Amyotrophic Lateral Sclerosis AssnLeading the fight to cure and treat als through research, advocacy and care services.13-3271855 · FY2024
Arlington, VA
$68.6M
$82.2M
$107.2M
69%
23%
—
501(c)(3)
Families of Spinal Muscular AtrophyCure sma leads the way to a world without SPINAL MUSCULAR ATROPHY, the number one genetic cause of death for…36-3320440 · FY2024
Myotonic Dystrophy Foundation INCTo lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic…20-5014628 · FY2024
Oakland, CA
$3.7M
$3.8M
$5.8M
88%
7%
14
501(c)(3)
Dystonia Medical Research FoundationThe mission of the dmrf is to advance RESEARCH for more effective treatments and ultimately a cure for…95-3378526 · FY2024
Chicago, IL
$3.2M
$3.0M
$6.4M
80%
8%
9
501(c)(3)
Collaborative Trajectory Analysis ProjectTo advance understanding of disease progression in duchenne muscular dystrophy by fostering collaboration…93-4558784 · FY2024
Foundation to Eradicate Duchenne INCThe organization's mission is to provide research grants to fund aggressive research into treatments for…71-0874241 · FY2024
Alexandria, VA
$1.1M
$827.9K
$1.5M
79%
12%
—
501(c)(3)
Cure LbslProvide funding to rare disease research & support affected families46-2829156 · FY2024
Arlington, VA
$1.1M
$845.2K
$955.6K
100%
0%
1
501(c)(3)
Team Joseph INCOur primary mission includes funding research to find a cure or treatment for duchenne muscular dystrophy. We…80-0613664 · FY2024
W Bloomfield, MI
$1.0M
$1.4M
$1.4M
78%
9%
3
501(c)(3)
Cure Cmd INCCure CMD's mission is to bring research treatments and in the future a cure for Congenital Muscular…26-2640975 · FY2024
Lakewood, CA
$677.2K
$442.5K
$508.5K
68%
12%
5
501(c)(3)
Coalition to Cure Calpain 3To fund research to CURE or treat limb-girdle muscular dystrophy type 2a (lgmd2a/r1), a form of…90-0616879 · FY2024
Westport, CT
$646.0K
$455.7K
$202.5K
90%
1%
1
501(c)(3)
Little Hercules Foundation INCLITTLE HERCULES FOUNDATION works to improve the lives of those diagnosed with and families facing duchenne…46-1427334 · FY2024
Dublin, OH
$612.6K
$620.6K
$26.4K
75%
4%
5
501(c)(3)
Cacna1a Foundation INCTo find specific treatment options and a cure for CACNA1A patients. (See Schedule O for full mission)84-4985747 · FY2024
Norwalk, CT
$465.6K
$540.2K
$1.0M
82%
15%
1
501(c)(3)
Cruisin for a CureTo procure contribution and support to KSK Cancer center of irvine an similar organizations to raise…33-0927644 · FY2024
Mission Viejo, CA
$321.7K
$437.0K
$1.3M
51%
0%
1
501(c)(3)
Jar of HopeTo conduct fundraising programs in order to promote awareness of the disease duchenne muscular dystrophy and…46-4134019 · FY2024
Manalapan, NJ
$310.5K
$423.1K
$352.0K
83%
0%
2
501(c)(3)
Morgan Hoffmann FoundationTo lead the race to find a cure for muscular dystrophy through research and the establishment of health &…82-4228151 · FY2024
Cleveland, OH
$291.4K
$463.6K
$2.1M
11%
0%
—
501(c)(3)
Familial Dysautonomia Now FoundationTo discover new treatments and cures for patients with FAMILIAL DYSAUTONOMIA, a rare, fatal, genetic disease…26-3531031 · FY2024
Buffalo Grove, IL
$289.0K
$233.9K
$1.1M
93%
0%
—
501(c)(3)
Walking Strong INCWALKING STRONG helps duchenne families with their over-bearing medical needs that are most often not covered…47-1648097 · FY2024
West Hills, CA
$279.2K
$229.0K
$425.9K
80%
11%
1
501(c)(3)
Michaels Cause INCTo promote awareness of the disease duchenne muscular distrophy and to provide funds for additional research…45-2808761 · FY2024
Staten Island, NY
$257.6K
$248.9K
$876.6K
71%
13%
—
501(c)(3)
Coalition to Cure Chd2 INCThe Coalition to Cure CHD2 (CCC)'s mission is to improve the lives of those affected by CHD2-related…85-4057370 · FY2024
Naperville, IL
$250.1K
$162.3K
$362.8K
54%
21%
1
501(c)(3)
Spinal Cord SocietyThe SOCIETY provides funds for research directed toward the discovery of a cure for SPINAL CORD injuries.41-1358594 · FY2024
Fergus Falls, MN
$246.8K
$332.2K
$609.9K
46%
11%
3
501(c)(3)
Finns FriendsTo enhance the quality of life for the families affected by duchenne muscular dystrophy.85-0509538 · FY2024
Longview, TX
$233.1K
$207.9K
$178.9K
78%
1%
—
501(c)(3)
Cure Lgmd2i FoundationFund research for CURE of limb girdle muscular dystrophy80-0680447 · FY2024
Columbia, PA
$222.8K
$415.5K
$360.8K
95%
0%
—
501(c)(3)
Foundation to Fight H-AbcThe Foundation will support organizations that are researching a cure for H-ABC Hypomyelenation with Atrophy…81-0950905 · FY2024
Myasthenia Gravis Foundation of CaliforniaTo find a cure for Myasthenia Gravis by funding cutting edge research and providing services for Myasthenia…95-4562470 · FY2024
Los Angeles, CA
$118.9K
$58.4K
$1.4M
87%
3%
2
501(c)(3)
Spinal Muscular Atrophy Research TeamVarious activities in order to raise awareness and funds to support RESEARCH and a cure for SPINAL MUSCULAR…32-0284955 · FY2024
The Neuromuscular Disease FoundationTo promote and fund research for genetic neuromuscular disorders and diseases. Additionally, the foundation…06-1789643 · FY2024
Beverly Hills, CA
$65.4K
$352.4K
$660.3K
90%
2%
4
501(c)(3)
Heal DmdTo ignite a movement of compassion, hope and love that will defeat Duchenne Muscular Dystrophy DMD.92-2757865 · FY2025
Scottsdale, AZ
$56.3K
$5.0K
$202.8K
0%
8%
—
501(c)(3)
2,046,138
nonprofits
212,946
funders
12,515,252
grants
22,549,931
directors
214,365
service providers
549,896,012
financial lines
Public data from IRS Form 990 e-file & Business Master File. A 990 shows reported
financial activity, not measured program outcomes. Assets are from the IRS BMF and may lag the
latest filing; fundraising cost is fundraising expenses as a share of total expenses. · philanthropy.org
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