Heighten public awareness and raise funds to improve the quality of life for patients living with cystic fibrosis.

501(c)(3) charity; gifts are tax-deductible.
89¢ of each $1 spent went to programs.
$70K paid to officers and key staff.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · Pay: Part VII

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FY2020 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 5
filings with a surplus
Average surplus $137 a year · under 1% of revenue · last 5 filings
Worth a look: a surplus in 2 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
89%
of spending
Looks good: 89% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$70K
to officers and key staff · 39% of spending
Concern: pay to officers and key staff is 39% of spending; over 30%.
Pt VII · Sec A
2 mo
of spending, in cash
Fine: 2.5 months of spending in cash; 1 to 3.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $10K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$23K
62% of total assets
Fine: liabilities are 62% of assets; 50% to 65%.
Pt X · Ln 26
Independent board members
5
of 5 voting members
Looks good: 5 of 5 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$154K
Spent
$177K
To programs
89%
Net assets
$14K
By yearFY2020–FY2024
Revenue
$154K
FY2020
Tap a bar for its year
Revenue by fiscal year
FY2020$154K
FY2021$210K
FY2022$373K
FY2023$214K
FY2024$335K
Expenses
$177K
FY2020
Tap a bar for its year
Expenses by fiscal year
FY2020$177K
FY2021$148K
FY2022$331K
FY2023$259K
FY2024$369K
Net assets
$14K
FY2020
Tap a bar for its year
Net assets by fiscal year
FY2020$14K
FY2021$76K
FY2022$117K
FY2023$72K
FY2024$38K

From the FY2020 Form 990 · see the original

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You’re viewing the FY2020 filing — not the latest on file. See the latest (FY2024) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Aug 2007.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

89 cents of each dollar spent went to programs.

Program services 89% · $157K Management & general 11% · $19K Fundraising 1% · $975

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

1 person listed on the 990; $70K paid to officers and key staff.

Part VII, Section A · reportable compensation
President/Ce
$69,500Pt VII · Sec A

Emily Schaller’s $82K as President/Ce is at the 75th percentile of top reported officer pay among 1264 $100K–1M philanthropy & grantmaking nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 1 named individual · Part VII

NameFY2024FY2020
Emily Schaller$81,500$69,500

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Raises funds and awareness to improve the lives of cystic fibrosis patients.

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Provided by the organization

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2 programs · $150K · in their own filed words · FY2020
01

The organization carries on various running, biking and fitness events which it charges a fee to the participants. The most significant of these events is a half marathon in march.

$103Kprogram expense
02

The organization purchases running shoes and race registrations for people with cystic fibrosis to encourage an active lifestyle.

$47Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
Total grants receivedfrom 1 funder$10K
Grants paid · 10 grants · $190K · 2020–2024
Unitemized GrantFY2024$10,245
Unitemized GrantFY2024$10,245
Individual RecipientFY2023$22,750
Unitemized GrantFY2022$45,232
Unitemized GrantFY2022$24,625
Unitemized GrantFY2021$22,346
Unitemized GrantFY2021$6,511
Unitemized GrantFY2020$22,247
Individual RecipientFY2020$19,000
EmpowerFY2020$6,988

By the numbers

The FY2020 990, line by line.

1The main four
Money inPt VIII
$154K
Ln 12
Gifts and grantsLn 1h$91K
Other incomeLn 4–11$63K
Money outPt IX
$177K
Ln 25
Programscol B$157K
Managementcol C$19K
Fundraisingcol D$975
Owns and owesPt X
$14K
net assets · Ln 32
Cash and savingsLn 1–2$37K
Total assetsLn 16$37K
LiabilitiesLn 26$23K
PeoplePt VI, VII
1
listed · VII A
PaidVII A1
Voting boardVI 1a5
IndependentVI 1b5
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$91K
Other incomeLn 4–11$63K
Total revenueLn 12$154K
Assets in detailPt X, end of year
CashLn 1$37K
Cash and savings togetherLn 1–2$37K
Total assetsLn 16$37K
LiabilitiesLn 26$23K
Net assetsLn 32$14K
OperationsPt I, VI
EmployeesI 52
VolunteersI 625
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aNo
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY20End FY20
Cash and savingsLn 1–2$42K$37K
Total assetsLn 16$42K$37K
LiabilitiesLn 26$5K$23K
Net assetsLn 32$37K$14K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$27K$27K
Grants to domestic individualsLn 2$22K$22K
Other salaries and wagesLn 7$79K$63K$16K
Payroll taxesLn 10$6K$5K$1K
Accounting feesLn 11c$8K$7K$2K
Professional fundraising feesLn 11e$975$975
Investment management feesLn 11f$2K$2K
Other fees for servicesLn 11g$164$164
Advertising and promotionLn 12$5K$5K
Office expensesLn 13$8K$8K
OccupancyLn 16$8K$8K
TravelLn 17$5K$5K
Conferences, conventions and meetingsLn 19$1K$1K
InterestLn 20$3K$3K
InsuranceLn 23$1K$1K
Total functional expensesLn 25$177K$157K$19K$975

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest $335K$369K−$34K$38K 990 PDF
FY2023 $214K$259K−$45K$72K 990 PDF
FY2022 $373K$331K$42K$117K 990 PDF
FY2021 $210K$148K$61K$76K 990 PDF
FY2020 Viewing $154K$177K−$23K$14K 990 PDF

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Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support O · Explanations
See the full FY2020 990 (6 parts)
Part I · Summary $153,643 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $66,563$90,941
I-9 Program service revenue$0
I-10 Investment income$0
I-11 Other revenuePrior year $99,856$62,702
I-12 Total revenuePrior year $166,419$153,643
I-13 Grants and similar amounts paidPrior year $27,575$49,235
I-14 Benefits paid to members$0
I-15 Salaries and benefitsPrior year $86,586$85,113
I-16a Professional fundraising feesPrior year $3,757$975
I-17 Other expensesPrior year $36,676$41,415
I-18 Total expensesPrior year $154,594$176,738
I-19 Revenue less expensesPrior year $11,825−$23,095
Part VI · Governance 5 of 5 board members independent, 4 to look at
VI-1a Voting members of the governing body5
VI-1b Independent voting members5
VI-12a Written conflict of interest policyNo
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
Part VIII · Statement of revenue $153,643 across 4 lines filed
Lines not itemized here account for −$2,549 of total revenue; see the IRS return.
VIII-1f All other contributions, gifts and grants$90,941
VIII-1h Total contributions, gifts and grants$90,941
VIII-8 Net income from fundraising events$65,251
VIII-12 Total revenueRelated to mission −$2,549$153,643
Part IX · Statement of functional expenses $176,738 across 15 lines filed
IX-1 Grants to domestic organizationsPrograms $26,988$26,988
IX-2 Grants to domestic individualsPrograms $22,247$22,247
IX-7 Other salaries and wagesPrograms $63,252 · Management $15,813$79,065
IX-10 Payroll taxesPrograms $4,838 · Management $1,210$6,048
IX-11c Accounting feesPrograms $6,800 · Management $1,700$8,500
IX-11e Professional fundraising feesFundraising $975$975
IX-11f Investment management feesPrograms $1,808$1,808
IX-11g Other fees for servicesPrograms $164$164
IX-12 Advertising and promotionPrograms $4,598$4,598
IX-13 Office expensesPrograms $8,224$8,224
IX-16 OccupancyPrograms $8,015$8,015
IX-17 TravelPrograms $4,681$4,681
IX-19 Conferences, conventions and meetingsPrograms $1,325$1,325
IX-20 InterestPrograms $2,619$2,619
IX-23 InsurancePrograms $1,481$1,481
IX-25 Total functional expensesPrograms $157,040 · Management $18,723 · Fundraising $975$176,738
Part X · Balance sheet $37,140 assets, 6 lines filed
X-1 Cash, non-interest-bearingStart of year $42,247$37,140
X-16 Total assetsStart of year $42,247$37,140
X-25 Other liabilitiesStart of year $4,921$22,909
X-26 Total liabilitiesStart of year $4,921$22,909
X-32 Total net assets or fund balancesStart of year $37,326$14,231
X-33 Total liabilities and net assetsStart of year $42,247$37,140
Part XI · Reconciliation of net assets $14,231 net assets at year end
XI-1 Total revenue$153,643
XI-2 Total expenses$176,738
XI-3 Revenue less expenses−$23,095
XI-4 Net assets at start of year$37,326
XI-10 Net assets at end of year$14,231

Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File

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