Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2026. IRS ruling in Dec 2001.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
33 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
4 people listed on the 990; $99K paid to officers and key staff.
Susan Simon’s $16K as President is at the 44th percentile of top reported officer pay among 153 <$100K diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 4 named individuals · Part VII
| Name | FY2026 | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|---|---|
| Susan Simon | $15,845 | $23,515 | $40,260 | $37,038 | $46,523 | $35,036 |
| Dennis Simon | $10,265 | $23,519 | $30,942 | $28,364 | $41,300 | $33,465 |
| Randy Madara | — | $19,368 | $19,368 | $21,213 | $14,273 | $10,395 |
| Elizabeth Ingram-Diver | $255 | $8,775 | $8,775 | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Helps people with Hepatitis C find support and resources.
Questions for Hepatitis C Association
Your first name shows with your question. Hepatitis C Association answers here, for everyone.
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Free helpline for hepatitis c patients, their families and the public at large. The organization provides support, crisis information, and referral services to anyone who calls. (877.435.7443) WWW.HELP4HEP.ORG. Calls are answered and services provided by peer counselors all of whom have had hepatitis c.
HCV (hepatitis c virus) for patients-presentations at substance abuse clinics. The organization made presentations at 20 venues to approximately 400 patients.
Patient advocacy.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $117K | $85K |
| Total assetsLn 16 | $123K | $90K |
| LiabilitiesLn 26 | $2K | $2K |
| Net assetsLn 32 | $121K | $89K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $99K | $28K | $71K | |
| Payroll taxesLn 10 | $8K | $2K | $6K | |
| Accounting feesLn 11c | $2K | $2K | ||
| Information technologyLn 14 | $7K | $7K | ||
| OccupancyLn 16 | $4K | $4K | ||
| InsuranceLn 23 | $2K | $2K | ||
| Other expenses (24a–d)Ln 24 | $6K | $5K | $685 | |
| Total functional expensesLn 25 | $128K | $42K | $86K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2026 Latest | $4K | $45K | −$41K | $0 | 990 PDF |
| FY2025 | $46K | $101K | −$55K | $43K | 990 PDF |
| FY2024 Viewing | $96K | $128K | −$32K | $89K | 990 PDF |
| FY2023 | $96K | $125K | −$29K | $121K | 990 PDF |
| FY2022 | $137K | $147K | −$9K | $150K | 990 PDF |
| FY2021 | $262K | $151K | $111K | $159K | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $95,740 revenue, 12 lines filed
Part VI · Governance 0 of 2 board members independent, 5 to look at
Part VIII · Statement of revenue $95,740 across 3 lines filed
Part IX · Statement of functional expenses $128,054 across 7 lines filed
Part X · Balance sheet $90,204 assets, 9 lines filed
Part XI · Reconciliation of net assets $88,693 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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