Moebius Syndrome Foundation
Supports individuals with Moebius syndrome, raises awareness, and advocates for research. For fiscal year 2024 it reported $338K in revenue, $283K in expenses, and $2.0M in net assets.Pt I
- Type
- Public foundation / grantmaker · Foundations & Grantmakers
- Location
- Denver, CO
- Website
- www.moebiussyndrome.com
- Filings
- 5 on file (2020–2024)
More identity details & actions ⌄
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Summary of the Filing
Where the work happens
Provide information and support to individuals with Moebius syndrome and their families. The newsletter and biannual conference are the primary means of accomplishing this goal.
Advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
To provide college scholarships to students with Moebius Syndrome.
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Identity & Classification
Governance & Policies
Officers, Directors & Key Employees
Jennifer Whitman’s $90K as Executive Director is at the 22nd percentile of top reported officer pay among 1688 $1–10M philanthropy & grantmaking nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2024 | FY2023 | FY2022 |
|---|---|---|---|
| Jennifer Whitman | $90,018 | $91,410 | $83,350 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Statement of Revenue
Statement of Functional Expenses
Balance Sheet
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 52% | — | — |
| Overhead ratio | 42% | — | — |
| Fundraising cost ratio | 6% | — | — |
| Revenue growth | -26% | — | — |
| Investment management fee ratio | 0.7% | — | — |
| Legal fee ratio | 0.7% | — | — |
| Accounting fee ratio | 4% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Grants
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Filings & Schedule Manifest
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Sources
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