Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Jul 1999.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
91 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
23 people listed on the 990; $1.3M paid to officers and key staff.
Fernando Vieira’s $436K as CEO and Cso is at the 54th percentile of top reported officer pay among 127 $10–100M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Fernando Vieira | $436,433 | $386,901 | $320,000 | $315,125 | $274,971 | $243,145 |
| Bashar Al-Nakhala | — | — | — | — | $194,993 | $200,994 |
| Alan Gill | $194,572 | $188,954 | $182,421 | $170,654 | $170,347 | $176,211 |
| Carol Hamilton | $177,160 | $172,628 | $165,724 | $148,199 | — | — |
| Matvey Lukashev | — | — | — | $160,332 | $173,583 | $174,637 |
| Kyle R Denton | $173,063 | $158,381 | $150,194 | — | — | — |
| Theo Hatzipetros | $161,717 | $155,581 | $150,899 | $130,026 | $121,058 | $121,047 |
| Danielle Boyce | $139,506 | — | — | — | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Advance ALS research through transparent, collaborative patient involvement.
Questions for Als Therapy Development Foundation INC
Your first name shows with your question. Als Therapy Development Foundation INC answers here, for everyone.
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Als tdi combines the passion and dedication of a nonprofit organization with the entrepreneurial and scientific spirit of a biotechnology company. Our laboratory is the leading drug discovery program for als, and it bridges a critical research gap.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $4.6M | $6.6M |
| InvestmentsLn 11–13 | $13.4M | $11.4M |
| Land, buildings, equipmentLn 10c | $728K | $805K |
| Total assetsLn 16 | $23.1M | $22.3M |
| LiabilitiesLn 26 | $4.4M | $3.1M |
| Net assetsLn 32 | $18.6M | $19.3M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Pay of current officers, directors and key staffLn 5 | $478K | $430K | $48K | |
| Other salaries and wagesLn 7 | $4.5M | $4.1M | $226K | $103K |
| Pension plan contributionsLn 8 | $144K | $134K | $7K | $3K |
| Other employee benefitsLn 9 | $647K | $598K | $35K | $14K |
| Payroll taxesLn 10 | $367K | $339K | $20K | $8K |
| Legal feesLn 11b | $339K | $305K | $34K | |
| Accounting feesLn 11c | $54K | $54K | ||
| Professional fundraising feesLn 11e | $32K | $32K | ||
| Other fees for servicesLn 11g | $520K | $412K | $40K | $68K |
| Advertising and promotionLn 12 | $50K | $2K | $49K | |
| Office expensesLn 13 | $170K | $118K | $4K | $48K |
| Information technologyLn 14 | $860K | $772K | $5K | $82K |
| OccupancyLn 16 | $1.6M | $1.6M | $60K | $9K |
| Conferences, conventions and meetingsLn 19 | $146K | $44K | $11K | $91K |
| InterestLn 20 | $9K | $8K | $469 | $179 |
| Depreciation, depletion and amortizationLn 22 | $357K | $330K | $20K | $7K |
| InsuranceLn 23 | $90K | $83K | $5K | $2K |
| Other expenses (24a–d)Ln 24 | $2.8M | $2.6M | $20K | $134K |
| All other expensesLn 24e | $4K | $3K | $1K | |
| Total functional expensesLn 25 | $13.1M | $11.9M | $591K | $650K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $16.1M | $13.1M | $2.9M | $19.3M | 990 PDF |
| FY2024 | $13.4M | $12.9M | $527K | $18.6M | 990 PDF |
| FY2023 | $11.6M | $11.2M | $398K | $15.0M | 990 PDF |
| FY2022 | $11.4M | $9.8M | $1.5M | $15.2M | 990 PDF |
| FY2021 | $12.4M | $9.0M | $3.4M | $16.5M | 990 PDF |
| FY2020 | $10.2M | $9.5M | $719K | $27.2M | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $16,066,902 revenue, 12 lines filed
Part VI · Governance 17 of 18 board members independent, 1 to look at
Part VIII · Statement of revenue $16,066,902 across 9 lines filed
Part IX · Statement of functional expenses $13,127,937 across 19 lines filed
Part X · Balance sheet $22,324,694 assets, 18 lines filed
Part XI · Reconciliation of net assets $19,257,404 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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