Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Aug 2013.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Who runs it and what they're paid
6 people listed on the 990-EZ.
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Programs and updates
Funds research and raises awareness for Aspartylglucosaminuria treatments and support.
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Per FDA feedback from pre-IND meeting in 2018, we continue production of the gene therapy product that will be used in a clinical trial for AGU treatment. Largest expense for 2022 is the payment for AGA plasmid production and vector production.
AGA plasmid/AAV sequencing and other testing services
AGA drug product vector production feasibility study per proposal from August 11, 2021
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990-EZ, line by line.
Download 990
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $104K | $36K | 990 PDF | ||
| FY2023 | $74K | $26K | 990 PDF | ||
| FY2022 | $261K | $627K | −$366K | $174K | 990 PDF |
| FY2021 | $411K | $73K | $337K | $541K | 990 PDF |
| FY2020 | $78K | $203K | 990 PDF |
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Schedules filed Part IV
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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