Amyotrophic Lateral Sclerosis: Nonprofit Profile, Financials & Form 990 (EIN 94-3124732)

Revenue by fiscal year
FY2021	$2.7M
FY2023	$4.0M
FY2023	$55K

Expenses by fiscal year
FY2021	$2.5M
FY2023	$4.3M
FY2023	$1.8M

Net assets by fiscal year
FY2021	$1.0M
FY2023	$1.8M
FY2023	$0

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2023.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

100 cents of each dollar spent went to programs.

100%

Program services 100% · $1.8M Management & general 0% · $2K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

15 people listed on the 990.

Part VII, Section A · reportable compensation

Glenn Stambaugh

Chairman

$0Pt VII · Sec A

Hampton Graham

Immediate Past Chair

$0Pt VII · Sec A

Brian Chappell

Vice Chairman

$0Pt VII · Sec A

Jeff Elbert

Treasurer

$0Pt VII · Sec A

Christine Hopkins Reagan

Secretary

$0Pt VII · Sec A

Alecia Bailey

Member

$0Pt VII · Sec A

Jo-Ann Clynch

Member

$0Pt VII · Sec A

Stuart Davidson

Member

$0Pt VII · Sec A

Compensation history total reportable pay by year · 1 named individual · Part VII

Name	FY2023	FY2021
Ray Carson	$163,308	$130,000

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Amyotrophic Lateral Sclerosis executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

Family or business ties among officersPt VI · Ln 2Yes
Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Improving lives with ALS through fundraising, programs, and advocacy.

Provided by the organization

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1 program · $1.8M · in their own filed words · FY2023

01

The als association florida chapter board established 3 new restricted accounts to support new programs and services designed to help als families in florida. These programs, which will be created and managed by staff with the als association, included: (1) respite care program; (2) ramp program; and (3) panhandle clinic program.

$1.8Mprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid

Grants received · FY2024

Phillies Charities INCFY2024$10K

American Online Giving Foundation INCFY2024$9K

Total grants receivedfrom 2 funders$19K

Grants paid · 10 grants · $3.8M · 2020–2023

The Als AssociationMN · FY2023$1,829,845

The Als AssociationMN · FY2022$1,503,254

Unitemized GrantFY2022$119,938

Unitemized GrantFY2022$8,000

Unitemized GrantFY2022$1,050

The Als AssociationMN · FY2020$241,269

Unitemized GrantFY2020$55,070

The Als AssociationMN · FY2020$10,584

Unitemized GrantFY2020$5,000

Unitemized GrantFY2020$461

By the numbers

The FY2023 990, line by line.

Download 990

from philanthropy.org

1The main four

Money inPt VIII

$55K

Ln 12

Investment incomeLn 3$55K

Money outPt IX

$1.8M

Ln 25

Programscol B$1.8M

Managementcol C$2K

Owns and owesPt X

$0

net assets · Ln 32

Total assetsLn 16$0

LiabilitiesLn 26$0

PeoplePt VI, VII

15

listed · VII A

PaidVII A0

Voting boardVI 1a13

IndependentVI 1b13

2In more detail

Revenue in detailPt VIII

Investment incomeLn 3$55K

Total revenueLn 12$55K

Assets in detailPt X, end of year

CashLn 1$0

SavingsLn 2$0

InvestmentsLn 11–13$0

Land, buildings, equipmentLn 10c$0

Other assetsLn 15$0

Total assetsLn 16$0

LiabilitiesLn 26$0

Net assetsLn 32$0

OperationsPt I, VI

EmployeesI 520

VolunteersI 6325

Fiscal year endsHeaderSeptember

Conflict-of-interest policyVI 12aYes

Whistleblower policyVI 13Yes

Records policyVI 14Yes

3Year over year

Balance sheet, start vs end of yearPt X · col A, B

Line	Start FY23	End FY23
Cash and savingsLn 1–2	$1.8M	$0
InvestmentsLn 11–13		$0
Land, buildings, equipmentLn 10c		$0
Total assetsLn 16	$2.2M	$0
LiabilitiesLn 26	$402K	$0
Net assetsLn 32	$1.8M	$0

4Every line

Statement of functional expensesPt IX · every line

Line	Total	Programs	Management	Fundraising
Grants to domestic organizationsLn 1	$1.8M	$1.8M
Accounting feesLn 11c	$2K		$2K
Office expensesLn 13	$65		$65
Total functional expensesLn 25	$1.8M	$1.8M	$2K	$0

Filing history

Year	Money in	Money out	In minus out	Net assets	Download
FY2023	$4.0M	$4.3M	−$357K	$1.8M	990 PDF
FY2022	Not on file
FY2021	$2.7M	$2.5M	$206K	$1.0M	990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash

See the full FY2023 990 (6 parts)

Part I · Summary $54,725 revenue, 12 lines filed

I-8 Contributions and grantsPrior year $3,972,126$0

I-9 Program service revenuePrior year $0$0

I-10 Investment incomePrior year $252,604$54,725

I-11 Other revenuePrior year −$240,754$0

I-12 Total revenuePrior year $3,983,976$54,725

I-13 Grants and similar amounts paidPrior year $1,632,242$1,829,845

I-14 Benefits paid to membersPrior year $0$0

I-15 Salaries and benefitsPrior year $1,215,216$0

I-16a Professional fundraising feesPrior year $0$0

I-17 Other expensesPrior year $1,493,795$2,065

I-18 Total expensesPrior year $4,341,253$1,831,910

I-19 Revenue less expensesPrior year −$357,277−$1,777,185

Part VI · Governance 13 of 13 board members independent, 2 to look at

VI-1a Voting members of the governing body13

VI-1b Independent voting members13

VI-2 Family or business relationship among officers or directorsYes

VI-15a Process for setting top official's payNo

VI-12a Written conflict of interest policyYes

VI-13 Written whistleblower policyYes

VI-14 Document retention and destruction policyYes

Part VIII · Statement of revenue $54,725 across 2 lines filed

VIII-3 Investment incomeExcluded from tax $54,725$54,725

VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $54,725$54,725

Part IX · Statement of functional expenses $1,831,910 across 3 lines filed

IX-1 Grants to domestic organizationsPrograms $1,829,845$1,829,845

IX-11c Accounting feesManagement $2,000$2,000

IX-13 Office expensesManagement $65$65

IX-25 Total functional expensesPrograms $1,829,845 · Management $2,065 · Fundraising $0$1,831,910

Part X · Balance sheet $0 assets, 18 lines filed

X-1 Cash, non-interest-bearingStart of year $13,171$0

X-2 Savings and temporary cash investmentsStart of year $1,828,066$0

X-3 Pledges and grants receivableStart of year $333,333$0

X-4 Accounts receivable$0

X-8 Inventories for sale or use$0

X-9 Prepaid expenses and deferred charges$0

X-10c Land, buildings and equipment, net$0

X-11 Publicly traded securities$0

X-12 Other securities$0

X-13 Program-related investments$0

X-14 Intangible assets$0

X-15 Other assetsStart of year $4,554$0

X-16 Total assetsStart of year $2,179,124$0

X-25 Other liabilitiesStart of year $401,939$0

X-26 Total liabilitiesStart of year $401,939$0

X-27 Net assets without donor restrictionsStart of year $1,777,185$0

X-32 Total net assets or fund balancesStart of year $1,777,185$0

X-33 Total liabilities and net assetsStart of year $2,179,124$0

Part XI · Reconciliation of net assets $0 net assets at year end

XI-1 Total revenue$54,725

XI-2 Total expenses$1,831,910

XI-3 Revenue less expenses−$1,777,185

XI-4 Net assets at start of year$1,777,185

XI-9 Other changes in net assets$0

XI-10 Net assets at end of year$0

Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File

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Amyotrophic Lateral Sclerosis

Before you give

Is it real?

Where the money goes

Who runs it and what they're paid

Compensation history total reportable pay by year · 1 named individual · Part VII

Questions the 990 asks

Programs and updates

Funders

Grants

By the numbers

Filing history

Schedules filed Part IV