Collaborative Trajectory Analysis Project

To advance understanding of disease progression in duchenne muscular dystrophy by fostering collaboration among regulators, clinical experts, drug developers, and patient groups. The organization develops data-driven tools and insights to support drug development, shares findings broadly across the duchenne community, and works to accelerate clinical research and deliver improved therapies to patients sooner.

501(c)(3) charity; gifts are tax-deductible.
71¢ of each $1 spent went to programs.
$285K paid to officers and key staff.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · Pay: Part VII

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Spent on programs
71%
of spending
Fine: 71% of spending went to programs; 65% to 75%.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$285K
to officers and key staff · 27% of spending
Worth a look: pay to officers and key staff is 27% of spending; over 20%.
Pt VII · Sec A
8 mo
of spending, in cash
Looks good: 8.0 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Liabilities
$134K
14% of total assets
Looks good: liabilities are 14% of assets; 50% or less.
Pt X · Ln 26
Independent board members
10
of 10 voting members
Looks good: 10 of 10 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$1.9M
Spent
$1.1M
To programs
71%
Net assets
$818K

From the FY2024 Form 990 · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jan 2026.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

71 cents of each dollar spent went to programs.

Program services 71% · $756K Management & general 18% · $197K Fundraising 11% · $117K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

Who runs it and what they're paid

8 people listed on the 990; $285K paid to officers and key staff.

Part VII, Section A · reportable compensation
Executive Director & Co-Founder
$285,000Pt VII · Sec A
Co-Founder & Managing Principal, Analysis Group
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A

Susan Ward’s $285K as Executive Director & Co-Founder is at the 81st percentile of top reported officer pay among 360 $1–10M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

See Collaborative Trajectory Analysis Project executive salaries →

Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Fosters collaboration to advance understanding and drug development for Duchenne muscular dystrophy.

Questions for Collaborative Trajectory Analysis Project

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1 program · $756K · in their own filed words · FY2024
01

Ctap uses the scientific method to engage in research studies to precisely and verifiably characterize particular aspects of the progression of DMD, and to identify broad research principles that merit attention by the DMD scientific research community. Ctap then participates in the publication of its results to the interested public.

$756Kprogram expense

By the numbers

Org confirmed 0 of 9 linesconfirmednot yet

The FY2024 990, line by line.

1The main four
Money inPt VIII
$1.9M
Ln 12
Gifts and grantsLn 1h$1.9M
Investment incomeLn 3$9K
Money outPt IX
$1.1M
Ln 25
Programscol B$756K
Managementcol C$197K
Fundraisingcol D$117K
Owns and owesPt X
$818K
net assets · Ln 32
Cash and savingsLn 1–2$710K
Total assetsLn 16$952K
LiabilitiesLn 26$134K
PeoplePt VI, VII
8
listed · VII A
PaidVII A1
Voting boardVI 1a10
IndependentVI 1b10
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$1.9M
Investment incomeLn 3$9K
Total revenueLn 12$1.9M
Assets in detailPt X, end of year
CashLn 1$710K
Cash and savings togetherLn 1–2$710K
Total assetsLn 16$952K
LiabilitiesLn 26$134K
Net assetsLn 32$818K
OperationsPt I, VI
EmployeesI 50
VolunteersI 60
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$710K
Total assetsLn 16$0$952K
LiabilitiesLn 26$0$134K
Net assetsLn 32$0$818K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Legal feesLn 11b$20K$1K$19K
Accounting feesLn 11c$8K$8K
Other fees for servicesLn 11g$964K$724K$151K$88K
Advertising and promotionLn 12$8K$7K$860
Office expensesLn 13$271$102$15$154
OccupancyLn 16$4K$4K
TravelLn 17$54K$21K$6K$27K
Other expenses (24a–d)Ln 24$10K$2K$6K$2K
All other expensesLn 24e$755$455$255$45
Total functional expensesLn 25$1.1M$756K$197K$117K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest Viewing $1.9M$1.1M$818K$818K 990 PDF

Schedules filed Part IV

III · Programs R · Related orgs G · Fundraising L · Interested persons I · Grants A · Public support J · Pay O · Explanations
See the full FY2024 990 (6 parts)
Part I · Summary $1,887,913 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $0$1,879,167
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $0$8,746
I-11 Other revenuePrior year $0$0
I-12 Total revenuePrior year $0$1,887,913
I-13 Grants and similar amounts paidPrior year $0$0
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$0
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $0$1,069,737
I-18 Total expensesPrior year $0$1,069,737
I-19 Revenue less expensesPrior year $0$818,176
Part VI · Governance 10 of 10 board members independent, 1 to look at
VI-1a Voting members of the governing body10
VI-1b Independent voting members10
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
Part VIII · Statement of revenue $1,887,913 across 5 lines filed
VIII-1b Membership dues$724,167
VIII-1f All other contributions, gifts and grants$1,155,000
VIII-1h Total contributions, gifts and grants$1,879,167
VIII-3 Investment incomeUnrelated business $8,746$8,746
VIII-12 Total revenueRelated to mission $0 · Unrelated business $8,746 · Excluded from tax $0$1,887,913
Part IX · Statement of functional expenses $1,069,737 across 9 lines filed
IX-11b Legal feesPrograms $1,301 · Management $18,963$20,264
IX-11c Accounting feesManagement $8,480$8,480
IX-11g Other fees for servicesPrograms $723,927 · Management $151,371 · Fundraising $88,435$963,733
IX-12 Advertising and promotionPrograms $6,977 · Management $860$7,837
IX-13 Office expensesPrograms $102 · Management $15 · Fundraising $154$271
IX-16 OccupancyManagement $4,500$4,500
IX-17 TravelPrograms $21,034 · Management $6,389 · Fundraising $26,752$54,175
IX-24 Other expenses (24a–d)Programs $1,823 · Management $5,854 · Fundraising $2,045$9,722
IX-24e All other expensesPrograms $455 · Management $255 · Fundraising $45$755
IX-25 Total functional expensesPrograms $755,619 · Management $196,687 · Fundraising $117,431$1,069,737
Part X · Balance sheet $952,371 assets, 7 lines filed
X-1 Cash, non-interest-bearing$710,038
X-4 Accounts receivable$242,333
X-16 Total assetsStart of year $0$952,371
X-17 Accounts payable and accrued expenses$134,195
X-26 Total liabilitiesStart of year $0$134,195
X-32 Total net assets or fund balancesStart of year $0$818,176
X-33 Total liabilities and net assetsStart of year $0$952,371
Part XI · Reconciliation of net assets $818,176 net assets at year end
XI-1 Total revenue$1,887,913
XI-2 Total expenses$1,069,737
XI-3 Revenue less expenses$818,176
XI-4 Net assets at start of year$0
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$818,176

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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