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3q29 Foundation FY2024 filing

Tax-deductible

Woodcliff Lk, NJ501(c)(3)Since 2023Diseases & DisordersEIN 93-2052188Revenue $148K in FY2024

On file with the IRS26 Emery Ln, 07677-8307 · Woodcliff Lk, NJTax-exempt since Feb 2024Publicly supported charity — 170(b)(1)(A)(vi)

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The goals of the organization's research are to identify which genes cause dysfunction, understand the cause of chromosome 3q29 disorders, and discover treatment, prevention, and ways to improve the functionality of these genes. In addition to supporting specific research projects, the organization will work to develop a network of leading scientists and industry partners to increase transparency and facilitate shared resources creating economies of scale on all conditions of chromosome 3q29 disorders. In addition to supporting research activities, the organization also seeks to create a community among chromosome 3q29 disorder patient families. The organization believes that each is a resource for the others and only by sharing information can the greater goal of treatment be achieved. Increasing the number of participants and details on medical history should greatly increase the likelihood of treatment for all those with a chromosome 3q29 disorder. Finally, the organization is commi

501(c)(3) charity; gifts are tax-deductible.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2025
latest Form 990
Looks good: the latest return is for FY2025, 1 tax year back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 2
filings with a surplus
Average surplus $61K a year · 66% of revenue · last 2 filings
Looks good: a surplus in 2 of the last 2 filings.
Pt I · Ln 19 · 2 filings
Spent on programs
0%
of spending
Concern: 0% of spending went to programs; under 50%.
Pt IX · Ln 25 · col B
Cash reserves
32 mo
of spending, in cash
Looks good: 31.9 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
7
of 7 voting members
Looks good: 7 of 7 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$148K
Spent
$43K
To programs
0%
Net assets
$115K
By yearFY2024–FY2025
Revenue
$148K
FY2024
Tap a bar for its year
Revenue by fiscal year
FY2024$148K
FY2025$38K
Expenses
$43K
FY2024
Tap a bar for its year
Expenses by fiscal year
FY2024$43K
FY2025$20K
Net assets
$115K
FY2024
Tap a bar for its year
Net assets by fiscal year
FY2024$115K
FY2025$134K

From the FY2024 Form 990 · see the original

Form 990 (PDF) Claim
You’re viewing the FY2024 filing — not the latest on file. See the latest (FY2025) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Feb 2024.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

What each dollar paid for.

Management & general 30% · $13K Fundraising 70% · $30K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

7 people listed on the 990.

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
$0Pt VII · Sec A
Sandra Forman
President
$0Pt VII · Sec A
$0Pt VII · Sec A
Jessica Moon
Treasurer, S
$0Pt VII · Sec A
Jose Roman
Director
$0Pt VII · Sec A
Margot Sturz
Director
$0Pt VII · Sec A
See 3q29 Foundation executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Researching gene causes, treatments, and community for chromosome 3q29 disorders.

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Provided by the organization

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3 programs · in their own filed words · FY2024
01

3q29 research impact video initiative - the 3q29 research impact video initiative centers on creating professionally produced educational videos that highlight critical research on 3q29 deletion and duplication syndromes.

Pt IX · col B
02

3q29 family connection series - provides direct support and education to families affected by 3q29 deletion and duplication syndromes through structured virtual meetings. In 2024, we hosted an expert-led session featuring a prominent researcher, with 55 registered participants and 26 active attendees.

Pt IX · col B
03

Digital Education and Outreach Initiative

Maintains and enhances our comprehensive online resources about 3q29 deletion and duplication syndromes. In 2024, this initiative served over 1,300 visitors from 49 countries who engaged with educational content for an average of 2 minutes per visit.

Pt IX · col B

By the numbers

The FY2024 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$148K
Ln 12
Gifts and grantsLn 1h$145K
Investment incomeLn 3$3K
Money outPt IX
$43K
Ln 25
Managementcol C$13K
Fundraisingcol D$30K
Owns and owesPt X
$115K
net assets · Ln 32
Cash and savingsLn 1–2$115K
Total assetsLn 16$115K
LiabilitiesLn 26$0
PeoplePt VI, VII
7
listed · VII A
PaidVII A0
Voting boardVI 1a7
IndependentVI 1b7
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$145K
Fundraising eventsLn 1c$145K
Investment incomeLn 3$3K
Gains on assetsLn 7$3K
Total revenueLn 12$148K
Assets in detailPt X, end of year
CashLn 1$17K
SavingsLn 2$98K
Cash and savings togetherLn 1–2$115K
Total assetsLn 16$115K
LiabilitiesLn 26$0
Net assetsLn 32$115K
OperationsPt I, VI
EmployeesI 50
VolunteersI 610
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aNo
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$11K$115K
Total assetsLn 16$11K$115K
LiabilitiesLn 26$0$0
Net assetsLn 32$11K$115K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Legal feesLn 11b$4K$4K
Accounting feesLn 11c$1K$1K
Professional fundraising feesLn 11e$10K$10K
Other fees for servicesLn 11g$20K$20K
Advertising and promotionLn 12$294$294
Office expensesLn 13$6K$6K
TravelLn 17$1K$1K
InsuranceLn 23$555$555
Total functional expensesLn 25$43K$0$13K$30K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2025 Latest $38K$20K$18K$134K 990 PDF
FY2024 Viewing $148K$43K$104K$115K 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
See the full FY2024 990 (6 parts)
Part I · Summary $147,882 revenue, 12 lines filed
I-8 Contributions and grants$144,526
I-9 Program service revenue$0
I-10 Investment income$3,356
I-11 Other revenue$0
I-12 Total revenue$147,882
I-13 Grants and similar amounts paid$0
I-14 Benefits paid to members$0
I-15 Salaries and benefits$0
I-16a Professional fundraising fees$9,999
I-17 Other expenses$33,391
I-18 Total expenses$43,390
I-19 Revenue less expenses$104,492
Part VI · Governance 7 of 7 board members independent, 5 to look at
VI-1a Voting members of the governing body7
VI-1b Independent voting members7
VI-2 Family or business relationship among officers or directorsYes
VI-12a Written conflict of interest policyNo
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
Part VIII · Statement of revenue $147,882 across 5 lines filed
VIII-1c Fundraising events$144,526
VIII-1h Total contributions, gifts and grants$144,526
VIII-3 Investment incomeRelated to mission $599$599
VIII-7 Net gain or loss on sales of assetsRelated to mission $2,757$2,757
VIII-12 Total revenueRelated to mission $3,356$147,882
Part IX · Statement of functional expenses $43,390 across 8 lines filed
IX-11b Legal feesManagement $4,134$4,134
IX-11c Accounting feesManagement $1,323$1,323
IX-11e Professional fundraising feesFundraising $9,999$9,999
IX-11g Other fees for servicesFundraising $20,085$20,085
IX-12 Advertising and promotionFundraising $294$294
IX-13 Office expensesManagement $5,745$5,745
IX-17 TravelManagement $1,255$1,255
IX-23 InsuranceManagement $555$555
IX-25 Total functional expensesPrograms $0 · Management $13,012 · Fundraising $30,378$43,390
Part X · Balance sheet $115,283 assets, 8 lines filed
X-1 Cash, non-interest-bearingStart of year $10,791$17,380
X-2 Savings and temporary cash investments$97,903
X-16 Total assetsStart of year $10,791$115,283
X-26 Total liabilitiesStart of year $0$0
X-27 Net assets without donor restrictionsStart of year $10,791$107,380
X-28 Net assets with donor restrictions$7,903
X-32 Total net assets or fund balancesStart of year $10,791$115,283
X-33 Total liabilities and net assetsStart of year $10,791$115,283
Part XI · Reconciliation of net assets $115,283 net assets at year end
XI-1 Total revenue$147,882
XI-2 Total expenses$43,390
XI-3 Revenue less expenses$104,492
XI-4 Net assets at start of year$10,791
XI-10 Net assets at end of year$115,283

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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