Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Nov 1986.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
68 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
15 people listed on the 990; $103K paid to officers and key staff.
Cynthia Ryan’s $103K as Executive Di is at the 81st percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 | FY2021 | FY2020 |
|---|---|---|---|---|---|---|
| Cynthia Ryan | $103,083 | $100,513 | $102,262 | $93,500 | $87,856 | $86,175 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Helps vestibular patients find balance and empowerment on their recovery journey.
Questions for Vestibular Disorders Association
Your first name shows with your question. Vestibular Disorders Association answers here, for everyone.
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We launched a new and improved patient registry called the dizziness, vertigo and imbalance patient registry on the iamrare platform, managed by the national organization for rare diseases (nord).
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $603K | $440K |
| Total assetsLn 16 | $721K | $564K |
| LiabilitiesLn 26 | $3K | $164 |
| Net assetsLn 32 | $718K | $564K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $750 | $750 | ||
| Grants to domestic individualsLn 2 | $1K | $1K | ||
| Pay of current officers, directors and key staffLn 5 | $103K | $73K | $9K | $21K |
| Other salaries and wagesLn 7 | $303K | $215K | $27K | $61K |
| Pension plan contributionsLn 8 | $5K | $3K | $415 | $923 |
| Other employee benefitsLn 9 | $13K | $10K | $654 | $3K |
| Payroll taxesLn 10 | $41K | $29K | $4K | $8K |
| Accounting feesLn 11c | $23K | $23K | ||
| Other fees for servicesLn 11g | $98K | $88K | $11K | |
| Advertising and promotionLn 12 | $3K | $2K | $916 | |
| Office expensesLn 13 | $45K | $17K | $4K | $24K |
| Information technologyLn 14 | $31K | $27K | $4K | $221 |
| OccupancyLn 16 | $20K | $14K | $4K | $2K |
| TravelLn 17 | $4K | $287 | $3K | |
| InsuranceLn 23 | $3K | $2K | $514 | $524 |
| Other expenses (24a–d)Ln 24 | $14K | $14 | $8K | $6K |
| Total functional expensesLn 25 | $707K | $482K | $98K | $127K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $553K | $707K | −$154K | $564K | 990 PDF |
| FY2024 | $743K | $580K | $163K | $718K | 990 PDF |
| FY2023 | $615K | $546K | $69K | $555K | 990 PDF |
| FY2022 | $569K | $464K | $105K | $486K | 990 PDF |
| FY2021 | $525K | $454K | $71K | $381K | 990 PDF |
| FY2020 | $497K | $410K | $87K | $309K | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $552,792 revenue, 12 lines filed
Part VI · Governance 14 of 14 board members independent, 1 to look at
Part VIII · Statement of revenue $552,792 across 8 lines filed
Part IX · Statement of functional expenses $706,881 across 16 lines filed
Part X · Balance sheet $563,953 assets, 11 lines filed
Part XI · Reconciliation of net assets $563,789 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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