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Beyond Celiac FY2020 filing

Tax-deductible

Ambler, PA501(c)(3)Diseases & DisordersEIN 90-0108854

The national foundation for celiac awareness, doing business as beyond celiac, unites with patients and partners to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure. Beyond celiac envisions a world where the 1 in 5 people who are undiagnosed can restore their lives through a timely and accurate diagnosis. We believe that patients deserve options to treat this chronic autoimmune disease beyond the gluten-free diet, which has been the only treatment for celiac disease since the 1800's. Further, current research is proving that the gluten-free diet is not fully effective for most people. We aim to positively impact almost every aspect of celiac disease research by eliminating a major barrier to progress: the lack of reliable, in-depth patient information. Our aggressive research agenda advances pathways to new treatments and, one day, a cure. What we DO beyond celiac serves the 21 million americans requiring a gluten-free diet as the only current

501(c)(3) charity; gifts are tax-deductible.
79¢ of each $1 spent went to programs.
$159K paid to officers and key staff.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · Pay: Part VII

Before you give

FY2020 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
4 of 5
filings with a surplus
Average surplus $124K a year · 5% of revenue · last 5 filings
Fine: a surplus in 4 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
79%
of spending
Looks good: 79% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$159K
to officers and key staff · 9% of spending
Looks good: pay to officers and key staff is 9% of spending; 15% or less.
Pt VII · Sec A
Cash reserves
<1 mo
of spending, in cash
Worth a look: 0.9 months of spending in cash; under 1.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
1
named funder · $25K
Fine: 1 funder names it on their filings; under 3.
Funders’ Sch. I, 990-PF
Liabilities
$305K
8% of total assets
Looks good: liabilities are 8% of assets; 50% or less.
Pt X · Ln 26
Independent board members
13
of 14 voting members
Looks good: 13 of 14 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$1.8M
Spent
$1.8M
To programs
79%
Net assets
$3.5M
By yearFY2020–FY2024
Revenue
$1.8M
FY2020
Revenue by fiscal year
FY2020$1.8M
FY2021$2.5M
FY2022$2.7M
FY2023$3.1M
FY2024$3.3M
Expenses
$1.8M
FY2020
Expenses by fiscal year
FY2020$1.8M
FY2021$2.3M
FY2022$2.6M
FY2023$2.9M
FY2024$3.0M
Net assets
$3.5M
FY2020
Net assets by fiscal year
FY2020$3.5M
FY2021$4.2M
FY2022$3.5M
FY2023$3.8M
FY2024$4.8M

From the FY2020 Form 990 (year ending October 2020) · figures checked against the IRS filing · see the original

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You’re viewing the FY2020 filing — not the latest on file. See the latest (FY2024) →

Status and standing

Is it real, and can you give to it?

Tax-deductible?
Yes
Per the IRS master file.
Can I give now?
No revocation on IRS record
Not on the IRS revocation list.
Filing up to date?
Last filed FY2024 — 3 yrs ago
Legal name (IRS)Hdr · item CBeyond Celiac
EINHdr · item D90-0108854
Exempt statusHdr · item I501(c)(3) · active
Ruling yearIRS BMFJun 2003
Latest filingForm 990FY2024 · Form 990
Principal addressHdr · item CAmbler, PA
NTEE classificationIRS BMFDiseases & Disorders (G40)
WebsiteHdr · item Jwww.beyondceliac.org

Where the money goes

What each dollar paid for.

Statement of Functional Expenses

Part IX · allocated across program, management, and fundraising
Allocation · columns B–D
Program services $0.79 Management & general $0.06 Fundraising $0.15
Program services79%$1.5M
Management & general6%$113K
Fundraising15%$275K
Total functional expensesLn 25$1.8M

Finances

Money in and out, what it owns and owes

Spent on programs
79%
of spending reaches programs
Months of spending covered by cash
19.9mo
months of spending covered by cash and easy-to-sell investments
Surplus or deficit
-5%
as % of revenue, this year

Summary of the Filing

Part I · fiscal year 2020 · Form 990
Total assets
$3.8M
FY2020
Total assets by fiscal year
FY2020$3.8M
FY2021$5.0M
FY2022$4.6M
FY2023$4.6M
FY2024$5.4M
Total liabilities
$305K
FY2020
Total liabilities by fiscal year
FY2020$305K
FY2021$771K
FY2022$1.2M
FY2023$839K
FY2024$590K
Revenue less expensesPt I · Ln 19−$80K
Total assetsPt X · Ln 16$3.8M
Spent on programsPt IX · col B79%
Voting members of governing bodyPt I · Ln 314
Independent voting membersPt I · Ln 413

Balance Sheet

Part X · end of year
CashLn 1$132K
Total assetsLn 16$3.8M
Total liabilitiesLn 26$305K
Total net assetsLn 32$3.5M
Months of cash on handcomputed0.9

Statement of Revenue

Part VIII
Contributions & grants$1.0M · 59%
Other revenue$486K · 28%
Program service revenue$187K · 11%
Investment income$57K · 3%
Contributions & grants59%$1.0M
Other revenue28%$486K
Program service revenue11%$187K
Investment income3%$57K
Total revenueLn 12$1.8M

Money in detail

Form 990 · FY2020 · each figure shown with the dollars behind it
Cash and giving out
Months of spending covered by cash
Cash and easy-to-sell investments $3.1M · Operating expenses/yr $1.8M
19.9 months
Where the money goes
Program services
Program services $1.5M · Total expenses $1.8M
79%
Management & General
Management & general $113K · Total expenses $1.8M
6%
Fundraising
Fundraising $275K · Total expenses $1.8M
15%
Cost to raise $1
Fundraising expense $275K · Solicited contributions $1.0M
$0.27 to raise $1
Where the money comes from
Contribution dependence
Contributions & grants $1.0M · Total revenue $1.8M
59%
Government reliance
Government grants — · Total revenue $1.8M
—
Earned-income share
Program service revenue $187K · Total revenue $1.8M
11%
Investment reliance
Investment income $57K · Total revenue $1.8M
+3%
Program self-sufficiency
Program service revenue $187K · Total expenses $1.8M
10%
Growth & trend
Revenue change from last year
This year $1.8M · Prior year —
No prior year on file
Net assets change over the year
End of year $3.5M · Beginning of year —
Beginning net assets not meaningfully positive — showing dollar change
Balance sheet
Surplus or deficit, as % of revenue
Revenue $1.8M · Expenses $1.8M
-5%
Debts compared to what it owns
Total liabilities — · Total assets $3.8M
—
Net assets compared to what it owns
Net assets $3.5M · Total assets $3.8M
92%
Marketable Investment Share
Publicly traded securities (Pt X, ln 11) $2.9M · Other securities (Pt X, ln 12) — · Total assets (Pt X, ln 16) $3.8M
78%
People & payroll
Highest Reported Total Compensation
Individual Alice Bast · Reported title CEO · Highest reported compensation $159K · Total expenses $1.8M
9%
Personnel share
Salaries, benefits & payroll (Pt IX 5-10) $1.3M · Total expenses $1.8M
70%
Peer comparison

Same NTEE category, revenue band, and state where available. Descriptive — not a grade.

MetricThis orgPeer medianPercentile
Spent on programs 79%——
Spent on management, % of spending 6%——
Fundraising cost, % of gifts 27%——
Investment manager fees, % of assets 0.5%——
Accounting fees, % of spending 0.5%——

Straight from the Form 990 — descriptive, not an evaluation. A share is hidden when its base is zero or too small to be meaningful; the dollars are always shown.

Leadership and pay

Who runs it, and what are they paid?

Part VII, Section A · reportable compensation · most recent filed roster (FY2019); the FY2020 filing did not itemize Part VII
$158,669Pt VII · Sec A
$0Pt VII · Sec A
Gregg Melinson
Vice Chair
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A

Alice Bast’s $299K as CEO is at the 92nd percentile of top reported officer pay among 733 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 3 named individuals · Part VII

NameFY2024FY2023FY2022FY2021FY2020
Alice Bast$298,795$307,933$243,245$168,544$158,669
Salvatore Alesci—$141,404$203,596$170,144—
Mary Kate Carofano$175,239$162,249$162,599——

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

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Governance & Policies

Part VI
  • 14Voting board membersPt VI · Ln 1a
  • 13Independent board membersPt VI · Ln 1b
  • Conflict-of-interest policyPt VI · Ln 12aYes
  • Whistleblower policyPt VI · Ln 13Yes
  • Document retention policyPt VI · Ln 14Yes
  • Top official’s pay independently reviewedPt VI · Ln 15aYes
  • Family or business ties among leadersPt VI · Ln 2No

Mission and programs

What it does.

Drives diagnosis, research, and new treatments for celiac disease, aiming for a cure.

Provided by the organization

This section is blank until Beyond Celiac claims this page.

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2 program services account for $1.5M of program spending, described in the organization's own filed words · FY2019.
01

Diagnosis, Research, and Disease Management

Using a patient-centered approach and working with the beyond celiac patient and family advisory council and the beyond celiac scientific advisory council, beyond celiac addresses the unmet needs of the celiac DISEASE/GLUTEN sensitive communities, works to accelerate research, and promotes testing of family members of those who have been…

$1.4Mprogram expense
02

The great kitchens program teaches members of the restaurant and food service industry how to safely offer gluten-free options with confidence. The american culinary federation and the academy of nutrition and dietetics offers members of these societies' continuing education units (ceus) for completion of the great kitchens program.

$32Kprogram expense

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Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2025
Moca FoundationFY2025$25K
Total grants receivedfrom 1 funder$25K
Grants paid · 3 grants · $394K · 2021–2023
Mayo Clinic Hospital-RochesterMN · FY2023$100,000
Mayo Clinic Hospital-RochesterMN · FY2022$100,000
The Trustees of Columbia University in the City of New YorkNY · FY2021$194,400

Filing history

Every return on file.

YearRevenueExpensesChangeFiling
FY2024 Latest $3.3M$3.0M+7% 990 PDF
FY2023 $3.1M$2.9M+16% 990 PDF
FY2022 $2.7M$2.6M+8% 990 PDF
FY2021 $2.5M$2.3M+39% 990 PDF
FY2020 Viewing $1.8M$1.8M 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash

Full filing: Form 990 for FY2020

Every line we hold from the return, cited to its Part and line.
Part VIII · Statement of revenue $1,763,432 across 7 lines filed
VIII-1f All other contributions, gifts and grants$1,033,981
VIII-1h Total contributions, gifts and grants$1,033,981
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $186,702$186,702
VIII-3 Investment incomeExcluded from tax $56,978$56,978
VIII-8 Net income from fundraising eventsExcluded from tax $285,771$285,771
VIII-11a-d Other revenue, itemized rows (sum of 11a–11d as filed)Related to mission $200,000$200,000
VIII-12 Total revenueRelated to mission $386,702 · Excluded from tax $342,749$1,763,432
Part IX · Statement of functional expenses $1,843,715 across 17 lines filed
IX-5 Pay of current officers, directors and key staffPrograms $213,253 · Management $4,636 · Fundraising $13,908$231,797
IX-7 Other salaries and wagesPrograms $768,126 · Management $39,563 · Fundraising $108,053$915,742
IX-9 Other employee benefitsPrograms $45,048 · Management $1,418 · Fundraising $8,058$54,524
IX-10 Payroll taxesPrograms $75,158 · Management $3,026 · Fundraising $9,731$87,915
IX-11c Accounting feesPrograms $5,859 · Management $907 · Fundraising $3,134$9,900
IX-11f Investment management feesManagement $19,204$19,204
IX-11g Other fees for servicesPrograms $135,928 · Management $21,030 · Fundraising $72,701$229,659
IX-12 Advertising and promotionPrograms $5,522 · Fundraising $1,794$7,316
IX-13 Office expensesPrograms $30,707 · Management $459 · Fundraising $16,662$47,828
IX-14 Information technologyPrograms $58,333 · Management $3,589 · Fundraising $8,121$70,043
IX-16 OccupancyPrograms $11,770 · Management $3,662 · Fundraising $1,923$17,355
IX-17 TravelPrograms $11,681 · Management $1,324 · Fundraising $5,937$18,942
IX-19 Conferences, conventions and meetingsPrograms $3,301 · Management $298 · Fundraising $828$4,427
IX-22 Depreciation, depletion and amortizationPrograms $57,508 · Management $138 · Fundraising $462$58,108
IX-23 InsuranceManagement $5,450$5,450
IX-24 Other expenses (24a–d)Programs $24,225 · Management $4,249 · Fundraising $20,020$48,494
IX-24e All other expensesPrograms $8,799 · Management $4,413 · Fundraising $3,799$17,011
IX-25 Total functional expensesPrograms $1,455,218 · Management $113,366 · Fundraising $275,131$1,843,715
Part X · Balance sheet $3,765,104 assets, 14 lines filed
X-1 Cash, non-interest-bearingStart of year $176,940$132,021
X-3 Pledges and grants receivableStart of year $604,284$378,674
X-4 Accounts receivableStart of year $134,664$95,229
X-9 Prepaid expenses and deferred chargesStart of year $220,507$225,834
X-10c Land, buildings and equipment, net$2,309
X-11 Publicly traded securitiesStart of year $2,797,273$2,931,037
X-16 Total assetsStart of year $3,933,668$3,765,104
X-17 Accounts payable and accrued expensesStart of year $446,975$248,139
X-19 Deferred revenueStart of year $81,166$57,083
X-26 Total liabilitiesStart of year $528,141$305,222
X-27 Net assets without donor restrictionsStart of year $1,052,651$1,336,092
X-28 Net assets with donor restrictionsStart of year $2,352,876$2,123,790
X-32 Total net assets or fund balancesStart of year $3,405,527$3,459,882
X-33 Total liabilities and net assetsStart of year $3,933,668$3,765,104
Part XI · Reconciliation of net assets $3,459,882 net assets at year end
XI-1 Total revenue$1,763,432
XI-2 Total expenses$1,843,715
XI-3 Revenue less expenses−$80,283
XI-4 Net assets at start of year$3,405,527
XI-5 Net unrealized gains (losses) on investments$134,638
XI-10 Net assets at end of year$3,459,882

Not shown yet: ratings, outcomes, and peer benchmarks. A Form 990 doesn’t report them.

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Sources

Every figure above is drawn from these filings
Form 990 e-file (XML) · FY2020IRS
Classification, formation year, addressIRS Business Master File
Names, privacy, and removal requests More

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