Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Apr 2024.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
56 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
Something off? Claim to add context
Who runs it and what they're paid
6 people listed on the 990.
Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Making personalized medicines quickly available to rare disease patients globally.
Questions for The N 1 Collaborative INC
Your first name shows with your question. The N 1 Collaborative INC answers here, for everyone.
In 2025, the organization launched two openly accessible databases to serve patients, families, researchers, and clinicians working in the individualized medicine space. The gene registry catalogs N-OF-1 projects, assessed variants, and marketed genetic therapies, providing a centralized resource to advance awareness and…
The organization hosted its annual meeting and a series of virtual seminars in 2025, each reaching between 100 and 200 participants across the individualized medicine ecosystem including researchers, clinicians, patient advocates, industry representatives, and families of affected patients.
The organization convenes open, cross-disciplinary workgroups that bring together researchers, clinicians, and rare disease stakeholders to develop shared frameworks and consensus resources for the individualized medicine field.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $126K | $697K |
| Total assetsLn 16 | $126K | $697K |
| LiabilitiesLn 26 | $5K | $6K |
| Net assetsLn 32 | $120K | $691K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Other salaries and wagesLn 7 | $213K | $128K | $43K | $43K |
| Other employee benefitsLn 9 | $12K | $7K | $2K | $2K |
| Payroll taxesLn 10 | $16K | $9K | $3K | $3K |
| Accounting feesLn 11c | $27K | $27K | ||
| Advertising and promotionLn 12 | $22K | $22K | ||
| Office expensesLn 13 | $23K | $3K | $19K | $330 |
| Information technologyLn 14 | $264 | $264 | ||
| TravelLn 17 | $12K | $12K | ||
| Total functional expensesLn 25 | $324K | $181K | $95K | $48K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $895K | $324K | $571K | $691K | 990 PDF |
| FY2024Filed with the IRS Nov 13, 2025 | $453K | $445K | $8K | $120K | 990 PDF |
| FY2023Filed with the IRS Aug 26, 2024 | $398K | $280K | $118K | $112K | 990 PDF |
| FY2022Filed with the IRS Nov 13, 2023 | $93K | −$6K | 990 PDF |
Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $894,517 revenue, 12 lines filed
Part VI · Governance 6 of 6 board members independent, 1 to look at
Part VIII · Statement of revenue $894,517 across 3 lines filed
Part IX · Statement of functional expenses $323,892 across 8 lines filed
Part X · Balance sheet $696,918 assets, 7 lines filed
Part XI · Reconciliation of net assets $690,862 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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