Lhon Collective
Accelerate LHON cure research and improve lives of those affected. For fiscal year 2025 it reported $336K in revenue, $181K in expenses, and $260K in net assets.Pt I
- Founded
- 2022
- Type
- Public charity (501(c)(3)) · Diseases & Disorders
- Location
- San Diego, CA
- Website
- www.lhon.org
- Filings
- 3 on file (2023–2025)
More identity details & actions ⌄
This section is blank until Lhon Collective claims this page.
Know this organization? Claim it to add your story
Summary of the Filing
Where the work happens
Lhon collective worked with the milken foundation sparc to create an ongoing research in progress seminar series for researchers to discuss new and innovative scientific approaches to this rare disease and hear presentations from colleagues in the field to expand the working knowledge and collaborations for future scientific…
Lhon collective hosted an lhon conference as a part of the overall patient conference held with the united mitochondrial disease foundation. This brought 150 lhon community members together to learn about the most recent science for lhon, create community and build skills and independence for those newly vision impaired from lhon.
In partnership with carlisi creative, lhon collective developed audio-described, accessible educational video materials to scientifically explain lhon. These materials disseminate information to the community at large, including funders, the patient community and their family and friends, and to other clinician researchers to better…
Run this program? Claim this org to tell your story
Identity & Classification
Governance & Policies
Officers, Directors & Key Employees
Are you one of these people? Claim this org to confirm your role
Statement of Revenue
Statement of Functional Expenses
Balance Sheet
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 100% | — | — |
| Overhead ratio | 0.2% | — | — |
| Revenue growth | 53% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Grants
Similar Organizations
Compare
Filings & Schedule Manifest
Want to add your own materials alongside these filings? Claim this org
Sources
Names, privacy, and removal requests More
The names, titles, and compensation shown on this page are reproduced from IRS Form 990 filings, which are public records.
Philanthropy.org does not alter the content of those filings. All information appears exactly as reported by the filing organization for the tax year shown.
We publish only information contained in the public IRS filing — and less than the filing contains. Our profile pages do not display street addresses, telephone numbers, personal email addresses, or other personal contact information, even where the filing includes them.
Many people share the same name. A name shown on this page reflects only what one organization reported in one IRS filing for one tax year. It should not be interpreted as identifying any other individual with the same or a similar name.
If you are no longer affiliated with the organization, your name will generally stop appearing in future IRS filings once the organization no longer reports you. Pages for tax years in which you were reported remain published because those filings remain part of the public record.
Philanthropy.org does not alter or remove IRS filing records. Removing a page from this website would not remove the underlying IRS filing, which remains publicly available from the IRS and other publishers of the same information.
If you believe the IRS filing itself is inaccurate, corrections must be made by the filing organization or the IRS directly.
If you ARE the filing organization, claim this org and add context
Made it to the end? Claim this organization