Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Mar 2024.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
82 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
20 people listed on the 990.
Taryn Norley’s $148K as President & CEO is at the 51st percentile of top reported officer pay among 3128 $1–10M health care nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 |
|---|---|---|---|
| Taryn Norley | $147,739 | $142,530 | $134,877 |
| Taryn Norley President CEO | $129,327 | — | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Educates, assists patients, and funds research for ALS treatment.
Questions for Als Arizona
Your first name shows with your question. Als Arizona answers here, for everyone.
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The als association arizona chapter, a 501(c)(3) non-profit organization is the only statewide voluntary health organization dedicated solely to the fight against amyotrophic lateral sclerosis, providing comprehensive patient services and support to arizona's als community.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2021 990, line by line.
Download 990
| Line | Start FY21 | End FY21 |
|---|---|---|
| Cash and savingsLn 1–2 | $1.2M | $1.3M |
| Land, buildings, equipmentLn 10c | $29K | $22K |
| Total assetsLn 16 | $1.3M | $1.4M |
| LiabilitiesLn 26 | $148K | $221K |
| Net assetsLn 32 | $1.1M | $1.1M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Other salaries and wagesLn 7 | $608K | $535K | $29K | $44K |
| Accounting feesLn 11c | $33K | $33K | ||
| Lobbying feesLn 11d | $468 | $468 | ||
| Other fees for servicesLn 11g | $127K | $103K | $8K | $15K |
| Advertising and promotionLn 12 | $8K | $6K | $799 | $1K |
| Office expensesLn 13 | $31K | $23K | $5K | $3K |
| OccupancyLn 16 | $47K | $38K | $7K | $2K |
| TravelLn 17 | $12K | $11K | $637 | $727 |
| Payments to affiliatesLn 21 | $163K | $133K | $14K | $16K |
| Depreciation, depletion and amortizationLn 22 | $7K | $6K | $744 | $744 |
| InsuranceLn 23 | $4K | $3K | $380 | $380 |
| Other expenses (24a–d)Ln 24 | $118K | $96K | $2K | $20K |
| All other expensesLn 24e | $24K | $18K | $2K | $4K |
| Total functional expensesLn 25 | $1.2M | $972K | $104K | $107K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest | $1.7M | $1.6M | $21K | $1.6M | 990 PDF |
| FY2024 | $1.7M | $1.5M | $226K | $1.5M | 990 PDF |
| FY2023 | $1.4M | $1.4M | −$45K | $1.3M | 990 PDF |
| FY2022 | Not on file | ||||
| FY2021 Viewing | $1.2M | $1.2M | $10K | $1.1M | 990 PDF |
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Schedules filed Part IV
See the full FY2021 990 (6 parts)
Part I · Summary $1,192,624 revenue, 12 lines filed
Part VI · Governance 19 of 19 board members independent, no flags
Part VIII · Statement of revenue $1,192,624 across 8 lines filed
Part IX · Statement of functional expenses $1,182,888 across 13 lines filed
Part X · Balance sheet $1,362,185 assets, 14 lines filed
Part XI · Reconciliation of net assets $1,140,824 net assets at year end
Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File
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