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A Cure for Robert INC FY2022 filing

Tax-deductible

Louisville, KY501(c)(3)Health CareEIN 85-1792143Revenue $568K in FY2022

On file with the IRS508 Tiffany Ln, 40207-1426 · Louisville, KYTax-exempt since Nov 2020Publicly supported charity — 170(b)(1)(A)(vi)

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The organization is working to find a Cure or treatment for mucopolysaccharidosis type iva ("morquio") through fundraising and granting of funds to various research institutions.

501(c)(3) charity; gifts are tax-deductible.
99¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2022 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
4 of 4
filings with a surplus
Average surplus $393K a year · 64% of revenue · last 4 filings
Looks good: a surplus in 4 of the last 4 filings.
Pt I · Ln 19 · 4 filings
Spent on programs
99%
of spending
Looks good: 99% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
28 mo
of spending, in cash
Looks good: 28.1 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
8
named funders · $137K
Looks good: 8 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
7
of 7 voting members
Looks good: 7 of 7 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$568K
+21% vs prior year
Spent
$309K
To programs
99%
Net assets
$723K
By yearFY2021–FY2024
Revenue
$568K
FY2022▲ +21%
Tap a bar for its year
Revenue by fiscal year
FY2021$470K
FY2022$568K
FY2023$693K
FY2024$736K
Expenses
$309K
FY2022▲ ×59
Tap a bar for its year
Expenses by fiscal year
FY2021$5K
FY2022$309K
FY2023$198K
FY2024$382K
Net assets
$723K
FY2022▲ +56%
Tap a bar for its year
Net assets by fiscal year
FY2021$465K
FY2022$723K
FY2023$1.2M
FY2024$1.6M

From the FY2022 Form 990 · see the original

Form 990 (PDF) Claim
You’re viewing the FY2022 filing — not the latest on file. See the latest (FY2024) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Nov 2020.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

99 cents of each dollar spent went to programs.

Program services 99% · $307K Management & general 0% · $60 Fundraising 1% · $2K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

7 people listed on the 990.

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
$0Pt VII · Sec A
Lindsey Fash
Director
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Helen K Vice
Vice President
$0Pt VII · Sec A
Deana Paradis
Treasurer
$0Pt VII · Sec A
See A Cure for Robert INC executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Fundraising for research to find a cure or treatment for Morquio disease.

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Provided by the organization

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1 program · $307K · in their own filed words · FY2022
01

The organization is working to find a cure or treatment for mucopolysaccharidosis type iva ("morquio") through fundraising and granting of funds to various research institutions.

$307Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
Lift a Life Foundation INCFY2024$50K
The Lubert Family Foundation INCFY2024$25K
The Community Foundation of Louisville Depository INCFY2024$20K
Chesapeake Bay Wine Classic FoundationFY2024$20K
American Endowment FoundationFY2024$10K
The Community Foundation of Louisville INCFY2024$6K
Carol Lavin Bernick Family FoundationFY2024$3K
W L Lyons Brown FoundationFY2024$2K
Total grants receivedfrom 8 funders$137K
See all 8 funders →
Grants paid · 9 grants · $840K · 2022–2024
The Nemours FoundationFL · FY2024$167,480
St Louis UniversityMO · FY2024$150,000
University of California San FranciscoCA · FY2024$40,000
University of California San FranciscoCA · FY2023$75,000
Biostrategies LcFY2023$65,000
The Nemours FoundationFL · FY2023$40,000
St Louis UniversityMO · FY2022$148,000
The Nemours FoundationFL · FY2022$115,000
Mandalmed INCFY2022$40,000

By the numbers

The FY2022 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$568K
Ln 12
Gifts and grantsLn 1h$566K
Other incomeLn 4–11$1K
Money outPt IX
$309K
Ln 25
Programscol B$307K
Managementcol C$60
Fundraisingcol D$2K
Owns and owesPt X
$723K
net assets · Ln 32
Cash and savingsLn 1–2$723K
Total assetsLn 16$723K
LiabilitiesLn 26$0
PeoplePt VI, VII
7
listed · VII A
PaidVII A0
Voting boardVI 1a7
IndependentVI 1b7
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$566K
Noncash giftsLn 1g$62K
Fundraising eventsLn 1c$508K
Other incomeLn 4–11$1K
Total revenueLn 12$568K
Assets in detailPt X, end of year
CashLn 1$723K
Cash and savings togetherLn 1–2$723K
Total assetsLn 16$723K
LiabilitiesLn 26$0
Net assetsLn 32$723K
OperationsPt I, VI
EmployeesI 50
VolunteersI 613
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14No
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY22End FY22
Cash and savingsLn 1–2$465K$723K
Total assetsLn 16$465K$723K
LiabilitiesLn 26$0$0
Net assetsLn 32$465K$723K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$303K$303K
Professional fundraising feesLn 11e$2K$2K
Office expensesLn 13$60$60
Information technologyLn 14$4K$4K
Other expenses (24a–d)Ln 24$66$66
Total functional expensesLn 25$309K$307K$60$2K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest $736K$382K$354K$1.6M 990 PDF
FY2023 $693K$198K$495K$1.2M 990 PDF
FY2022 Viewing $568K$309K$258K$723K 990 PDF
FY2021 $470K$5K$465K$465K 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
See the full FY2022 990 (6 parts)
Part I · Summary $567,592 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $500,567$566,306
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $0$0
I-11 Other revenuePrior year −$30,715$1,286
I-12 Total revenuePrior year $469,852$567,592
I-13 Grants and similar amounts paidPrior year $0$303,000
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $0$0
I-16a Professional fundraising feesPrior year $0$2,500
I-17 Other expensesPrior year $5,207$3,629
I-18 Total expensesPrior year $5,207$309,129
I-19 Revenue less expensesPrior year $464,645$258,463
Part VI · Governance 7 of 7 board members independent, 4 to look at
VI-1a Voting members of the governing body7
VI-1b Independent voting members7
VI-2 Family or business relationship among officers or directorsYes
VI-13 Written whistleblower policyNo
VI-14 Document retention and destruction policyNo
VI-15a Process for setting top official's payNo
VI-12a Written conflict of interest policyYes
Part VIII · Statement of revenue $567,592 across 6 lines filed
VIII-1c Fundraising events$507,863
VIII-1f All other contributions, gifts and grants$58,443
VIII-1g Noncash contributions (included above)$61,815
VIII-1h Total contributions, gifts and grants$566,306
VIII-8 Net income from fundraising eventsExcluded from tax $1,286$1,286
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $1,286$567,592
Part IX · Statement of functional expenses $309,129 across 5 lines filed
IX-1 Grants to domestic organizationsPrograms $303,000$303,000
IX-11e Professional fundraising feesFundraising $2,500$2,500
IX-13 Office expensesManagement $60$60
IX-14 Information technologyPrograms $3,503$3,503
IX-24 Other expenses (24a–d)Programs $66$66
IX-25 Total functional expensesPrograms $306,569 · Management $60 · Fundraising $2,500$309,129
Part X · Balance sheet $723,108 assets, 5 lines filed
X-1 Cash, non-interest-bearingStart of year $464,645$723,108
X-16 Total assetsStart of year $464,645$723,108
X-26 Total liabilitiesStart of year $0$0
X-32 Total net assets or fund balancesStart of year $464,645$723,108
X-33 Total liabilities and net assetsStart of year $464,645$723,108
Part XI · Reconciliation of net assets $723,108 net assets at year end
XI-1 Total revenue$567,592
XI-2 Total expenses$309,129
XI-3 Revenue less expenses$258,463
XI-4 Net assets at start of year$464,645
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$723,108

Form 990 e-file (XML) FY2022 from the IRS · Classification, formation year and address from the IRS Business Master File

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