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Hae International FY2020 filing

Tax-deductible

Fairfax, VA501(c)(3)Since 2018Medical ResearchEIN 83-2498576Revenue $2.2M in FY2020

On file with the IRShaei.org10560 Main St Ste Ps40, 22030-7114 · Fairfax, VATax-exempt since Oct 2019Publicly supported charity — 170(b)(1)(A)(vi)

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A global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies for in

501(c)(3) charity; gifts are tax-deductible.
99¢ of each $1 spent went to programs.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX

Before you give

FY2020 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
5 of 5
filings with a surplus
Average surplus $1.0M a year · 24% of revenue · last 5 filings
Looks good: a surplus in 5 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
99%
of spending
Looks good: 99% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Cash reserves
18 mo
of spending, in cash
Looks good: 17.5 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Liabilities
$6K
0.2% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
8
of 8 voting members
Looks good: 8 of 8 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$2.2M
Spent
$1.7M
To programs
99%
Net assets
$2.5M
By yearFY2020–FY2024
Revenue
$2.2M
FY2020
Tap a bar for its year
Revenue by fiscal year
FY2020$2.2M
FY2021$2.7M
FY2022$3.9M
FY2023$6.0M
FY2024$6.6M
Expenses
$1.7M
FY2020
Tap a bar for its year
Expenses by fiscal year
FY2020$1.7M
FY2021$2.0M
FY2022$3.2M
FY2023$4.7M
FY2024$4.7M
Net assets
$2.5M
FY2020
Tap a bar for its year
Net assets by fiscal year
FY2020$2.5M
FY2021$3.2M
FY2022$3.8M
FY2023$5.2M
FY2024$7.1M

From the FY2020 Form 990 · figures checked against the IRS filing · see the original

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You’re viewing the FY2020 filing — not the latest on file. See the latest (FY2024) →

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Oct 2019.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

99 cents of each dollar spent went to programs.

Program services 99% · $1.7M Management & general 1% · $14K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

8 people listed on the 990.

Part VII, Section A · reportable compensation
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
$0Pt VII · Sec A
Anthony Castaldo
President & Chief Executive O
$0Pt VII · Sec A
Michael Rutkowski
Vice President
$0Pt VII · Sec A
Finoa Wardman
Treasurer
$0Pt VII · Sec A
See Hae International executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aNo

Programs and updates

Advocates for people with hereditary angioedema, improving awareness, diagnosis, and access to treatments.

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Provided by the organization

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1 program · $1.7M · in their own filed words · FY2020
01

Development of a global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies for individuals.

$1.7Mprogram expense

By the numbers

The FY2020 990, line by line.

Download 990
from philanthropy.org
1The main four
Money inPt VIII
$2.2M
Ln 12
Gifts and grantsLn 1h$1.4M
Fees for servicesLn 2g$847K
Other incomeLn 4–11$9K
Money outPt IX
$1.7M
Ln 25
Programscol B$1.7M
Managementcol C$14K
Owns and owesPt X
$2.5M
net assets · Ln 32
Cash and savingsLn 1–2$2.5M
Total assetsLn 16$2.5M
LiabilitiesLn 26$6K
PeoplePt VI, VII
8
listed · VII A
PaidVII A0
Voting boardVI 1a8
IndependentVI 1b8
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$1.4M
Fees for servicesLn 2g$847K
Investment incomeLn 3$2K
Other incomeLn 4–11$9K
Total revenueLn 12$2.2M
Assets in detailPt X, end of year
CashLn 1$2.5M
Cash and savings togetherLn 1–2$2.5M
Total assetsLn 16$2.5M
LiabilitiesLn 26$6K
Net assetsLn 32$2.5M
OperationsPt I, VI
EmployeesI 50
VolunteersI 620
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13No
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY20End FY20
Cash and savingsLn 1–2$2.0M$2.5M
Total assetsLn 16$2.0M$2.5M
LiabilitiesLn 26$16K$6K
Net assetsLn 32$2.0M$2.5M
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants and assistance to foreign recipientsLn 3$115K$115K
Legal feesLn 11b$18K$14K$4K
Accounting feesLn 11c$2K$2K
Information technologyLn 14$208K$205K$2K
TravelLn 17$19K$15K$4K
Conferences, conventions and meetingsLn 19$195K$195K
Other expenses (24a–d)Ln 24$1.0M$1.0M
All other expensesLn 24e$114K$111K$2K
Total functional expensesLn 25$1.7M$1.7M$14K$0

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest $6.6M$4.7M$1.9M$7.1M 990 PDF
FY2023 $6.0M$4.7M$1.3M$5.2M 990 PDF
FY2022 $3.9M$3.2M$671K$3.8M 990 PDF
FY2021 $2.7M$2.0M$676K$3.2M 990 PDF
FY2020 Viewing $2.2M$1.7M$525K$2.5M 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
See the full FY2020 990 (6 parts)
Part I · Summary $2,242,659 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $2,194,746$1,384,323
I-9 Program service revenuePrior year $827,741$846,837
I-10 Investment incomePrior year $14,249$2,047
I-11 Other revenue$9,452
I-12 Total revenuePrior year $3,036,736$2,242,659
I-13 Grants and similar amounts paidPrior year $80,000$114,602
I-14 Benefits paid to members$0
I-15 Salaries and benefits$0
I-16a Professional fundraising fees$0
I-17 Other expensesPrior year $2,243,656$1,603,085
I-18 Total expensesPrior year $2,323,656$1,717,687
I-19 Revenue less expensesPrior year $713,080$524,972
Part VI · Governance 8 of 8 board members independent, 2 to look at
VI-1a Voting members of the governing body8
VI-1b Independent voting members8
VI-13 Written whistleblower policyNo
VI-15a Process for setting top official's payNo
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-14 Document retention and destruction policyYes
Part VIII · Statement of revenue $2,242,659 across 6 lines filed
VIII-1f All other contributions, gifts and grants$1,384,323
VIII-1h Total contributions, gifts and grants$1,384,323
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $846,837$846,837
VIII-3 Investment incomeExcluded from tax $2,047$2,047
VIII-11a-d Other revenue, itemized rows (sum of 11a–11d as filed)Excluded from tax $9,452$9,452
VIII-12 Total revenueRelated to mission $846,837 · Unrelated business $0 · Excluded from tax $11,499$2,242,659
Part IX · Statement of functional expenses $1,717,687 across 8 lines filed
IX-3 Grants and assistance to foreign recipientsPrograms $114,602$114,602
IX-11b Legal feesPrograms $14,119 · Management $3,530$17,649
IX-11c Accounting feesManagement $2,494$2,494
IX-14 Information technologyPrograms $205,263 · Management $2,441$207,704
IX-17 TravelPrograms $14,934 · Management $3,733$18,667
IX-19 Conferences, conventions and meetingsPrograms $194,974$194,974
IX-24 Other expenses (24a–d)Programs $1,048,066$1,048,066
IX-24e All other expensesPrograms $111,269 · Management $2,262$113,531
IX-25 Total functional expensesPrograms $1,703,227 · Management $14,460 · Fundraising $0$1,717,687
Part X · Balance sheet $2,505,371 assets, 7 lines filed
X-1 Cash, non-interest-bearingStart of year $1,971,824$2,505,371
X-16 Total assetsStart of year $1,990,359$2,505,371
X-17 Accounts payable and accrued expensesStart of year $15,960$6,000
X-26 Total liabilitiesStart of year $15,960$6,000
X-27 Net assets without donor restrictionsStart of year $1,974,399$2,499,371
X-32 Total net assets or fund balancesStart of year $1,974,399$2,499,371
X-33 Total liabilities and net assetsStart of year $1,990,359$2,505,371
Part XI · Reconciliation of net assets $2,499,371 net assets at year end
XI-1 Total revenue$2,242,659
XI-2 Total expenses$1,717,687
XI-3 Revenue less expenses$524,972
XI-4 Net assets at start of year$1,974,399
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$2,499,371

Form 990 e-file (XML) FY2020 from the IRS · Classification, formation year and address from the IRS Business Master File

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