Status and standing
Is it real, and can you give to it?
Where the money goes
What each dollar paid for.
Statement of Functional Expenses
Financial health
Is it on solid ground?
Summary of the Filing
| FY2021 | Not on file |
|---|---|
| FY2022 | $377K |
| FY2023 | $591K |
| FY2024 | $632K |
| FY2021 | Not on file |
|---|---|
| FY2022 | $83K |
| FY2023 | $69K |
| FY2024 | $213K |
Balance Sheet
Statement of Revenue
Financial Metrics
Same NTEE category, revenue band, and state where available. Descriptive — not a grade.
| Metric | This org | Peer median | Percentile |
|---|---|---|---|
| Program ratio | 90% | — | — |
| Overhead ratio | 14% | — | — |
| Fundraising cost ratio | 0% | — | — |
| Revenue growth | 460% | — | — |
| Legal fee ratio | <0.01% | — | — |
| Accounting fee ratio | 0.7% | — | — |
Straight from the Form 990 — descriptive, not an evaluation. A ratio is hidden when its base is zero or too small to be meaningful; the dollars are always shown.
Leadership and pay
Who runs it, and what are they paid?
Officers, Directors & Key Employees
Terry Jo Bichell’s $67K as Executive Director is at the 8th percentile of top reported officer pay among 733 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 4 named individuals · Part VII
| Name | FY2024 | FY2023 | FY2022 | FY2021 |
|---|---|---|---|---|
| Terry Jo Bichell | $66,667 | — | — | — |
| Taylor Morris | $60,008 | $40,644 | — | — |
| Kristin Hatcher | — | $36,619 | $45,360 | — |
| Kristin Hatcher | — | — | — | $32,562 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Governance & Policies
- 13Voting board membersPt VI · Ln 1a
- 13Independent board membersPt VI · Ln 1b
- Conflict-of-interest policyPt VI · Ln 12aNo
- Whistleblower policyPt VI · Ln 13No
- Document retention policyPt VI · Ln 14No
- Top official’s pay independently reviewedPt VI · Ln 15aNo
- Family or business ties among leadersPt VI · Ln 2No
Mission and programs
What it does.
Accelerates treatments for rare neurodevelopmental disorders by pooling research and data.
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Where the work happens
Biorepository
In a 2022 strategic planning process, surveys were sent separately to the clinical advisory board (cab), scientific advisory board (sab), patient advocacy advisory board (pab) and industry advisory board (iab), and each independently prioritized biomarker studies above all other efforts.
Biorepository
In a 2022 strategic planning process, surveys were sent separately to the clinical advisory board (cab), scientific advisory board (sab), patient advocacy advisory board (pab) and industry advisory board (iab), and each independently prioritized biomarker studies above all other efforts.
Rent a Neuroscientist
To respond to the pab request for help with strategic research plans, combinedbrain hires post-doctoral fellows, and student interns. These teams staff the rent-a-brain program, which assists with the roadshow, but primarily serves as part-time scientific officers for member pags.
Rent a Neuroscientist
To respond to the pab request for help with strategic research plans, combinedbrain hires post-doctoral fellows, and student interns. These teams staff the rent-a-brain program, which assists with the roadshow, but primarily serves as part-time scientific officers for member pags.
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Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
Filing history
Every return on file.
| Year | Revenue | Expenses | Change | Filing |
|---|---|---|---|---|
| FY2024 Latest | $1.2M | $1.3M | +5% | 990 PDF |
| FY2023 | $1.1M | $880K | +55% | 990 PDF |
| FY2022 Viewing | $736K | $507K | +460% | 990 PDF |
| FY2021 | $131K | — | 990 PDF |
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Schedules filed Part IV
Not shown yet: ratings, outcomes, and peer benchmarks. A Form 990 doesn’t report them.
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Sources
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