Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Feb 2019.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
81 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
13 people listed on the 990; $36K paid to officers and key staff.
Rachel Higgins’s $36K as Secretary/PR is at the 23rd percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 1 named individual · Part VII
| Name | FY2024 | FY2023 |
|---|---|---|
| Rachel Higgins | $36,000 | $18,000 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Raises funds to battle childhood cancer and support other beloved causes.
Questions for Carsonstrong Foundation
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Gift of time together program aims to relieve the stress of ongoing treatments, offer a mental diversion, and foster stronger family bonds. The memories made during these experiences serve as sources of comfort, laughter, and joy throughout the challenging cancer journey.
Augment therapy is reality exercise program designed to monitor and motivate pediatric patients by transforming physical therapy tasks into immersive, game-like experiences. It encourages children to engage in balance, endurance, and strength exercises within a virtual world that tracks their movements and rewards progress.
The carson higgins memorial scholarship program honors carson's spirit by recognizing revere high school seniors who exemplify his qualities. It provides post-secondary financial support to help awardees pursue higher education.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2024 990, line by line.
Download 990
| Line | Start FY24 | End FY24 |
|---|---|---|
| Cash and savingsLn 1–2 | $416K | $748K |
| Total assetsLn 16 | $416K | $748K |
| LiabilitiesLn 26 | $0 | $3K |
| Net assetsLn 32 | $416K | $745K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $29K | $29K | ||
| Legal feesLn 11b | $2K | $2K | ||
| Accounting feesLn 11c | $2K | $2K | ||
| Other fees for servicesLn 11g | $72K | $48K | $24K | |
| Advertising and promotionLn 12 | $9K | $9K | ||
| Office expensesLn 13 | $4K | $600 | $3K | |
| Information technologyLn 14 | $1K | $1K | ||
| OccupancyLn 16 | $4K | $4K | ||
| InsuranceLn 23 | $1K | $1K | ||
| Other expenses (24a–d)Ln 24 | $178K | $165K | $13K | |
| All other expensesLn 24e | $3K | $611 | $2K | |
| Total functional expensesLn 25 | $306K | $249K | $20K | $37K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest Viewing | $638K | $306K | $332K | $745K | 990 PDF |
| FY2023 | $301K | $208K | $93K | $416K | 990 PDF |
| FY2022 | $259K | $124K | $136K | $324K | 990 PDF |
| FY2021 | $163K | $161K | $2K | $188K | 990 PDF |
| FY2020 | $67K | $186K | 990 PDF |
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Schedules filed Part IV
See the full FY2024 990 (6 parts)
Part I · Summary $637,507 revenue, 12 lines filed
Part VI · Governance 11 of 12 board members independent, 4 to look at
Part VIII · Statement of revenue $637,507 across 6 lines filed
Part IX · Statement of functional expenses $305,879 across 11 lines filed
Part X · Balance sheet $747,987 assets, 7 lines filed
Part XI · Reconciliation of net assets $745,302 net assets at year end
Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File
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