Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2025. IRS ruling in Jan 2020.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
80 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
17 people listed on the 990; $1.8M paid to officers and key staff.
Christopher Dowd’s $412K as Deputy Dir., Business Development is at the 94th percentile of top reported officer pay among 363 $1–10M science & technology nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 8 named individuals · Part VII
| Name | FY2025 | FY2024 | FY2023 | FY2022 |
|---|---|---|---|---|
| Christopher Dowd | $412,041 | $238,962 | — | — |
| Kathleen Torres | $398,919 | — | — | — |
| Kathleen Hewitt | — | $377,856 | $364,349 | $313,979 |
| Matthew Gertzog | $324,492 | $299,209 | $284,557 | $266,900 |
| Michelle Walser | $278,287 | $225,294 | $213,178 | $204,956 |
| Nicole Mortier | — | — | $258,020 | — |
| Robert Plovnick Chief Medical | — | $237,160 | — | — |
| Robert Plovnick | — | — | $226,329 | $205,998 |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Collects and shares data on blood conditions like multiple myeloma and sickle cell disease to advance scientific research and discovery.
Questions for Ash Registry INC
Your first name shows with your question. Ash Registry INC answers here, for everyone.
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The ash RC data hub was created to facilitate the sharing of data on benign and malignant hematologic conditions in support of scientific inquiry and discovery. As a major initiative within ash RC, the data hub aims to create the largest shared information resource within the global hematology community.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2025 990, line by line.
Download 990
| Line | Start FY25 | End FY25 |
|---|---|---|
| Cash and savingsLn 1–2 | $516K | $472K |
| Land, buildings, equipmentLn 10c | $121K | $60K |
| Total assetsLn 16 | $2.5M | $3.9M |
| LiabilitiesLn 26 | $45.0M | $51.6M |
| Net assetsLn 32 | −$42.5M | −$47.6M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $730K | $730K | ||
| Pay of current officers, directors and key staffLn 5 | $352K | $316K | $35K | |
| Other salaries and wagesLn 7 | $2.1M | $1.4M | $689K | |
| Pension plan contributionsLn 8 | $186K | $126K | $59K | |
| Other employee benefitsLn 9 | $272K | $187K | $85K | |
| Payroll taxesLn 10 | $181K | $126K | $54K | |
| Legal feesLn 11b | $66K | $65K | $102 | |
| Other fees for servicesLn 11g | $4.0M | $4.0M | $7K | |
| Advertising and promotionLn 12 | $89K | $89K | ||
| Office expensesLn 13 | $5K | $3K | $2K | |
| TravelLn 17 | $48K | $27K | $21K | |
| Conferences, conventions and meetingsLn 19 | $53K | $30K | $24K | |
| Depreciation, depletion and amortizationLn 22 | $61K | $61K | ||
| InsuranceLn 23 | $311K | $311K | ||
| Other expenses (24a–d)Ln 24 | $1.6M | $605K | $980K | |
| All other expensesLn 24e | $24K | $1K | $22K | |
| Total functional expensesLn 25 | $10.0M | $8.0M | $2.0M | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2025 Latest Viewing | $5.0M | $10.0M | −$5.1M | −$47.6M | 990 PDF |
| FY2024 | $3.0M | $9.7M | −$6.7M | −$42.5M | 990 PDF |
| FY2023 | $3.2M | $11.1M | −$7.8M | −$35.8M | 990 PDF |
| FY2022 | $1.0M | $10.1M | −$9.1M | −$28.0M | 990 PDF |
| FY2021 | $1.1M | $7.4M | −$6.3M | −$18.9M | 990 PDF |
| FY2020 | $0 | $8.5M | −$8.5M | −$12.7M | 990 PDF |
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Schedules filed Part IV
See the full FY2025 990 (6 parts)
Part I · Summary $4,973,130 revenue, 12 lines filed
Part VI · Governance 11 of 11 board members independent, 1 to look at
Part VIII · Statement of revenue $4,973,130 across 5 lines filed
Part IX · Statement of functional expenses $10,038,615 across 16 lines filed
Part X · Balance sheet $3,937,364 assets, 12 lines filed
Part XI · Reconciliation of net assets −$47,613,361 net assets at year end
Form 990 e-file (XML) FY2025 from the IRS · Classification, formation year and address from the IRS Business Master File
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