Tango2 Research Foundation Incorporated

Tax-deductible

Hadlyme, CT501(c)(3)Medical ResearchEIN 82-3667557Revenue $604K in FY2024

On file with the IRStango2research.orgPo Box 43, 06439-0043 · Hadlyme, CTTax-exempt since Sep 2018Publicly supported charity — 170(b)(1)(A)(vi)

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Our mission is to lead the way in finding a cure for TANGO2 related disease. We will do this by helping to fund, coordinate and guide scientific research that leads to a better understanding of how TANGO2 mutations affect people at the most basic cellular and biochemical pathway levels.

501(c)(3) charity; gifts are tax-deductible.
89¢ of each $1 spent went to programs.
Run by 15 volunteers and 1 employee.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
2 of 5
filings with a surplus
Average surplus $70K a year · 15% of revenue · last 5 filings
Worth a look: a surplus in 2 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
89%
of spending
Looks good: 89% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$216K
to officers and key staff · 35% of spending
Top officer’s pay higher than 67% of similar orgs
Concern: pay to officers and key staff is 35% of spending; over 30%.
Pt VII · Sec A
Cash reserves
12 mo
of spending, in cash
Looks good: 11.5 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
8
named funders · $791K
Looks good: 8 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$0
0% of total assets
Looks good: liabilities are 0% of assets; 50% or less.
Pt X · Ln 26
Independent board members
9
of 9 voting members
Looks good: 9 of 9 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$604K
+128% vs prior year
Spent
$626K
To programs
89%
Net assets
$600K
By yearFY2020–FY2024
Revenue
$604K
FY2024▲ +128%
Tap a bar for its year
Revenue by fiscal year
FY2020$658K
FY2021$348K
FY2022$452K
FY2023$265K
FY2024$604K
Expenses
$626K
FY2024▲ +53%
Tap a bar for its year
Expenses by fiscal year
FY2020$179K
FY2021$288K
FY2022$474K
FY2023$410K
FY2024$626K
Net assets
$600K
FY2024▼ -4%
Tap a bar for its year
Net assets by fiscal year
FY2020$728K
FY2021$789K
FY2022$767K
FY2023$623K
FY2024$600K

From the FY2024 Form 990 · see the original

Give Claim

Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Sep 2018.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

89 cents of each dollar spent went to programs.

Program services 89% · $555K Management & general 7% · $44K Fundraising 4% · $27K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

7 people listed on the 990; $216K paid to officers and key staff.

Part VII, Section A · reportable compensation
Executive Director
$96,750Pt VII · Sec A
Research Engagement Director
$87,292Pt VII · Sec A
Operations Manager
$32,083Pt VII · Sec A
Treasurer
$0Pt VII · Sec A
Secretary
$0Pt VII · Sec A
$0Pt VII · Sec A
Vice President
$0Pt VII · Sec A

Ann Geffen’s $97K as Executive Director is at the 67th percentile of top reported officer pay among 328 $100K–1M medical research nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 3 named individuals · Part VII

NameFY2024FY2023FY2022FY2021FY2020
Ann Geffen$96,750$93,085$83,835$79,010$37,319
Deena Chisholm$87,292$84,500$38,205——
Destiny Braden$32,083————

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Tango2 Research Foundation Incorporated executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2No
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Fund and guide research to find a cure for TANGO2 related disease.

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Provided by the organization

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3 programs · $270K · in their own filed words · FY2024
01

Grant Cycle #3 closeout funding + Grant Cycle #4 funding

$116Kprogram expense
02

TANGO2 Family Conference

$100Kprogram expense
03

Off-Cycle funding for BCM natural History study support

$55Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
See all 8 funders →
Grants paid · 29 grants · $653K · 2020–2024
Baylor College of MedicineFY2024$61,520
Brigham and Women S HospitalFY2024$25,000
University of RochesterFY2024$20,000
UpmcFY2024$14,800
Coastal Carolina UniversityFY2024$5,000
Baylor College of MedicineFY2023$43,000
Coastal Carolina UniversityFY2023$25,000
Concordia UniversityFY2023$25,000
Uplifting AthletesFY2023$20,000
Brigham and Women S HospitalFY2023$20,000
Vanderbilt UniversityFY2023$5,000
University of RochesterFY2023$5,000
University of MichiganFY2023$5,000
UpmcFY2023$5,000
University of TorinoFY2023$5,000
University of RochesterFY2022$32,500
Vanderbilt UniversityFY2022$20,000
University of TorinoFY2022$20,000
See all 29 grants →

By the numbers

The FY2024 990, line by line.

1The main four
Money inPt VIII
$604K
Ln 12
Gifts and grantsLn 1h$604K
Money outPt IX
$626K
Ln 25
Programscol B$555K
Managementcol C$44K
Fundraisingcol D$27K
Owns and owesPt X
$600K
net assets · Ln 32
Cash and savingsLn 1–2$600K
Total assetsLn 16$600K
LiabilitiesLn 26$0
PeoplePt VI, VII
7
listed · VII A
PaidVII A3
Voting boardVI 1a9
IndependentVI 1b9
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$604K
Government grantsLn 1e$0
Noncash giftsLn 1g$0
Fundraising eventsLn 1c$0
Gains on assetsLn 7$0
Total revenueLn 12$604K
Assets in detailPt X, end of year
CashLn 1$600K
SavingsLn 2$0
Cash and savings togetherLn 1–2$600K
InvestmentsLn 11–13$0
Land, buildings, equipmentLn 10c$0
Other assetsLn 15$0
Total assetsLn 16$600K
LiabilitiesLn 26$0
Net assetsLn 32$600K
OperationsPt I, VI
EmployeesI 51
VolunteersI 615
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes
3Year over year
Balance sheet, start vs end of yearPt X · col A, B
LineStart FY24End FY24
Cash and savingsLn 1–2$623K$600K
InvestmentsLn 11–13$0$0
Land, buildings, equipmentLn 10c$0$0
Total assetsLn 16$623K$600K
LiabilitiesLn 26$0$0
Net assetsLn 32$623K$600K
4Every line
Statement of functional expensesPt IX · every line
LineTotalProgramsManagementFundraising
Grants to domestic organizationsLn 1$140K$140K
Grants to domestic individualsLn 2$0$0
Grants and assistance to foreign recipientsLn 3$30K$30K
Benefits paid to or for membersLn 4$0$0
Pay of current officers, directors and key staffLn 5$221K$179K$30K$13K
Pay of disqualified personsLn 6$0$0$0$0
Other salaries and wagesLn 7$0$0$0$0
Pension plan contributionsLn 8$0$0$0$0
Other employee benefitsLn 9$0$0$0$0
Payroll taxesLn 10$17K$14K$2K$1K
Management feesLn 11a$0$0$0$0
Legal feesLn 11b$0$0$0$0
Accounting feesLn 11c$0$0$0$0
Lobbying feesLn 11d$0$0$0$0
Professional fundraising feesLn 11e$0$0
Investment management feesLn 11f$0$0$0$0
Other fees for servicesLn 11g$0$0$0$0
Advertising and promotionLn 12$0$0$0$0
Office expensesLn 13$0$0$0$0
Information technologyLn 14$0$0$0$0
RoyaltiesLn 15$0$0$0$0
OccupancyLn 16$0$0$0$0
TravelLn 17$0$0$0$0
Travel and entertainment for public officialsLn 18$0$0$0$0
Conferences, conventions and meetingsLn 19$0$0$0$0
InterestLn 20$0$0$0$0
Payments to affiliatesLn 21$0$0$0$0
Depreciation, depletion and amortizationLn 22$0$0$0$0
InsuranceLn 23$0$0$0$0
Other expenses (24a–d)Ln 24$0$0$0$0
All other expensesLn 24e$218K$192K$13K$14K
Total functional expensesLn 25$626K$555K$44K$27K

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest Viewing $604K$626K−$22K$600K 990 PDF
FY2023 $265K$410K−$144K$623K 990 PDF
FY2022 $452K$474K−$22K$767K 990 PDF
FY2021 $348K$288K$60K$789K 990 PDF
FY2020 $658K$179K$479K$728K 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
See the full FY2024 990 (6 parts)
Part I · Summary $603,857 revenue, 12 lines filed
I-8 Contributions and grantsPrior year $265,384$603,857
I-9 Program service revenuePrior year $0$0
I-10 Investment incomePrior year $0$0
I-11 Other revenuePrior year $0$0
I-12 Total revenuePrior year $265,384$603,857
I-13 Grants and similar amounts paidPrior year $158,045$170,126
I-14 Benefits paid to membersPrior year $0$0
I-15 Salaries and benefitsPrior year $191,177$237,909
I-16a Professional fundraising feesPrior year $0$0
I-17 Other expensesPrior year $60,348$218,132
I-18 Total expensesPrior year $409,570$626,167
I-19 Revenue less expensesPrior year −$144,186−$22,310
Part VI · Governance 9 of 9 board members independent, no flags
VI-1a Voting members of the governing body9
VI-1b Independent voting members9
VI-2 Family or business relationship among officers or directorsNo
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes
Part VIII · Statement of revenue $603,857 across 16 lines filed
VIII-1a Federated campaigns$0
VIII-1b Membership dues$0
VIII-1c Fundraising events$0
VIII-1d Related organizations$0
VIII-1e Government grants$0
VIII-1f All other contributions, gifts and grants$450,635
VIII-1g Noncash contributions (included above)$0
VIII-1h Total contributions, gifts and grants$603,857
VIII-2a-f Program service revenue, itemized rows (sum of 2a–2f as filed)Related to mission $0 · Unrelated business $0 · Excluded from tax $0$0
VIII-3 Investment incomeRelated to mission $0 · Unrelated business $0 · Excluded from tax $0$0
VIII-5 RoyaltiesRelated to mission $0 · Unrelated business $0 · Excluded from tax $0$0
VIII-6 Net rental income or lossRelated to mission $0 · Unrelated business $0 · Excluded from tax $0$0
VIII-7 Net gain or loss on sales of assetsRelated to mission $0 · Unrelated business $0 · Excluded from tax $0$0
VIII-8 Net income from fundraising eventsUnrelated business $0 · Excluded from tax $0$0
VIII-11a-d Other revenue, itemized rows (sum of 11a–11d as filed)Related to mission $0 · Unrelated business $0 · Excluded from tax $0$0
VIII-12 Total revenueRelated to mission $0 · Unrelated business $0 · Excluded from tax $0$603,857
Part IX · Statement of functional expenses $626,167 across 31 lines filed
IX-1 Grants to domestic organizationsPrograms $139,926$139,926
IX-2 Grants to domestic individualsPrograms $0$0
IX-3 Grants and assistance to foreign recipientsPrograms $30,200$30,200
IX-4 Benefits paid to or for membersPrograms $0$0
IX-5 Pay of current officers, directors and key staffPrograms $179,111 · Management $29,500 · Fundraising $12,514$221,125
IX-6 Pay of disqualified personsPrograms $0 · Management $0 · Fundraising $0$0
IX-7 Other salaries and wagesPrograms $0 · Management $0 · Fundraising $0$0
IX-8 Pension plan contributionsPrograms $0 · Management $0 · Fundraising $0$0
IX-9 Other employee benefitsPrograms $0 · Management $0 · Fundraising $0$0
IX-10 Payroll taxesPrograms $13,595 · Management $1,900 · Fundraising $1,289$16,784
IX-11a Management feesPrograms $0 · Management $0 · Fundraising $0$0
IX-11b Legal feesPrograms $0 · Management $0 · Fundraising $0$0
IX-11c Accounting feesPrograms $0 · Management $0 · Fundraising $0$0
IX-11d Lobbying feesPrograms $0 · Management $0 · Fundraising $0$0
IX-11e Professional fundraising feesFundraising $0$0
IX-11f Investment management feesPrograms $0 · Management $0 · Fundraising $0$0
IX-11g Other fees for servicesPrograms $0 · Management $0 · Fundraising $0$0
IX-12 Advertising and promotionPrograms $0 · Management $0 · Fundraising $0$0
IX-13 Office expensesPrograms $0 · Management $0 · Fundraising $0$0
IX-14 Information technologyPrograms $0 · Management $0 · Fundraising $0$0
IX-15 RoyaltiesPrograms $0 · Management $0 · Fundraising $0$0
IX-16 OccupancyPrograms $0 · Management $0 · Fundraising $0$0
IX-17 TravelPrograms $0 · Management $0 · Fundraising $0$0
IX-18 Travel and entertainment for public officialsPrograms $0 · Management $0 · Fundraising $0$0
IX-19 Conferences, conventions and meetingsPrograms $0 · Management $0 · Fundraising $0$0
IX-20 InterestPrograms $0 · Management $0 · Fundraising $0$0
IX-21 Payments to affiliatesPrograms $0 · Management $0 · Fundraising $0$0
IX-22 Depreciation, depletion and amortizationPrograms $0 · Management $0 · Fundraising $0$0
IX-23 InsurancePrograms $0 · Management $0 · Fundraising $0$0
IX-24 Other expenses (24a–d)Programs $0 · Management $0 · Fundraising $0$0
IX-24e All other expensesPrograms $192,032 · Management $12,600 · Fundraising $13,500$218,132
IX-25 Total functional expensesPrograms $554,864 · Management $44,000 · Fundraising $27,303$626,167
Part X · Balance sheet $600,338 assets, 22 lines filed
X-1 Cash, non-interest-bearingStart of year $622,648$600,338
X-2 Savings and temporary cash investmentsStart of year $0$0
X-3 Pledges and grants receivableStart of year $0$0
X-4 Accounts receivableStart of year $0$0
X-8 Inventories for sale or useStart of year $0$0
X-9 Prepaid expenses and deferred chargesStart of year $0$0
X-10c Land, buildings and equipment, netStart of year $0$0
X-11 Publicly traded securitiesStart of year $0$0
X-12 Other securitiesStart of year $0$0
X-13 Program-related investmentsStart of year $0$0
X-14 Intangible assetsStart of year $0$0
X-15 Other assetsStart of year $0$0
X-16 Total assetsStart of year $622,648$600,338
X-17 Accounts payable and accrued expensesStart of year $0$0
X-18 Grants payableStart of year $0$0
X-19 Deferred revenueStart of year $0$0
X-20 Tax-exempt bond liabilitiesStart of year $0$0
X-24 Unsecured notes and loans payableStart of year $0$0
X-25 Other liabilitiesStart of year $0$0
X-26 Total liabilitiesStart of year $0$0
X-32 Total net assets or fund balancesStart of year $622,648$600,338
X-33 Total liabilities and net assetsStart of year $622,648$600,338
Part XI · Reconciliation of net assets $600,338 net assets at year end
XI-1 Total revenue$603,857
XI-2 Total expenses$626,167
XI-3 Revenue less expenses−$22,310
XI-4 Net assets at start of year$622,648
XI-5 Net unrealized gains (losses) on investments$0
XI-6 Donated services and use of facilities$0
XI-7 Investment expenses$0
XI-8 Prior period adjustments$0
XI-9 Other changes in net assets$0
XI-10 Net assets at end of year$600,338

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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