Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Nov 2018.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
65 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
10 people listed on the 990; $127K paid to officers and key staff.
Suzanne Alexander’s $95K as Director is at the 28th percentile of top reported officer pay among 3395 $1–10M education nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 2 named individuals · Part VII
| Name | FY2021 | FY2020 |
|---|---|---|
| Suzanne Alexander | $95,000 | $95,000 |
| Wendy Faust | $32,308 | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2No
- Top official's pay set by an independent reviewPt VI · Ln 15aYes
Programs and updates
Supports ALS research, education, and families impacted by the disease.
Questions for Livelikelou Foundation
Your first name shows with your question. Livelikelou Foundation answers here, for everyone.
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Provided operating grants and recruited volunteers to support camps for children of ALS families. Provided tuition support for dependents of ALS families to attend post-secondary educational institutions. Developed and operated volunteer programs that serve ALS families across North America.
Provided support of ALS research through career development awards and grants for ALS research forums.
Provided grants to support educational leadership programs for college students. The program also provides college students with awareness of philanthropic opportunities for ALS research and family support.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2021 990, line by line.
Download 990
| Line | Start FY21 | End FY21 |
|---|---|---|
| Cash and savingsLn 1–2 | $726K | $1.1M |
| InvestmentsLn 11–13 | $388K | $465K |
| Land, buildings, equipmentLn 10c | $5K | $0 |
| Total assetsLn 16 | $1.1M | $1.6M |
| LiabilitiesLn 26 | $128K | $173K |
| Net assetsLn 32 | $995K | $1.5M |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $199K | $199K | ||
| Grants to domestic individualsLn 2 | $48K | $48K | ||
| Grants and assistance to foreign recipientsLn 3 | $0 | |||
| Benefits paid to or for membersLn 4 | $0 | |||
| Pay of current officers, directors and key staffLn 5 | $128K | $69K | $32K | $27K |
| Pay of disqualified personsLn 6 | $0 | |||
| Other salaries and wagesLn 7 | $0 | |||
| Pension plan contributionsLn 8 | $0 | |||
| Other employee benefitsLn 9 | $0 | |||
| Payroll taxesLn 10 | $0 | |||
| Management feesLn 11a | $99K | $49K | $25K | $25K |
| Legal feesLn 11b | $11K | $6K | $2K | $3K |
| Accounting feesLn 11c | $6K | $3K | $1K | $2K |
| Lobbying feesLn 11d | $0 | |||
| Professional fundraising feesLn 11e | $0 | |||
| Investment management feesLn 11f | $0 | |||
| Other fees for servicesLn 11g | $38K | $2K | $938 | $35K |
| Advertising and promotionLn 12 | $31K | $5K | $2K | $24K |
| Office expensesLn 13 | $0 | |||
| Information technologyLn 14 | $27K | $11K | $5K | $11K |
| RoyaltiesLn 15 | $0 | |||
| OccupancyLn 16 | $14K | $7K | $3K | $3K |
| TravelLn 17 | $15K | $5K | $2K | $7K |
| Travel and entertainment for public officialsLn 18 | $0 | |||
| Conferences, conventions and meetingsLn 19 | $0 | |||
| InterestLn 20 | $0 | |||
| Payments to affiliatesLn 21 | $0 | |||
| Depreciation, depletion and amortizationLn 22 | $5K | $3K | $1K | $933 |
| InsuranceLn 23 | $0 | |||
| Other expenses (24a–d)Ln 24 | $23K | $12K | $6K | $5K |
| All other expensesLn 24e | $179 | $97 | $45 | $37 |
| Total functional expensesLn 25 | $643K | $419K | $81K | $143K |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $1.5M | $2.2M | −$631K | $3.0M | 990 PDF |
| FY2023 | $2.9M | $1.9M | $1.0M | $3.5M | 990 PDF |
| FY2022 | $2.8M | $1.7M | $1.1M | $2.4M | 990 PDF |
| FY2021 Viewing | $1.1M | $643K | $422K | $1.5M | 990 PDF |
| FY2020 | $532K | $570K | −$39K | $995K | 990 PDF |
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Schedules filed Part IV
See the full FY2021 990 (6 parts)
Part I · Summary $1,064,974 revenue, 12 lines filed
Part VI · Governance 9 of 9 board members independent, no flags
Part VIII · Statement of revenue $1,064,974 across 9 lines filed
Part IX · Statement of functional expenses $642,639 across 31 lines filed
Part X · Balance sheet $1,647,060 assets, 19 lines filed
Part XI · Reconciliation of net assets $1,473,827 net assets at year end
Form 990 e-file (XML) FY2021 from the IRS · Classification, formation year and address from the IRS Business Master File
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