Is it real?
Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Dec 2017.
IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File
Where the money goes
85 cents of each dollar spent went to programs.
Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.
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Who runs it and what they're paid
9 people listed on the 990; $10K paid to officers and key staff.
Elissa Taylor-Bustillo’s $21K as Executive Director is at the 13th percentile of top reported officer pay among 901 $100K–1M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.
Compensation history total reportable pay by year · 6 named individuals · Part VII
| Name | FY2024 | FY2023 |
|---|---|---|
| Elissa Taylor-Bustillo | $20,770 | — |
| Chrinstina San Inocengo | — | $7,000 |
| Katie Ingersoll | $3,589 | $1,210 |
| Tim Gillies Photography | $3,000 | — |
| Ryan a Barash | $1,350 | $1,800 |
| Suzan Georges Symcath Studios LLC | $1,030 | — |
Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.
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Questions the 990 asks
The form asks each of these directly. These are the filed answers.
- Family or business ties among officersPt VI · Ln 2Yes
- Top official's pay set by an independent reviewPt VI · Ln 15aNo
Programs and updates
Funds research and raises awareness about the GRIN2B gene.
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Inform and help parents cope with sudden, unexpected change in their life due to a GRIN2B diagnosis.
Funders
Who pays for it.
From grant filings on record. Receipts are incomplete: individual donors are never listed.
Grants
By the numbers
The FY2023 990, line by line.
Download 990
| Line | Start FY23 | End FY23 |
|---|---|---|
| Cash and savingsLn 1–2 | $126K | $192K |
| Total assetsLn 16 | $126K | $192K |
| LiabilitiesLn 26 | $0 | $0 |
| Net assetsLn 32 | $126K | $192K |
| Line | Total | Programs | Management | Fundraising |
|---|---|---|---|---|
| Grants to domestic organizationsLn 1 | $35K | $35K | ||
| Accounting feesLn 11c | $4K | $4K | ||
| Other fees for servicesLn 11g | $9K | $9K | ||
| Advertising and promotionLn 12 | $763 | $763 | ||
| Office expensesLn 13 | $888 | $888 | ||
| TravelLn 17 | $3K | $3K | ||
| Conferences, conventions and meetingsLn 19 | $6K | $6K | ||
| InsuranceLn 23 | $1K | $1K | ||
| Other expenses (24a–d)Ln 24 | $78K | $73K | $6K | |
| All other expensesLn 24e | $18 | $18 | ||
| Total functional expensesLn 25 | $137K | $116K | $21K | $0 |
Filing history
| Year | Money in | Money out | In minus out | Net assets | Download |
|---|---|---|---|---|---|
| FY2024 Latest | $233K | $194K | $40K | $231K | 990 PDF |
| FY2023 Viewing | $203K | $137K | $66K | $192K | 990 PDF |
| FY2022 | $146K | $126K | 990 PDF | ||
| FY2021 | $117K | $132K | 990 PDF | ||
| FY2020 | $105K | $100K | 990 PDF |
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Schedules filed Part IV
See the full FY2023 990 (4 parts)
Part VIII · Statement of revenue $202,773 across 5 lines filed
Part IX · Statement of functional expenses $137,046 across 10 lines filed
Part X · Balance sheet $191,507 assets, 6 lines filed
Part XI · Reconciliation of net assets $191,507 net assets at year end
Form 990 e-file (XML) FY2023 from the IRS · Classification, formation year and address from the IRS Business Master File
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