Sebastianstrong Foundation INC

Tax-deductible

Miami Springs, FL501(c)(3)Diseases & DisordersEIN 81-5044002Revenue $1.2M in FY2024

On file with the IRSsebastianstrong.org970 Pinecrest Dr, 33166-6049 · Miami Springs, FLTax-exempt since Jul 2017Publicly supported charity — 170(b)(1)(A)(vi)

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Based in Miami, Florida, SebastianStrong Foundation is a registered 501(c)(3) charity that honors the life of Sebastian "Sebs Ortiz (2000-2016) by increasing awareness of childhood cancer and raising money to fund research for less toxic, more targeted childhood cancer cures. This mission was born from the example of STRENGTH set forth by Sebs during his courageous 14-month battle with rhabdomyosarcoma. Since his passing, the Foundation bearing his name has bolstered the support of donors from across the country. SebastianStrong has awarded several grants to date for pediatric cancer research.

501(c)(3) charity; gifts are tax-deductible.
76¢ of each $1 spent went to programs.
Run by 15 volunteers and 2 employees.
Mission: Form 990 Part I, line 1 · Status: IRS Pub. 78 · Programs: Part IX · People: Part I, lines 5–6

Before you give

FY2024 · Form 990Independent: from IRS data, not the org
Download 990
IRS status
501(c)(3)
not on the IRS revocation list
Looks good: listed by the IRS and not on the revocation list.
IRS BMF · Auto-Revocation List
Tax-deductible gifts
Yes
Donations are tax-deductible
Looks good: the IRS lists gifts to it as deductible.
IRS Pub. 78 · IRS BMF
Latest return
FY2024
latest Form 990
Looks good: the latest return is for FY2024, 2 tax years back; within 2 tax years.
IRS e-file · Filing history
Surplus or deficit
4 of 5
filings with a surplus
Average surplus $23K a year · 3% of revenue · last 5 filings
Fine: a surplus in 4 of the last 5 filings.
Pt I · Ln 19 · 5 filings
Spent on programs
76%
of spending
Looks good: 76% of spending went to programs; 75% or more.
Pt IX · Ln 25 · col B
Pay to officers and key staff
$560K
to officers and key staff · 56% of spending
Top officer’s pay higher than 53% of similar orgs
Concern: pay to officers and key staff is 56% of spending; over 30%.
Pt VII · Sec A
Cash reserves
8 mo
of spending, in cash
Looks good: 8.5 months of spending in cash; 3 or more.
Pt X · Ln 1–2 · Pt I · Ln 18
Named funders
10
named funders · $86K
Looks good: 10 funders name it on their filings; 3 or more.
Funders’ Sch. I, 990-PF
Liabilities
$134K
16% of total assets
Looks good: liabilities are 16% of assets; 50% or less.
Pt X · Ln 26
Independent board members
17
of 18 voting members
Looks good: 17 of 18 voting members are independent, a majority.
Pt VI · Ln 1a–1b
Looks goodFineWorth a lookConcernNo data yetTap a box for the reason.
Revenue
$1.2M
+24% vs prior year
Spent
$1.0M
To programs
76%
Net assets
$709K
By yearFY2020–FY2024
Revenue
$1.2M
FY2024▲ +24%
Tap a bar for its year
Revenue by fiscal year
FY2020$619K
FY2021$724K
FY2022$940K
FY2023$963K
FY2024$1.2M
Expenses
$1.0M
FY2024▼ -32%
Tap a bar for its year
Expenses by fiscal year
FY2020$529K
FY2021$398K
FY2022$928K
FY2023$1.5M
FY2024$1.0M
Net assets
$709K
FY2024▲ +37%
Tap a bar for its year
Net assets by fiscal year
FY2020$685K
FY2021$1.0M
FY2022$1.0M
FY2023$518K
FY2024$709K

From the FY2024 Form 990 · figures checked against the IRS filing · see the original

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Is it real?

Yes. Never revoked by the IRS. Latest filing on record: FY2024. IRS ruling in Jul 2017.

IRS Pub. 78 · IRS Auto-Revocation List · IRS Business Master File

Where the money goes

76 cents of each dollar spent went to programs.

Program services 76% · $764K Management & general 16% · $160K Fundraising 16% · $156K

Form 990 Part IX, line 25, columns B–D. Every line is in By the numbers.

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Who runs it and what they're paid

38 people listed on the 990; $560K paid to officers and key staff.

Part VII, Section A · reportable compensation
Executive Director/ Board
$150,000Pt VII · Sec A
Executive Director/ Board
$150,000Pt VII · Sec A
Chief Operations Officer
$130,000Pt VII · Sec A
Chief Operations Officer
$130,000Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A
Board Member
$0Pt VII · Sec A

Oscar Ortiz’s $150K as Executive Director/ Board is at the 53rd percentile of top reported officer pay among 733 $1–10M diseases & disorders nonprofits. Peer set: organizations in the same NTEE major field of work and revenue-size band, compared on each org’s own highest-paid officer/key-employee, from Form 990 Part VII / 990-PF Part VIII. Descriptive placement, not a verdict on whether the pay is appropriate.

Compensation history total reportable pay by year · 2 named individuals · Part VII

NameFY2024FY2023FY2022FY2021FY2020
Oscar Ortiz$150,000$120,000$120,000$85,000$50,000
Jasmine Gomez$130,000$91,667———

Total reportable compensation (Form 990 Part VII column D / Schedule J column E) by filing year, matched by name within this organization. The Schedule J base / bonus / deferred breakdown is not parsed into this dataset.

See Sebastianstrong Foundation INC executive salaries →

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Questions the 990 asks

The form asks each of these directly. These are the filed answers.

  • Family or business ties among officersPt VI · Ln 2Yes
  • Top official's pay set by an independent reviewPt VI · Ln 15aYes

Programs and updates

Funds research for less toxic childhood cancer cures and raises awareness.

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Provided by the organization

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4 programs · $1.4M · in their own filed words · FY2024
01

SebastianStrong Foundation's focus is on funding cutting-edge Pediatric Cancer research. We aim to fund research that focuses on less toxic and more targeted treatments and cures - from finding ways to make chemotherapy treatment less toxic and more effective, to finding ways to teach the body to fight cancer.

$509Kprogram expense
02

SebastianStrong Foundation's focus is on funding cutting-edge Pediatric Cancer research. We aim to fund research that focuses on less toxic and more targeted treatments and cures - from finding ways to make chemotherapy treatment less toxic and more effective, to finding ways to teach the body to fight cancer.

$508Kprogram expense
03

SebastianStrong Foundation works to bring awareness and knowledge of childhood cancer to the general public as well as childhood cancer families through awareness, educational and volunteer activities. SebastianStrong routinely educates the general public through guest lectures/presentations at schools and community events.

$168Kprogram expense
04

SebastianStrong Foundation works to bring awareness and knowledge of childhood cancer to the general public as well as childhood cancer families through awareness, educational and volunteer activities. SebastianStrong routinely educates the general public through guest lectures/presentations at schools and community events.

$167Kprogram expense

Funders

Who pays for it.

From grant filings on record. Receipts are incomplete: individual donors are never listed.

Grants

Schedule I · received and paid
Grants received · FY2024
See all 10 funders →
Grants paid · 38 grants · $4.1M · 2020–2024
Children's Hospital FoundationDC · FY2024$143,750
Children's Hospital FoundationDC · FY2024$143,750
Unitemized GrantFY2024$10,000
Unitemized GrantFY2024$10,000
Children's Hospital FoundationDC · FY2023$353,390
Dolphins Cycling Challenge INCFL · FY2023$351,040
Unitemized GrantFY2023$7,500
Children's Hospital FoundationDC · FY2022$318,108
Children's Hospital FoundationDC · FY2022$318,108
See all 38 grants →

By the numbers

The FY2024 990, line by line.

1The main four
Money inPt VIII
$1.2M
Ln 12
Other incomeLn 4–11$629K
Gifts and grantsLn 1h$523K
Investment incomeLn 3$40K
Money outPt IX
$1.0M
Ln 25
Programscol B$764K
Managementcol C$160K
Fundraisingcol D$156K
Owns and owesPt X
$709K
net assets · Ln 32
Cash and savingsLn 1–2$713K
Total assetsLn 16$843K
LiabilitiesLn 26$134K
PeoplePt VI, VII
38
listed · VII A
PaidVII A4
Voting boardVI 1a18
IndependentVI 1b17
2In more detail
Revenue in detailPt VIII
Gifts and grantsLn 1h$523K
Investment incomeLn 3$40K
Other incomeLn 4–11$629K
Total revenueLn 12$1.2M
Assets in detailPt X, end of year
Cash and savings togetherLn 1–2$713K
Total assetsLn 16$843K
LiabilitiesLn 26$134K
Net assetsLn 32$709K
OperationsPt I, VI
EmployeesI 52
VolunteersI 615
Fiscal year endsHeaderDecember
Conflict-of-interest policyVI 12aYes
Whistleblower policyVI 13Yes
Records policyVI 14Yes

Filing history

YearMoney inMoney outIn minus outNet assetsDownload
FY2024 Latest Viewing $1.2M$1.0M$190K$709K 990 PDF
FY2023 $963K$1.5M−$505K$518K 990 PDF
FY2022 $940K$928K$12K$1.0M 990 PDF
FY2021 $724K$398K$326K$1.0M 990 PDF
FY2020 $619K$529K$91K$685K 990 PDF

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Schedules filed Part IV

III · Programs I · Grants R · Related orgs G · Fundraising L · Interested persons A · Public support F · Foreign M · Noncash
See the full FY2024 990 (1 part)
Part VI · Governance 17 of 18 board members independent, 1 to look at
VI-1a Voting members of the governing body18
VI-1b Independent voting members17
VI-2 Family or business relationship among officers or directorsYes
VI-12a Written conflict of interest policyYes
VI-13 Written whistleblower policyYes
VI-14 Document retention and destruction policyYes
VI-15a Process for setting top official's payYes

Form 990 e-file (XML) FY2024 from the IRS · Classification, formation year and address from the IRS Business Master File

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